MS Hug: I think I am having an MS Hug. I... - My MSAA Community

My MSAA Community
5,482 members12,234 posts

MS Hug

cljones
cljones

I think I am having an MS Hug. I feel like Andre the Giant is squeezing me around the ribs. This is this the first time I have had this happen. Is there anything that I can do about this?

16 Replies
oldestnewest

Talk to your neurologist. If it’s a new symptom he might give you solumedrol. My neurologist increased the amount of gabapentin I was taking. It helped. Good luck.

cljones
cljones
in reply to pihokken

pihokken Thanks I will check with him.

I was diagnosed in 2009. Right from the get go, my rib cage felt like it was being squeezed or pushed from the inside out. For me, it's a sign, that things are swelling up inside. Good dose of steroids usually takes that away for me.

Definitely get seen by either your neurologist or primary doctor. I went to work Thursday thinking I was just having a hug and I ended up in the ER and admitted into the hospital. They said my heart muscles were inflamed causing my pain. I’ve had MS hugs before. I’ve always been told to be seen by a doctor to make sure that it is truly a hug and nothing more. I’m so glad I listened to my neurologist. I’m praying for you. Keep us posted.

jackiesj
jackiesj
in reply to Nvprp21

Nvprp21 I'm so glad you went to the ER and good staff there...With heart issues and MS here....glad you got checked out.Do they know what caused heart muscles to inflame the heart?Best wishesJJ

Nvprp21
Nvprp21
in reply to jackiesj

No they don’t know! They tested me for every virus and bacterial infection and everything was negative. My troponin levels were as high as 21.3 which is seriously critical! But with that my blood pressure and heart rate was never elevated. So I was a mystery to them. They couldn’t explain what was happening. They did an echo and cardiac cath. I have no blockage and normal function in my heart. I’m waiting for clearance to have a cardiac mri which will show in depth all aspects of my heart and anything that the other two tests could’ve missed. I’ve heard of someone with ms having lesions on her heart nerves which is what I’m concerned about.

jackiesj
jackiesj
in reply to Nvprp21

Nvprp21..my goodness, well good no blockage, they think with me(a quad bypass failed.....) that it failed because the vein they used from my leg for the arteries on my heart "(might) be called MS scarring....I'm interested for sure what you may find out.Sounds like you have an active doc though and that is good...feel better soon i hope.....

Nvprp21
Nvprp21
in reply to jackiesj

Yes she’s great! All the doctors in the practice are great! Like I said to my doctors and nurses. I’m ok with losing the ability to walk or use my hands. That I can gain back possibly. But I’m more concerned with taking care of my heart. Can’t regain that back if it stops working and I love my heart. So the plan is to place MS off to the side a little bit and figure out what’s going on with me.

Jesmcd2
Jesmcd2CommunityAmbassador

Hi cljones call your Neuro and or your PCP. As it could be anything, to something!

My 'Hug' was caused by an upper respiratory infection.

So call! And concentrate on breathing thro them.😊

J🌠

Let us know what they say!💕

I had an MS Hug that was triggered by a kidney infection. I was very lucky not to have it spread to my blood. Call asap especially if the pain is constant

Well my husband gave name an Aleve and I got better. I am thinking that maybe my breakfast just didn't agree with me because now I am better. I don't know what happened exactly but everything seems to be ok today.

Hello! I am so sorry you are experiencing the MS hug, I remember that feeling well. Fortunately, it went away after about three weeks on its on, (hopefully never to return). All I can give you is prayers and the support of knowing you are not alone. Be encouraged, this too shall pass.

Jozzi :)

jackiesj
jackiesj
in reply to Jozzi

jozzi oh 3 weeks?oh my...sorry to hear that long///glad you are better...This too shall pass is my favorite saying...a lot.

MsHug, I hated the rope tied around me chest. It felt like two people each had an end and they were pulling it tighter and tighter. My neuro told me I was crazy. She said she had never heard of that before. She must have been a neuro for 15 minutes in that case. It finally went away. I don't know why, but I hope yours goes away very soon. MsGelfling

MsGelfling it has gone away. It was really weird. Man it hurt. I feel fine today. So my Neuro would just say it wasn't the MS. He always says when I it doesn't last more than several days it's not the MS.

pihokken
pihokken
in reply to cljones

Interestingly, mine starts to come back whenever my body temp is elevated. Tough to stay outside on a hot day. But as soon as I cool down, it relaxes.

You may also like...