Posts - My MSAA Community | HealthUnlocked

My MSAA Community

9,065 members • 20,801 posts

All posts for February 2018

Praise where praise is due!

I attended a Biogen sponsored lunch Friday, where the drug representative gave me much needed assistance, that kept me from running out of Tecfidera. I am...

I attended a Biogen sponsored lunch Friday, where the drug representative gave m...

4fishylady

•6 years ago

11 Replies

I thought we all could use a little inspiration.

Raingrrl you can make this one of your screensavers too if you wish to

Allen5280

•6 years ago

13 Replies

Neuro appt today - what's failing...don't know

I was on Tysabri for 5 years and it kept my MS fairly stable. But since I'm JCV+ and my index kept rising, I had to switch to something else and Ocrevus seemed...

I was on Tysabri for 5 years and it kept my MS fairly stable. But since I'm JCV+...

Raingrrl

•6 years ago

35 Replies

Want to take advantage of all our features? Just log in!

Hi, Guys!

I have been lax in posting, but drop in now and then. I am doing great! Today is our Son's 50th birthday and we are planning a party at our house. He is the...

I have been lax in posting, but drop in now and then. I am doing great! Today ...

SueAB

•6 years ago

6 Replies

Hi from Lorain, Ohio! 🙋‍♀️

Hi! Thank you for permitting me to join this group! I really have no support system, not many friends, and I'm just very unhappy with my life status right...

Hi! Thank you for permitting me to join this group! I really have no support sys...

faith824

•6 years ago

21 Replies

Back Surgery

Happy Thursday, Has anyone in the group had back surgery? Im schedule to have Lumbar fusion surgery in April. Thoughts???

Happy Thursday, Has anyone in the group had back surgery? Im schedule to have L...

pattysunshine

•6 years ago

13 Replies

Tomorrow begins the test

Well the home nurse will be here at 9 tomorrow morning to set me up for my first solumedrol iv infusion. Been a long time coming so I sure hope it was with the...

Well the home nurse will be here at 9 tomorrow morning to set me up for my first...

Doubled51

•6 years ago

44 Replies

Oreavus questions

I'm slated to start Ocreavus, but am worried about immune supression. M.S. causes a "misfiring" autoimmune system, but without it, dormant viruses such as...

I'm slated to start Ocreavus, but am worried about immune supression. M.S. caus...

smw163

•6 years ago

8 Replies

Vibration Machines

I have a friend who has neuropathy & fibromyalgia and uses a vibration machine to help alleviate the symptoms and pain. She says it helps. Does anyone have any...

I have a friend who has neuropathy & fibromyalgia and uses a vibration machine t...

pmbevac

•6 years ago

2 Replies

MSAA MRI help

https://mymsaa.org/msaa-help/mri/ I received this in an email today and think it could very helpful.

https://mymsaa.org/msaa-help/mri/ I received this in an email today and think it...

greaterexp

•6 years ago

1 Reply

Crazy NYC Weather !

Hello! I am new to this board. Was diagnosed in October of 2014. I’m doing okay, but some days are better, some worse. Yesterday was in the mid 70s in...

Hello! I am new to this board. Was diagnosed in October of 2014. I’m doing ...

elaineinqueens

•6 years ago

32 Replies

TB vaccine being studied for MS, diabetes

I found a fascinating article yesterday that talked about studies being done using the ancient, original TB vaccine to treat and possibly reverse type 1...

I found a fascinating article yesterday that talked about studies being done usi...

Amore55

•6 years ago

5 Replies

MRI help

I know there have been a few people looking for help with tests or diagnoses. I just got an email from MSAA saying they have an MRI fund available for people...

I know there have been a few people looking for help with tests or diagnoses. I ...

Midgey_Midge06

•6 years ago

1 Reply

Recipe of the month

https://blog.mymsaa.org/category/msaa-2/recipe-of-the-month/ Jesmcd2 was kind enough to send this link. I’m not sure my phone will allow me to accurately post...

https://blog.mymsaa.org/category/msaa-2/recipe-of-the-month/ Jesmcd2 was kind en...

greaterexp

•6 years ago

9 Replies

Hi All! Its Karen

Hi everyone. I have seen a couple of pleas for those of us that have been "absent" to drop a note. Here is hubby and I. Isn't he handsome? I have been great....

Hi everyone. I have seen a couple of pleas for those of us that have been "absen...

Karen-x

•6 years ago

8 Replies

Pain in muscles

Hi all it's me again ssdw1958. Remember I had such pain in the muscle above my knees, well the temperature and the humidity have gone down. The temp. Right...

Hi all it's me again ssdw1958. Remember I had such pain in the muscle above my k...

ssdw1958

•6 years ago

4 Replies

Weather??

Well you know how I said it got warm. Well pay back is not good. It is going to snow Thursday great I have a doctor's appointment 70*F one day and now the next...

Well you know how I said it got warm. Well pay back is not good. It is going to ...

ssdw1958

•6 years ago

6 Replies

Looking for suggestions...

I had my Annual MRI this week, and there were new lesions. My nuerologist is sending me for a three day steroid treatment ...which I thought was a little odd,...

I had my Annual MRI this week, and there were new lesions. My nuerologist is se...

Sadieschafer

•6 years ago

12 Replies

Where have you all gone? 👀We miss you so very much!😭

As this chat room continues to expand and our membership grows and grows, along the way we have lost many dear friends. This is a plea from members of your...

As this chat room continues to expand and our membership grows and grows, along ...

Fancy1959

•6 years ago

19 Replies

MRI Results

Finally got mri results. NO NEW LESIONS. Hallelujah. Praise God. This was awesome news after all the trouble I went thru getting them. So I guess the Plegridy...

Finally got mri results. NO NEW LESIONS. Hallelujah. Praise God. This was awesom...

Doubled51

•6 years ago

39 Replies

Constipation is Poopy

I have been dealing with constipation for several years now, but it recently got much worse. For the past two weeks, I haven't been able to produce a bowel...

I have been dealing with constipation for several years now, but it recently got...

Jmhnath

•6 years ago

41 Replies

New to group

Hello all! I am 45 & was diagnosed with MS on January 9th. I have a 2nd opinion scheduled at UVA MS clinic next week and was wondering if anyone can offer...

Hello all! I am 45 & was diagnosed with MS on January 9th. I have a 2nd opinio...

TMStein

•6 years ago

24 Replies

Pain in the musal above my knees

You like I was saying about the weather getting warmer well the pain in the musal above my knees are hurting so bad I have my heating pad on them but it gets...

You like I was saying about the weather getting warmer well the pain in the musa...

ssdw1958

•6 years ago

8 Replies

MS Hug ~ First Experience

Hi Everyone, I am currently experiencing my first MS Hug. I know everyone is different but how long does this typically last? Mine started Thursday. The...

Hi Everyone, I am currently experiencing my first MS Hug. I know everyone is d...

Daring_Greatly

•6 years ago

15 Replies

MS Abbreviation quiz # 3 Are you Ready??!!

OK, this is the final quiz. Most answers can be found at: https://mymsaa.org/ms-information/glossary/...

OK, this is the final quiz. Most answers can be found at: ...

CalfeeChick

CommunityAmbassador•6 years ago

9 Replies

MS Abbreviation quiz #2 -The Answers

No one really answered the quiz - C'mon kids - get the grey matter challenged. Answers are: AMP – Adenosine Monophosphate BBB- Blood-Brain Barrier CIS –...

No one really answered the quiz - C'mon kids - get the grey matter challenged. ...

CalfeeChick

CommunityAmbassador•6 years ago

15 Replies

Lunch

Hi to all guess what it is sunny and 60*F in Massachusetts. And tomorrow it will be a little bit warm but I will not get use to it because it will come down....

Hi to all guess what it is sunny and 60*F in Massachusetts. And tomorrow it will...

ssdw1958

•6 years ago

10 Replies

Exasperated

I hv been diagnosed for 13 years. Am 52 years old female from India. Due to the cost, have never been on interferons. Had brain lesions when diagnosed. Now had...

I hv been diagnosed for 13 years. Am 52 years old female from India. Due to the ...

Zapped

•6 years ago

4 Replies

Medical Canabis

Came across a couple of links this morning. Thought I'd pass along. I don't personally inhale, vape or use a CBD oil. I tried the oil for about 6 weeks with no...

Came across a couple of links this morning. Thought I'd pass along. I don't pers...

CalfeeChick

CommunityAmbassador•6 years ago

15 Replies

URGENT! PLEASE SIGN...

Hi friends. As most of you who suffer with chronic pain know, it's nearly impossible these days to find a doctor who will write a prescription for something...

Hi friends. As most of you who suffer with chronic pain know, it's nearly impos...

Gods_Girl

•6 years ago

23 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for February 2018

Praise where praise is due!

I thought we all could use a little inspiration.

Neuro appt today - what's failing...don't know

Hi, Guys!

Hi from Lorain, Ohio! 🙋‍♀️

Back Surgery

Tomorrow begins the test

Oreavus questions

Vibration Machines

MSAA MRI help

Crazy NYC Weather !

TB vaccine being studied for MS, diabetes

MRI help

Recipe of the month

Hi All! Its Karen

Pain in muscles

Weather??

Looking for suggestions...

Where have you all gone? 👀We miss you so very much!😭

MRI Results

Constipation is Poopy

New to group

Pain in the musal above my knees

MS Hug ~ First Experience

MS Abbreviation quiz # 3 Are you Ready??!!

MS Abbreviation quiz #2 -The Answers

Lunch

Exasperated

Medical Canabis

URGENT! PLEASE SIGN...

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