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All posts for October 2017

More CADES Cove pics

A picture of one of the beautiful mountain views

Doubled51

•7 years ago

7 Replies

Approved for Ocrevus

Aetna finally approved Ocrevus after an appeal. Their reasons for denying it in the first place were stupid but that's kind of how it goes. But...because it...

Aetna finally approved Ocrevus after an appeal. Their reasons for denying it in ...

Raingrrl

•7 years ago

24 Replies

Family who refuse to accept you have MS and demand you do what they want

My mother didn't find out until Feb 2016 that I had MS. If I had my way she would never had known. It would've never been discovered if I hadn't had a relapse....

My mother didn't find out until Feb 2016 that I had MS. If I had my way she woul...

rjoneslaw

•7 years ago

43 Replies

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Incontinence

Uncomfortable question, but is anyone suffering from bowel incontinence and if so, what are you doing for it or how are you coping with it? Thanks.:(

Uncomfortable question, but is anyone suffering from bowel incontinence and if s...

punterstein

•7 years ago

14 Replies

Results

Didn’t want to type again. What I wanted to say didn’t post. I don’t think. But I took a picture. Sorry if u get it twice.

Didn’t want to type again. What I wanted to say didn’t post. I don’t think. But ...

Diva1976

•7 years ago

10 Replies

Amazing virtual webinar on emerging MS treatments

I believe this 1 1/2 HR. Scientific Webinar is geared to providers but the info on diet, supplements, stem cells the antihistamine I mentioned yesterday is...

I believe this 1 1/2 HR. Scientific Webinar is geared to providers but the inf...

erash

•7 years ago

1 Reply

New 7T MRI

I wonder what this will mean for MS diagnosis and progression determinations?...

erash

•7 years ago

14 Replies

Finally some good news

Found out today my disability has been approved! Not sure when it will start, but just knowing is enough to hang on.

Found out today my disability has been approved! Not sure when it will start, bu...

melack01

•7 years ago

35 Replies

IV hard to set?

I went for my MRI yesterday to get new measurements on my brain tumor. I went thru the first section of MRI now it's time for the contrast. Hour later 3...

I went for my MRI yesterday to get new measurements on my brain tumor. I went ...

SlmHarris

•7 years ago

15 Replies

One of my favorite places

Taking a little r & r time. In Townsend Tenn home of Cases Cove. 11 miles of the most beautiful nature park in the great Smokey mountain national park. Took...

Taking a little r & r time. In Townsend Tenn home of Cases Cove. 11 miles of the...

Doubled51

•7 years ago

17 Replies

Must remember...

God will see me through the storm. Even though I am a Ms. now instead of a Mrs. His (ex) doings

God will see me through the storm. Even though I am a Ms. now instead of a Mrs....

Sggmcswain

•7 years ago

3 Replies

Need someone to help me...

I am still trying to find two nurses or care givers to come in home. 24 hours, 12 hour shifts in North Georgia. HELP

I am still trying to find two nurses or care givers to come in home. 24 hours, ...

Sggmcswain

•7 years ago

4 Replies

RLS

Help! New spt of restless leg syndrome! Is it Tecfidera?? Has it years ago but 1 Xanax took care of it. Neuro took my Xanax away and gave me Valium and it has...

Help! New spt of restless leg syndrome! Is it Tecfidera?? Has it years ago but 1...

agapepilgrim

•7 years ago

12 Replies

Changing medicine

Well my Nero decided to change me to Gilenya. I had to have an eye test for maculer edema. I scheduled it and doc said "I will email results tomorrow. OK The...

Well my Nero decided to change me to Gilenya. I had to have an eye test for macu...

cljones

•7 years ago

13 Replies

Antihistamine for remyelination

I used to rx this all the time...then I think it may have gone OTC The 1 side effect of sleepiness might be wort it if the improvement continues after stopping...

I used to rx this all the time...then I think it may have gone OTC The 1 side ef...

erash

•7 years ago

21 Replies

Good news!

Hello friends! I found a new Neurologist, since mine moved after many years. The practice was not accommodating, so I'm moving on. I will meet her at months...

Hello friends! I found a new Neurologist, since mine moved after many years. The...

mrshaney

•7 years ago

4 Replies

Low Dose Naltrexone LDN

Anyone take this? After reading an article I think I’ll ask my Neurologist about a script for it. The research is not specific to MS but the cases presented...

Anyone take this? After reading an article I think I’ll ask my Neurologist abou...

Becky63

•7 years ago

54 Replies

You play, you pay!

Went to Willis reunion in Elizabethtown, Illinois, where Frank was born, on the Ohio River, been going for 45 years, couldn't stop now. Came home with new...

Went to Willis reunion in Elizabethtown, Illinois, where Frank was born, on the ...

agapepilgrim

•7 years ago

12 Replies

A poem for us all

MS stands for Mighty Strange, Cause the symptoms have unending range; Even though MRIs proved it, by my neuro was told, Couldn't be MS-you're too old, Cannot...

MS stands for Mighty Strange, Cause the symptoms have unending range; Even thoug...

agapepilgrim

•7 years ago

17 Replies

Disabled persons FLORIDA vacation.

I can't believe I never mentioned this. There is a cool place to stay or visit for disabled persons and caretakers on the beach in Florida and by Florida...

I can't believe I never mentioned this. There is a cool place to stay or visit...

downrigger

•7 years ago

5 Replies

Gotta wonder about God's sense of humor

I was diagnosed with MS 3 years ago and my poor husband has been such an angel in dealing with all the nonsense that comes with it. Wednesday, he was...

I was diagnosed with MS 3 years ago and my poor husband has been such an angel i...

cindyrn68

•7 years ago

16 Replies

Asking a favor...

I am asking a favor of my MS family. I have entered a contest where I have the chance to have my dream come true. I have always, well since I was 8 yrs old,...

I am asking a favor of my MS family. I have entered a contest where I have the ...

Bygonelines

•7 years ago

24 Replies

Thank you from Las Vegas

Thank you for all of your concerns about that horrible day. We are all safe! Which is a blessing in itself. We had tickets to go to the concert but changed...

Thank you for all of your concerns about that horrible day. We are all safe! Whi...

Shelly36

•7 years ago

8 Replies

Why is it never easy?

This may be a long post, and for that I apologize. Facts: 1: Diagnosed in December, 2012, by neurologist specializing in MS 2: Started Tysabri January, 2013,...

This may be a long post, and for that I apologize. Facts: 1: Diagnosed in Decem...

Texandyroe

•7 years ago

22 Replies

Canes

Need some input please. I need a sturdier cane. Saw a man at BA using a really cool one with 2 gables one to pull yourself. It had 4 kegs and I wa already to...

Need some input please. I need a sturdier cane. Saw a man at BA using a really c...

agapepilgrim

•7 years ago

17 Replies

Good YouTube @ MRIs

Good you tube about MRIs https://m.youtube.com/watch?v=Bq1Yi-Jp4Yg

erash

•7 years ago

3 Replies

Trying

Being a productive member of society has been the ultimate trial! After several attempts to rejoin the work force and obtain gainful employment have been...

Being a productive member of society has been the ultimate trial! After several ...

Fattius

•7 years ago

6 Replies

MS funny for today

Got my smile back! Thanks to all of you!

agapepilgrim

•7 years ago

9 Replies

Joy comes in the morning

Not sure what happened, but today the dark clouds blew away, and I am smiling once more. I thank God for all my friends who prayed - God answered and brought...

Not sure what happened, but today the dark clouds blew away, and I am smiling on...

agapepilgrim

•7 years ago

4 Replies

MS and a Crazy Woman Water: at Albertsons...

Moving is going.Me and husband have both broken down.45 min to an hour one way and we both sat in the middle of the house and cried.Joy...thankfulness, and we...

Moving is going.Me and husband have both broken down.45 min to an hour one way a...

jackiesj

•7 years ago

6 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for October 2017

More CADES Cove pics

Approved for Ocrevus

Family who refuse to accept you have MS and demand you do what they want

Incontinence

Results

Amazing virtual webinar on emerging MS treatments

New 7T MRI

Finally some good news

IV hard to set?

One of my favorite places

Must remember...

Need someone to help me...

RLS

Changing medicine

Antihistamine for remyelination

Good news!

Low Dose Naltrexone LDN

You play, you pay!

A poem for us all

Disabled persons FLORIDA vacation.

Gotta wonder about God's sense of humor

Asking a favor...

Thank you from Las Vegas

Why is it never easy?

Canes

Good YouTube @ MRIs

Trying

MS funny for today

Joy comes in the morning

MS and a Crazy Woman Water: at Albertsons...

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