This may be a long post, and for that I apologize. Facts:
1: Diagnosed in December, 2012, by neurologist specializing in MS
2: Started Tysabri January, 2013, receiving injections in said neurologist's infusion center
3: Moved 250 miles away in June 2014
4: As, MRIs continue to remain stable, opted to continue to see said neurologist every 6 months, while getting infusions every month in new town of residence
5: Only one infusion center anywhere near new town of residence is certified to infuse Tysabri. This infusion center is affiliated with a certain hospital megaplex here, and can only accept patients who have a prescribing doctor who is also affiliated with that hospital
6. Found a doctor affiliated with said hospital, who, after conferring with my neurologist (250 miles away) agreed to act as my prescribing doctor, so I could continue to get my infusions
7. For a year, continued to get infusions regularly.
8. Turned 65, went on Medicare, all insurance changed
9. 3 months before that, I began notifying all doctors and Tysabri manufacturer that this was happening, so that there would be a smooth transition
10. The month I went on Medicare, the infusion center notified me they had not received the Tysabri yet, so They were canceling my appointment
11. After a zillion phone calls to Biogen, my local doctor, my neurologist...I finally got an infusion...a month late
12. Two months later (today) I got a call from the pharmacy dispensing my Tysabri that my prior authorization had been withdrawn, because my prescribing physician had withdrawn it. What?!?! I'm sure it's some kind of snafu between my having a local physician, my neuro beiing out of the hospital network, and the insurance company. Arghghgh! And with tomorrow being a holiday, I'll have to wait til Tuesday to start the phone calls ....again. Rant over...thanks for listening.