A poem for us all: MS stands for Mighty... - My MSAA Community

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A poem for us all

agapepilgrim profile image
17 Replies

MS stands for Mighty Strange, Cause the symptoms have unending range;

Even though MRIs proved it, by my neuro was told, Couldn't be MS-you're too old,

Cannot argue with him; he'll say Goodbye! Then I must find another gay or guy;

First comes the shock: Not, not ME; Then comes research, no this cannot be!

The more research tho', the more confused, Til the whole subject becomes a muse.

Meanwhile, the more fatigued I grow, And depression to all time low.

One day I walk, the next I fall; One day my words are there, next not at all;

I love roller coasters, so I'm at home, On this ride of emotions I'm always on.

One day I'm up, one day I'm down; One day I love him, the next I only frown.

I spill my coffee, can't balance my bank; Can't cook or clean, so in the clutter I sank.

Then one day I become a rebel, Start working so no one can tell;

But my tears show my terrible pain; From pretending, there's nothing to gain.

Oh, but my friend said, just wait; It will soon be over cause you look great!

As I morph into someone not ME' My family wonders who I will be,

When my pain subsides and anger is gone, I say I'm sorry, but feel so alone.

Still they say, smile and keep your chin up, Fighters of MS monster never give up,

I am tired of fighting, a warrior no more, I'll just be the one who closes the door;

I'll try my best to not make you cry; Hope to make you laugh, or least to smile,

Forgot my cane, so I'll walk like a drunk, But my shrink said if I drink, I'm shrunk.

Forgot my phone, on way to doctor today, So which one I going to? I say.

Neurologist, psychologist, allergist, opthamologist,

Physical therapist, massage therapist, oncologist,

Or Just primary care? Want to play a card game,

With all my doctors cards? you probably carry the same,

I love a great mystery; Cause comedies are now history;

Mysteries make me laugh, they're so predictable

,But this MS mystery is very unpredictable.

My eyes are blurry, but "just the disease;"

My leg is having spasms, "just the disease.

Forgot my SS number, forgot my pen number,

No shopping today; it's been a long, hot summer.

Call my doctor, don't complain, just say I have new symptoms,

I try to explain; but he just makes me feel like a bum;

Neuro says, find a way to cope; it's just MS, Goodbye;

Oh, wait, it's time for a new MRI!

What do I do now, with all this pain, you ask?

Why, turn to God in prayer; 'tis my only task.

Only one things remains as through MS I trodm

I will always rejoice, and trust in my God!

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agapepilgrim profile image
agapepilgrim
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17 Replies
jimeka profile image
jimeka

agapepilgrim wow, that certainly says it all, I am going to read it to my hubby when he wakes up. Did you write it agapepilgrim? In fact if you don't mind I am going to email to all of my children, big blessings and a hug, Jimeka 🦋 🌈 🤗

agapepilgrim profile image
agapepilgrim in reply tojimeka

jimeka yes I wrote it, a little bit each day in the middle of the night. I used to write poetry all the time. I finally got outside myself and the old me came out to play. 😂

jimeka profile image
jimeka in reply toagapepilgrim

agapepilgrim well done. I said when I first met you on the forum that you should publish your work. Maybe do a book just related to ms, it would help some of us, I know it's helped me already, just by reading it out loud to my hubby. By the way, he said 'wellwritten' blessings Jimeka 🦋 🌈

agapepilgrim profile image
agapepilgrim in reply tojimeka

jimeka i have wanted to write a book since my early 20’s. Started one a few times. With a few poems scattered throughout. But my depression always gets in the way and discouraged me. I have suffered from depression since a child. Only God has held me together. But maybe before my life is ended I will do that, God willing. I do our church bulletins, which are more like an small 8 page inspirational booklet. Used to do every other week, then once a month. Now haven’t written one since May. My church understands but hasn’t passed the job to anyone else After writing the poem, I realized I was capable of writing a church booklet. But, depression sets on and I am not motivated to do anything. But talk to you guys😜

ssdw1958 profile image
ssdw1958 in reply toagapepilgrim

agrapepilgrim

I have to let you know I have a children’s book written I have know ideas how to publish it. I need to figure that out.

You should do it too I have Faith in you that you can do it I am sure that you have a great stories to tell

agapepilgrim profile image
agapepilgrim in reply tossdw1958

ssdw1958 there are sites on the internet that publish books. A friend’s grandson just did it, available on kindle already. My daughter wrote a devotion book but never had it published. I need to get it out and try to publish it!

ssdw1958 profile image
ssdw1958 in reply toagapepilgrim

agrapepilgrim I want to thank you for that informationabout publishing I will look 👀 into it.

jimeka profile image
jimeka in reply toagapepilgrim

agapepilgrim Be bold, be strong, because the Lord your God is with you.

agapepilgrim profile image
agapepilgrim in reply tojimeka

jimeka 🙏😁❤️

erash profile image
erash

agapepilgrim 👍

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

agapepilgrim awesome! And so true!😄😩 Feel better soon!😊

J 🌠🎃

mrsmike profile image
mrsmike

Wow!

ssdw1958 profile image
ssdw1958

You said it all that’s what I think that’s what I do and now I know we all think like that I to praise God but I to asking why why!

agapepilgrim profile image
agapepilgrim in reply tossdw1958

ssdw1958 one of my favorite songs”we’ll understand it better by and by”, God give us all strength to keep going and peace to endure and faith to cling to Him

ssdw1958 profile image
ssdw1958 in reply toagapepilgrim

agrapepilgrim

I do believe in the Lord it is good to know that he is always there even when you have a question he will always be there. Thanks

Brindisi1 profile image
Brindisi1

Amen! Great poem

agapepilgrim profile image
agapepilgrim in reply toBrindisi1

Brindisi1 thanks! Born of experience like us all

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