My symptoms and solution attempts for... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,469 members66,515 posts

My symptoms and solution attempts for fibromyalgia

Saraia profile image
4 Replies

Hey there. I’ve had fibromyalgia for over 10 years now and a lot of other problems came with.

So, I want to try to keep this brief and beneficial, so…wish me luck… hope this helps…

symptoms

Please note, my memory isn’t the best, and everything is connected, so I might miss some symptoms out by accident:

Lethargy (too tired)

Multi-site pain; continuous

Sharp shooting pains anywhere, running through my body

Muscle ache

Chronic pain

Headaches

Other conditions I endure:

Hypothyroidism

IBS

Vitamin D deficiency

Migraines

Twisted spine

On and off anaemia

Being now diagnosed with diabetes

Severe Milk and Gluten intolerance

Constipation/ Diarrhoea

Solution attempts:

Someone here suggested they were going to try, gut friendly bacteria via probiotics. (Apologies, my original reaction was a worried one, concerned with the gut biome being changed, as we aren’t adding all the good bacteria by doing this) … so, I decided to try it, through tablets, but tried to also have it naturally, through sauerkraut (as I’m severely intolerant to milk) and supplements my diet with fibre, as good bacteria feed on fibre, and reduce sugar intake, as bad bacteria thrive on sugar.

I increased my fibre via fruits, frozen veges (yes, I’m too tired and in pain to not be lazy, and if I do get energy, I want to spend it on beneficial things that make me happy and not be worried about my health 24/7, so forgive my laziness. I also can’t stand for more than 30 mins without my stomach becoming in agony. So…. Cooking isn’t easy, and I through the stool out after the hot oil spitting on me etc. …anyway… let me continue back on point…

I had eggs for breakfast with GF (gluten free) toast or and oat based cereal with Almond milk.

I had oats and banana smoothies for the day, (sweetened by dates and a smidge of honey, or I added a packet of isapghol husk, orange flavour - you can get isapghula husk (extra fibre) from Pakistani/ Indian stores, but it’s not the sweeter version the doctors give). As these foods release energy slowly throughout the day, I hear.

Sugar give me headaches, flares up my sharp pains and increases sugar cravings and lethargy, so I either cut the sugar out (which helped a tonne) or when I caved a sweet thing once a day, at the same time, (because my body naturally craved sugar at that time as it had produced insulin which gave me a sugar craving), but I don’t buy sweet things often to prevent me from caving.

I have multivitamins, and bought tonic water (works on my night time restless legs and cramps), and magnesium (I take a dose once a day whenever I feel a sharp pain flare up is about to hit, or after it hits). The effect isn’t immediate, but i don’t have the pains often now and I haven’t had sharp pains that are severe, for a while.

I got rid of the main stress causers in my life. (Let’s not go into that). And accepted that my conditions are part of me and it’s ok not to be normal. …there is no such thing as normal… which means everything and everyone is normal…. Ta daaaaaaa. It’s all good. Acceptance means I can manage things, means I’m calmer, and better :)

I worked on decluttering my house and focused on my job which is one where I help others, hence, automatically rewarding even without a thank you. :) I pray too, and it is spiritually cleansing and calming.

And when I do my stretching exercises I’m not overwhelmed like I would be if I did ‘normal’ exercise and the cricks in my back lose their extremity of painfulness.

Sorry, I don’t have a list of all my sources of information and this is in no way medical advice, just what helped me. Also, no one keeps a bibliography over 10 years, …do they?!

If you try anything I did, and it helps, please comment, to encourage others. And if anything didn’t work, or worsened, to warn others! If you don’t overdo anything, you shouldn’t be harmed. Remember, everything in moderation, and you will be ok. Insha’Allah.

Sorry if I missed anything out. …but hey… it will mean I write another (hopefully beneficial) post!

You are all in my prayers

:)

Written by
Saraia profile image
Saraia
To view profiles and participate in discussions please or .
Read more about...
4 Replies
Debsdelight72 profile image
Debsdelight72

🙂 It means others can try if they wish to see if things work for them too,

So thank you Saraia For sharing

Take care Debs

Saraia profile image
Saraia in reply to Debsdelight72

Yes, I hope it helps

KimiJay profile image
KimiJay

Sounds like you are doing great, Saraia ... I also have cramps sometimes and used to take tonic water which didn't always work that well. Probably having magnesium with the quinine in that is a small enough amount may be fairly ok but if you are given Quinine tablets for cramps ever, best to lay off taking magnesium during the same day.. They react negatively... I found out the hard way! Can google about it.

I am trialling 'Methylene Blue' since about five days now. 5 drops in water and I sometimes add coconut water to give it a taste. It is a dye, so it can stain in an interesting way - but there seems to be positive reports about it because of the way it acts to raise oxygen in the body and can kill pathogens and toxins in the body too. While taking it every morning I have been managing to do massive dust cleaning and tidying in our house for all those days after the decorators finished their work and am not feeling the usual exhaustion. Worth giving the stuff a google anyway. ... I am looking forward to a time when this site posts details of more studies on this well known and used 19th century substance.

Thanks for your post. I can't grasp all the different aspects of/about magnesium at all. When I finish my massive, ongoing decluttering maybe my mind will be clear enough to do so! Meanwhile, I too am quite definitely getting help from an inner spiritual source for that process because I had absolutely no idea how I was going to tackle it, and find my fogbrain getting fed with great spontaneous ideas about what to do next. ... Have a good healing week!

Saraia profile image
Saraia in reply to KimiJay

Yeah, I like coconut, water too. I sometimes add Ribena to make it more palatable. Thank you for your advice. It is much appreciated

You may also like...

symptoms of fibromyalgia

its low, obviously I do but it can be quite painful, do other people suffer this way when they sit...

Is this related to my Fibromyalgia?

fibro I thought I would try to be more involved with this site as well. Sadly things aren't going...

Is this a symptom of fibromyalgia

even slightly I feel dizzy and lightheaded and when I’m walking I can suddenly loose balance and...

Fibromyalgia symptoms

time!! For some time now, all my joints ache I have pain in my elbow joint today, have stiffness,...

Fibromyalgia Symptoms?

Fibromyalgia in 2017 when I was experiencing wide spread pain. Was on Pregabalin 300mg twice a day...