Fibromyalgia pain

[lovemycatandbooks]

My pain just never seems to go away something always hurts and completely exhausted but I'm so fed up already trying to explain things to people even my own family just roll their eyes I'm sure some of them think I'm making it up so I don't say anything now only my husband and son 32 and autistic try to help. I have spoken to the doctor about the problems and all he keeps saying is think positive well i don't feel positive and I'm just getting more and more annoyed. Sorry i just needed to rant a bit take care everyone 💖

[whatsername11]

I feel you, I feel the exact same x

[lovemycatandbooks in reply to whatsername11]

It's not good but sometimes just a quick rant can help 🙂

[PinkMarshmallow]

Hi.I know how you feel....because I am always in a great deal of pain. There never seems to be any let up.

People just don't understand or realise the extent of pain we are in.

We may look OK on the outside but inside we are really struggling.

I was diagnosed a number of years ago but the GP I saw 2 weeks ago, told me he thought it was phycological. So in other words I'm imagining it all! This is what we have to contend with & the GPs need to be educated more about Fibromyalgia !

We don't deserve to be spoken to in this way & I myself, know this pain I have, is not Physchological....it is very real!

[Fibro1966 in reply to PinkMarshmallow]

Fibromyalgia is real 100% and is not a Physchological Or mental health issue etc.Fibromyalgia attacks the central nervous system of the body.

Drs have not a clue to be honest on fibromyalgia or what is does to a individual.

The pain and conditions are real so never lose sight of this.

Kindest Regards

[deejames in reply to PinkMarshmallow]

There is definitely a mind body connection between fibromyalgia and other conditions such as chronic pain, IBS etc. That does not mean it they are imagined. Ways to relieve the symptoms can be physical or through mind activities such as meditation and positive thinking.

[Cat00]

Someone wrote a post title on here the other day saying that if she doesn't complain they think she's well, that's so true I find. Either way it's hard to be believed.

[Hidden]

I understand, it is exhausting. I don’t know the answer but am sending love to you x

[Loobielu]

I also feel you, understand you and don't know the answer! It's almost like I wrote your post myself! 😫. Where else can we rant in such a safe space as here hey. Fibro can be so blooming lonely. Sending gentle fibro hugs to a fellow fibro warrior, fighting hard to just get through another day x

[Shooby]

Awe sweetheart I'm with you on your family and Dr. Struggle usually I get " what have YOU done to be tired and if I say this or that is sore my hubby and my kids who are grown adults all just look at me like an alien. I just don't say anything to anyone, but you are correct when you say a rant is good and there is always someone to listen on here. Gentle hugs x

[Matrix]

I understand how you feel ,it’s hard but you have to accept it’s not going away unless you get a miracle .When I was at my worst when my 3 children were little I was desperate with pain and eventually when I realised it’s never going away and accepted that fact !well I moved on and got a hobby and it helped .Now I’m telling you it’s not easy and just the other night I was in so much pain I was crying with it.Im sick of my pain and tiredness affecting my life but what can we do ,we plough on .I hope you can get some peace with it I know distracton really helps me .Best regards ,Matrix .🥰🥰

[Kodisnan]

I understand your pain. I’m same my kids just say give it a rest mum you always in pain what’s up with you I tell them a they just roll there eyes. Some days I can’t even get out of bed they call me lazy. I’ve told them to look fibromyalgia up but they don’t listen

[lovemycatandbooks]

Thankyou for all your support although it's a horrible thing it helps to know we are not alone in this sending you all lots of air hugs take care ❤

[Debsdelight72]

Rant away! I do believe that having a rant , No matter how long, Gets whatever off your chest and somehow helps to realise your worries and a lot of the Fibroites have been through or worries are similar they can relate to your rant,

[Shubertrachel]

Hello!

I am sorry that it seems like you are not being heard! We understand what you are going through! I have ADHD OCD and an anxiety disorder. It’s not a good combo with Fibro!

Pain can be triggered by a lot of different factors. Unfortunately, anxiety can be one. But at the same time, pain causes anxiety! So it can be either way.

If you feel like you need to up your medication or start something new - don’t be afraid to ask!

With my combo of anxiety and pain, my rheumatologist recommended Gabapentin. It’s used for not only anxiety, but nerve pain as well!

[Krissy39]

Yes Fibromyalgia is a right so and so and so but positive thought can help to distract. My husband and I both have fibromyalgia. Mornings can be a real challenge to get going. I’ve had it for years and went through so many drugs that it was a wonder I didn’t rattle. Even as I’m writing this my neck, shoulders and back are hurting. I’ve been through the pain clinic in the past and even tai chi. I found tgat more stressful actually. I suffer from osteoporosis and recovering from another compression fracture in my thoracic spine. I play the piano which I find lovely ‘therapy’ but can’t play for long now before the pain in my dpine radiates under my shoulder blades around to my chest. I just have to go and rest and take a couple of painkillers.

Everyone is different though struggling with fibro and sometimes one has to find what helps. Doctors tend to be at a loss with fibro and can only try medication to help. I even tried morphine and tge side effects were worse and made me feel dopey so stopped that. I find for myself is to take each day as it comes and pace myself. I use to be so active when younger too so it’s very frustrating. I’m never free of pain and my compression fractures have affected me in other ways as well as extra pain.