Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

59,469 members • 66,515 posts

All posts for June 2022

New health condition

Hello everyone. Could someone help me with my query please. I have applied for pip and unfortunately got 6 points, so I Mandatory appealed against it and now...

Hello everyone. Could someone help me with my query please. I have applied for ...

Beanheadswife

•2 years ago

12 Replies

Buprenorphine Patch and Gabapentin

I have suffered with fibromyalgia for many years and the pain ha got worse over the years. A new GP at my medical practice who I managed to see has prescribed...

I have suffered with fibromyalgia for many years and the pain ha got worse over ...

Dianne2008

•2 years ago

17 Replies

Fibromyalgia muscle pain

Have anyone had problems with they calf's first time today, I went to get out of bed and was in agony with my calf's and had a job to walk.

Have anyone had problems with they calf's first time today, I went to get out of...

saraht90

•2 years ago

9 Replies

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uc50 form, my answers are too long for the box

hi guys i hope you’re doing well. so i’ve drafted some of my answers in my notes before i pasted it into the form, & now that i have, my answers are too long &...

hi guys i hope you’re doing well. so i’ve drafted some of my answers in my notes...

lunabambi

•2 years ago

2 Replies

Lipomas

Good morning everyone, interested to ask if, like me, any fellow fibro sufferers have lipomas? There is a condition called Dercums disease which (according to...

Good morning everyone, interested to ask if, like me, any fellow fibro sufferers...

September17

•2 years ago

15 Replies

Worst flare up

I’ve been in a flare up for just over two weeks now (this is my longest one since diagnosis) and I thought I was getting better, however today I did a walk and...

I’ve been in a flare up for just over two weeks now (this is my longest one sinc...

Gypsy17

•2 years ago

6 Replies

Fatugie

Hi all i am. Getting black marks under the eyes is this part of been Fatugie as i do sleep good at night

Hi all i am. Getting black marks under the eyes is this part of been Fatugie as ...

rossmack05

•2 years ago

16 Replies

Brain fog part 2

Hi all. Thank you so much for sharing your stories, please keep them coming in. (Well once you remember one! Lol and I will do the same and share mine, I know...

Hi all. Thank you so much for sharing your stories, please keep them coming in. ...

Fibrofog

•2 years ago

1 Reply

Sleep difficulties

Hi, I was diagnosed with Rheumatoid Arthritis in 1983 and secondary fibromyalgia about 15 years later. I was taking Amitriptyline - 30mgs - 100 mgs. However GP...

Hi, I was diagnosed with Rheumatoid Arthritis in 1983 and secondary fibromyalgia...

fibropatient

•2 years ago

16 Replies

Sleep and fibromyalgia

Hi, I am a fibromyalgia sufferer. For years I took various amounts of amitriptyline from 10mgs to 100mgs. The later working brilliantly until my GP insisted...

Hi, I am a fibromyalgia sufferer. For years I took various amounts of amitriptyl...

fibropatient

•2 years ago

6 Replies

Motivation!!!

I am really struggling with getting motivated these days I'll go to bed with ideas for following day but when the day comes everything goes out the window it...

I am really struggling with getting motivated these days I'll go to bed with ide...

alison61

•2 years ago

12 Replies

I can feel that old fybro feeling again, in 2020 in full isolation from Covid, lack of mobility, developed fybromyalgia [undiagnosed]?

I was never able to be fully diagnosed as I am vulnerably disabled, then lo and behold, I developed a colourful reaction to AZ vaccine,in 2021 which reacted to...

I was never able to be fully diagnosed as I am vulnerably disabled, then lo and ...

Adlon57

•2 years ago

8 Replies

Is this another symptom of fibro ?

I’m looking some advice, the strangest thing started to happen to me, I felt like someone had their full weight on my shoulders pushing me down. I couldn’t...

I’m looking some advice, the strangest thing started to happen to me, I felt lik...

Hamer5

•2 years ago

11 Replies

Lol

I was just getting myself a drink of squash, went off in a bit of a day dream, came to my senses and realised I was still pouring squash in mu bottle! 🙃

I was just getting myself a drink of squash, went off in a bit of a day dream, c...

Fibrofog

•2 years ago

4 Replies

New symptoms after 18uears of fibro

Hi everybody I don't post alot but do read everybody's comments it makes me feel better knowing I'm not alone in this terrible fibro illness, recently I've...

Hi everybody I don't post alot but do read everybody's comments it makes me feel...

Masil

•2 years ago

5 Replies

Face pain

Hi everyone iv started getting the worst pain ever and the doctor thinks it could be trigeminal neuralgia when I researched it a lot of peoplewith fibro get...

Hi everyone iv started getting the worst pain ever and the doctor thinks it coul...

suewood59

•2 years ago

19 Replies

anger, fear, mind study - fibromyalgia

https://youtu.be/1nP5oedmzkM Brain imaging - how our brain responds to things, relationships, pain, stress etc, are I feel fundamental to understanding the...

https://youtu.be/1nP5oedmzkM Brain imaging - how our brain responds to things, r...

does-the-NHS-work

•2 years ago

4 Replies

Passing fibromyalgia on to my children

Hi everyone I have had fibromyalgia for over 10 years I’m now seeing my children being diagnosed with the same condition which is really worrying me 3 of my...

Hi everyone I have had fibromyalgia for over 10 years I’m now seeing my children...

Tinkerbell1969

•2 years ago

8 Replies

Brain fog

I was surprised at the response my last brain fog post got. Which got me thinking. What is the funniest/most frustrating thing that has happened to you because...

I was surprised at the response my last brain fog post got. Which got me thinkin...

Fibrofog

•2 years ago

46 Replies

help on filling in uc50 with fibromyalgia

hi everyone i hope you’re doing well, i’ve never had benefits before & this is all so new to me, i was sent the uc50 2 weeks ago & have barely started it as...

hi everyone i hope you’re doing well, i’ve never had benefits before & this is a...

lunabambi

•2 years ago

14 Replies

HRT for fibro? Anyone got experience?

I have severe Fibro and have been bed bound for months with that and covid effects. My GP has suggested HRT - I had a hysterectomy in 2004 so well through the...

I have severe Fibro and have been bed bound for months with that and covid effec...

Butterflybeauty

•2 years ago

7 Replies

Struggling

I'm sorry to say but I'm really struggling to day to hold on, I feel so tired today. I'm trying my up most best to stay strong but I don't know how much longer...

I'm sorry to say but I'm really struggling to day to hold on, I feel so tired to...

Fibrofog

•2 years ago

42 Replies

Don’t know where to turn

Hi all , I have given up a job of 22 years and been in my new care job for 3 months. I’m supposed to work 7-3 however they let me work 7-1. Now I’m doing 7-11...

Hi all , I have given up a job of 22 years and been in my new care job for 3 mon...

55hopefull

•2 years ago

4 Replies

Zipline for FMA UK

Would you or someone you know like to join us on a thrilling zipline challenge above the River Clyde in Glasgow on the 17th of September 2022? Could you launch...

Would you or someone you know like to join us on a thrilling zipline challenge a...

Lynda_FMA_UK

Moderator•2 years ago

1 Reply

Widespread pain index/Severity symp score

Can anyone share/explain their widespread pain index score and symptom severity score i finally recieved my diagnosis report and would like to gage where im at...

Can anyone share/explain their widespread pain index score and symptom severity ...

TeeRee2

•2 years ago

8 Replies

Brain fog

I was literally just about to do something, got distracted, and now can't remember what I was going to do!!!!!!

I was literally just about to do something, got distracted, and now can't remem...

Fibrofog

•2 years ago

42 Replies

Divitculitis

Hi there I wonder if anyone has any information or any ideas how to cope with divitculitis flare ups??

Hi there I wonder if anyone has any information or any ideas how to cope with d...

amozan

•2 years ago

5 Replies

Esa assessment

Morning everyone first let me say a big thank you with regards to my twitching question, I am waiting to see Dr they have booked a chest x-ray. My question...

Morning everyone first let me say a big thank you with regards to my twitching q...

Mowgli2121

•2 years ago

1 Reply

Sorry

Sorry guys that I've been moaning a lot lately. And also though, thank you all for you kind words. It means a lot xx

Sorry guys that I've been moaning a lot lately. And also though, thank you all f...

Fibrofog

•2 years ago

10 Replies

Flare ups

Morning all, I’m suffering with yet another flare up after only just getting over one which lasted 4 weeks. It starts with my body ceasing up, so much so that...

Morning all, I’m suffering with yet another flare up after only just getting ove...

Blun01

•2 years ago

15 Replies

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

All posts for June 2022

New health condition

Buprenorphine Patch and Gabapentin

Fibromyalgia muscle pain

uc50 form, my answers are too long for the box

Lipomas

Worst flare up

Fatugie

Brain fog part 2

Sleep difficulties

Sleep and fibromyalgia

Motivation!!!

I can feel that old fybro feeling again, in 2020 in full isolation from Covid, lack of mobility, developed fybromyalgia [undiagnosed]?

Is this another symptom of fibro ?

Lol

New symptoms after 18uears of fibro

Face pain

anger, fear, mind study - fibromyalgia

Passing fibromyalgia on to my children

Brain fog

help on filling in uc50 with fibromyalgia

HRT for fibro? Anyone got experience?

Struggling

Don’t know where to turn

Zipline for FMA UK

Widespread pain index/Severity symp score

Brain fog

Divitculitis

Esa assessment

Sorry

Flare ups

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