Struggling : I'm sorry to say but I'm... - Fibromyalgia Acti...

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Struggling

Fibrofog profile image
42 Replies

I'm sorry to say but I'm really struggling to day to hold on, I feel so tired today. I'm trying my up most best to stay strong but I don't know how much longer I can hold on.

I have so wanted to tell someone this, but I've felt too scared to do it. But I feel safe on this group and I know you can relate x

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Fibrofog profile image
Fibrofog
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42 Replies

It is not a nice trait to have 🥲

Golfer15 profile image
Golfer15

Hi Honeydebra, I can totally relate to this, life is so difficult with fibromyalgia. I spoke to a doctor on the phone this morning (they only do phone cosnultations). I said how difficult I'm finding everything such as fatigue, sweating, dizziness, overactive bladder and basically she said there is nothing she can do to help. She suggested reducing some of my meds. as there might be some side effects. I was referred to the urology team but I felt like I was just fobbed off. I dont know what to do next. Sorry I cant help other than empathise. X

Fibrofog profile image
Fibrofog in reply toGolfer15

No need to say sorry. I'm sorry for you, thinking if you x

Golfer15 profile image
Golfer15 in reply toFibrofog

Thanks for the reply. I often say sorry for everything x

Fibrofog profile image
Fibrofog in reply toGolfer15

Me too, to be honest x

Golfer15 profile image
Golfer15 in reply toFibrofog

Its a stupid thing to do, but I often feel like Im a burden. x

Fibrofog profile image
Fibrofog in reply toGolfer15

Same here I've got no choice but lean on my friends. I live bu myself and it gets pretty lonely x

Golfer15 profile image
Golfer15 in reply toFibrofog

Im married but dont work. I find it difficult that I dont contribute to the household income. My wife works four days. I dont even have energy to do many jobs at home. x

Fibrofog profile image
Fibrofog in reply toGolfer15

Bless you, I feel for you x

Elaine200756 profile image
Elaine200756 in reply toGolfer15

Aww bless you. Such a struggle when we can no longer do the things we used to do. I watched the BBC documentary, Living With Chronic Pain. There was a lady who said "Today I got up, got a shower and washed my hair #Winning!"

I found that so inspiring. Its a new way of looking at achieving. I use it to measure my own achievements in the day. It helps with the guilt and feelings of not doing enough, when you actually can't do anymore. Take care, hugs 🤗

Elaine200756 profile image
Elaine200756 in reply toFibrofog

Me too!

Elaine200756 profile image
Elaine200756 in reply toGolfer15

Thank you for sharing. You are absolutely not alone and its a safe place to share our difficult feelings. Big hugs 🤗

Patdoyle profile image
Patdoyle in reply toGolfer15

You sound very like me. Getting nowhere with doctors and same symptoms. The overactive bladder is a new one for me. I keep developing new symptoms. Don’t think my GP knows what todo with me.

Elaine200756 profile image
Elaine200756

Hi HONEYDEBRA, I'm finding it hard today too. It's hot here and I'm sure it's affecting me. Take care 🤗

Fibrofog profile image
Fibrofog in reply toElaine200756

Oh bless you. I haven't gone outside today, haven't the energy anyway.

Elaine200756 profile image
Elaine200756

Bless you too xx

Cakeygirl profile image
Cakeygirl

I know exactly how you all feel. I feel so week that I can hardly walk. Feel as if I am a burden as don’t even have energy to do anything indoors. Hubby is so good and never complains which makes me feel so guilty. Feel so useless. Been retired for some years but can’t go anywhere and feel as if I am holding him back. It does help to know that I am not alone as you begin to think that you have a terminal illness and then you pop on here and realise I am not alone.

Patdoyle profile image
Patdoyle in reply toCakeygirl

Yes I know how you feel. I feel so useless and find it very hard to stay positive every day especially when the chores are mounting up. Very hard

Lakehouse5830 profile image
Lakehouse5830

Never be or say sorry 😞 it’s the blur day’s it will pass never give up tomorrow could be better stay positive I know it’s hard read the other stories on here and do what I do see if I can help with any feedback it all ways take’s me outside myself and by being positive for someone else makes me feel positive about what’s going on in my life it makes me think how can I change thing’s for me if I can help with process of untangling the thoughts of other people we all no matter wherever we go live inside our minds and letting ourselves say out loud or to others I am struggling means you will go on you will fight for your self you will and have been strong if you need to seep don’t tell your self off tell your self you are in tune with your body’s needs Me and my sister have a saying if you see a comfy sofa or your bed looks good it’s rude not to just have a little nap we always call them power naps even the top bods do it in the back benches of the commons so whatever is good for them it’s good for use 😅 so don’t think of it a struggling think of it as a need just the same way you need air to breathe foods to eat water to drink sleep to dream,dreaming is good for the sole so sleep and dream x

Elaine200756 profile image
Elaine200756 in reply toLakehouse5830

🤣🤣

Lakehouse5830 profile image
Lakehouse5830 in reply toElaine200756

See made you smile today x

Fibrofog profile image
Fibrofog in reply toLakehouse5830

I've also now got a very painful right hand which is bandaged up! Lol xx

Lakehouse5830 profile image
Lakehouse5830 in reply toFibrofog

☺️ my feet oh my hot feet thay are a bit ouch 😣 😂

Elaine200756 profile image
Elaine200756 in reply toFibrofog

Hugs xx

Elaine200756 profile image
Elaine200756 in reply toLakehouse5830

You really did, it was good to laugh, so much appreciated. Love a sense of humour Lake house xx

Lakehouse5830 profile image
Lakehouse5830 in reply toElaine200756

Just woken up see was tired been in and out the garden very hot here so had to weed in small amounts so I was knackered really pooped so went to bed 🤣 now fresh like the daisies on the grass chocolate biscuit cup of tea and waiting for the sun to move and I can weed a bit more nice dream I was an MP in the House of Commons having a power nap and raging war on how soft a cushion should be and a bill on making seisters the law any time of day 🤣🤣

Elaine200756 profile image
Elaine200756 in reply toLakehouse5830

Lol 😂😂💕

Dressy profile image
Dressy

HONEYDEBRA It is so good to be able to explain how you feel on here where everyone understands. I think we all can say we have days like that! I definitely do! The other day I didn’t have the strength to lift my head of the pillow, and just felt like crying because of the pain and felt hopeless with no energy. But today I do feel better, so just try and stay positive and hope that some relief will come. I really love this quote by Jack Ma‘Never give up

Today is hard, tomorrow will be harder, but the day after tomorrow will be sunshine’

Xx

Elaine200756 profile image
Elaine200756 in reply toDressy

Glad to hear you're doing better Dressy 🤗✨

Dressy profile image
Dressy in reply toElaine200756

I was trying to reduce my tramadol dose but at the minute I think it is impossible!! So I’m back on max dose, I try and take a day at a time, todays is good, but I might not be able to get out of bed tomorrow, so just enjoying the moment! it is so unpredictable isn’t it!!

Fibrofog profile image
Fibrofog in reply toDressy

It sure is! Xx

Elaine200756 profile image
Elaine200756 in reply toDressy

It is Dressy and I completely get how changeable our pain levels etc are. Take care. I think you have a great way to deal with it, take one day at a time xx

DazzleP profile image
DazzleP

Hi HoneyDebra I was told that when I feel like that I should just go with the flow. If you feel really tired, don't do much or pace yourself. Tomorrow is another day and you may feel different.

Elaine200756 profile image
Elaine200756

I totally relate and you've done the right thing to open up and share just how desperate you feel. Just remember, you are not alone. You are surrounded with loving friends here. I bet so many people here can also relate and understand. Sending you love and hugs 🤗

saj01 profile image
saj01

Hi there... how's things today? I'm on my own too, so I can empathise with you. Look on the bright side... at least you do have friends and people here understand how you are feeling. Most days for me start with tears.. you can guess the rest. ... how come I get 1 good day when I feel almost normal ( maybe that's exaggerating) and the rest are pants? There has to be an answer. Hang on in there. xx

Elaine200756 profile image
Elaine200756 in reply tosaj01

Hang on too saj, so sad to hear that you begin your day's with tears. I've just posted a peom for warriors like yourself. It's called "Hold On". I hope it helps. Love and hugs 🤗

saj01 profile image
saj01 in reply toElaine200756

Hi Elaine... thank you for your kind thought... much appreciated. x

Elaine200756 profile image
Elaine200756 in reply tosaj01

You're so welcome saj, we're here for each other. So many people have no idea of what we go through and here we have a place where we can understand and be understood 🤗

Fibrofog profile image
Fibrofog in reply toElaine200756

And it's sp nice to be finally understood xx

Elaine200756 profile image
Elaine200756 in reply toFibrofog

Good, And you really are HONEYDEBRA. Take care of yourself xx 💕✨

Piddlysmam profile image
Piddlysmam

Bless you. Sometimes it gets really hard doesn't it 😕 I think most of us feel like this at times, I know I do. Have a good cry if you feel like it, it always makes me feel a bit better. Be kind to yourself. You are not alone and we all care about you. 🤗❤

cantthinknow044 profile image
cantthinknow044

I'm sorry to hear that you're having a bad time.

I can ralate to you. The group is good here. Today (Saturday) it another day. Ive had fibromyalgia for many years..

You look after yourself.

Your not alone

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