I'm sorry to say but I'm really struggling to day to hold on, I feel so tired today. I'm trying my up most best to stay strong but I don't know how much longer I can hold on.
I have so wanted to tell someone this, but I've felt too scared to do it. But I feel safe on this group and I know you can relate x
It is not a nice trait to have 🥲
Hi Honeydebra, I can totally relate to this, life is so difficult with fibromyalgia. I spoke to a doctor on the phone this morning (they only do phone cosnultations). I said how difficult I'm finding everything such as fatigue, sweating, dizziness, overactive bladder and basically she said there is nothing she can do to help. She suggested reducing some of my meds. as there might be some side effects. I was referred to the urology team but I felt like I was just fobbed off. I dont know what to do next. Sorry I cant help other than empathise. X
No need to say sorry. I'm sorry for you, thinking if you x
Thanks for the reply. I often say sorry for everything x
Me too, to be honest x
Its a stupid thing to do, but I often feel like Im a burden. x
Same here I've got no choice but lean on my friends. I live bu myself and it gets pretty lonely x
Im married but dont work. I find it difficult that I dont contribute to the household income. My wife works four days. I dont even have energy to do many jobs at home. x
Aww bless you. Such a struggle when we can no longer do the things we used to do. I watched the BBC documentary, Living With Chronic Pain. There was a lady who said "Today I got up, got a shower and washed my hair #Winning!"
I found that so inspiring. Its a new way of looking at achieving. I use it to measure my own achievements in the day. It helps with the guilt and feelings of not doing enough, when you actually can't do anymore. Take care, hugs 🤗
Me too!
Thank you for sharing. You are absolutely not alone and its a safe place to share our difficult feelings. Big hugs 🤗
Hi HONEYDEBRA, I'm finding it hard today too. It's hot here and I'm sure it's affecting me. Take care 🤗
Oh bless you. I haven't gone outside today, haven't the energy anyway.
Bless you too xx
I know exactly how you all feel. I feel so week that I can hardly walk. Feel as if I am a burden as don’t even have energy to do anything indoors. Hubby is so good and never complains which makes me feel so guilty. Feel so useless. Been retired for some years but can’t go anywhere and feel as if I am holding him back. It does help to know that I am not alone as you begin to think that you have a terminal illness and then you pop on here and realise I am not alone.
Never be or say sorry 😞 it’s the blur day’s it will pass never give up tomorrow could be better stay positive I know it’s hard read the other stories on here and do what I do see if I can help with any feedback it all ways take’s me outside myself and by being positive for someone else makes me feel positive about what’s going on in my life it makes me think how can I change thing’s for me if I can help with process of untangling the thoughts of other people we all no matter wherever we go live inside our minds and letting ourselves say out loud or to others I am struggling means you will go on you will fight for your self you will and have been strong if you need to seep don’t tell your self off tell your self you are in tune with your body’s needs Me and my sister have a saying if you see a comfy sofa or your bed looks good it’s rude not to just have a little nap we always call them power naps even the top bods do it in the back benches of the commons so whatever is good for them it’s good for use 😅 so don’t think of it a struggling think of it as a need just the same way you need air to breathe foods to eat water to drink sleep to dream,dreaming is good for the sole so sleep and dream x
🤣🤣
See made you smile today x
I've also now got a very painful right hand which is bandaged up! Lol xx
☺️ my feet oh my hot feet thay are a bit ouch 😣 😂
Hugs xx
You really did, it was good to laugh, so much appreciated. Love a sense of humour Lake house xx
Just woken up see was tired been in and out the garden very hot here so had to weed in small amounts so I was knackered really pooped so went to bed 🤣 now fresh like the daisies on the grass chocolate biscuit cup of tea and waiting for the sun to move and I can weed a bit more nice dream I was an MP in the House of Commons having a power nap and raging war on how soft a cushion should be and a bill on making seisters the law any time of day 🤣🤣
Lol 😂😂💕
HONEYDEBRA It is so good to be able to explain how you feel on here where everyone understands. I think we all can say we have days like that! I definitely do! The other day I didn’t have the strength to lift my head of the pillow, and just felt like crying because of the pain and felt hopeless with no energy. But today I do feel better, so just try and stay positive and hope that some relief will come. I really love this quote by Jack Ma‘Never give up
Today is hard, tomorrow will be harder, but the day after tomorrow will be sunshine’
Xx
Glad to hear you're doing better Dressy 🤗✨
I was trying to reduce my tramadol dose but at the minute I think it is impossible!! So I’m back on max dose, I try and take a day at a time, todays is good, but I might not be able to get out of bed tomorrow, so just enjoying the moment! it is so unpredictable isn’t it!!
It is Dressy and I completely get how changeable our pain levels etc are. Take care. I think you have a great way to deal with it, take one day at a time xx
Hi HoneyDebra I was told that when I feel like that I should just go with the flow. If you feel really tired, don't do much or pace yourself. Tomorrow is another day and you may feel different.
I totally relate and you've done the right thing to open up and share just how desperate you feel. Just remember, you are not alone. You are surrounded with loving friends here. I bet so many people here can also relate and understand. Sending you love and hugs 🤗
Hi there... how's things today? I'm on my own too, so I can empathise with you. Look on the bright side... at least you do have friends and people here understand how you are feeling. Most days for me start with tears.. you can guess the rest. ... how come I get 1 good day when I feel almost normal ( maybe that's exaggerating) and the rest are pants? There has to be an answer. Hang on in there. xx
Hang on too saj, so sad to hear that you begin your day's with tears. I've just posted a peom for warriors like yourself. It's called "Hold On". I hope it helps. Love and hugs 🤗
Hi Elaine... thank you for your kind thought... much appreciated. x
You're so welcome saj, we're here for each other. So many people have no idea of what we go through and here we have a place where we can understand and be understood 🤗
And it's sp nice to be finally understood xx
Good, And you really are HONEYDEBRA. Take care of yourself xx 💕✨
Bless you. Sometimes it gets really hard doesn't it 😕 I think most of us feel like this at times, I know I do. Have a good cry if you feel like it, it always makes me feel a bit better. Be kind to yourself. You are not alone and we all care about you. 🤗❤
I'm sorry to hear that you're having a bad time.
I can ralate to you. The group is good here. Today (Saturday) it another day. Ive had fibromyalgia for many years..
You look after yourself.
Your not alone
I'm struggling. 
Struggling with Fatigue
Struggling....
Struggling to keep up
Help
