Passing fibromyalgia on to my children

[Tinkerbell1969]

Hi everyone I have had fibromyalgia for over 10 years I’m now seeing my children being diagnosed with the same condition which is really worrying me 3 of my girls have been diagnosed within the last 5 years now my son is having really bad nerve pain and muscle pain he is also under the pain clinic and rheumatologist like the rest of us when I was diagnosed I asked about my children could they get it and all the drs said no my body had a trauma now there saying may be it runs in the family there no maybe about it I have passed this on to my children it must be in my genes is there any one else here going through this all I ever wanted was for my kids to be happy and healthy and now I have given them this curse of a condition

[Jacksono]

Hi Tinkerbell

My daughter is turning 18 next month and she has started showing all the signs. Complaining about pain and being so tired all the time. She is doing her a level exams right now and takes caffeine tablets to keep her awake long enough to complete each exam. I was worried I might be seeing signs unnecessarily, but my 15 year old is totally different, so I don't think I'm projecting my fears onto my daughter. I'd be very interested to know if people on here have children who have also been diagnosed.

My eldest seems to be growing up with everything I had at her age. Painful, heavy periods, migraines, dizzy and faint, fatigue, IBS. It's like seeing myself as a teenager.

I'm bipolar also, and my younger daughter has ASD and anxiety and my eldest has anxiety and I'm sure I'm to blame.

[lovelab in reply to Jacksono]

Have you ever had your antibody TPO and TG tested? This would indicate Hashimoto disease and it is hereditary. I've just got my daughter tested and she came up positive. Most of your symptoms match/mommic those of Hashimoto, including bi-polar where recent studies show the possible link with Hashimoto swings. I had to get my daughter's tested privately because the Dr only tested TSH which came back normal. Once he saw she had positive antibody TPO he took her seriously. A path worth investigating maybe.

[Hazel_Angelstar Administrator FMA UK Staff]

Research has pointed to there potentially being a genetic predisposition to fibromyalgia. If someone in the family has fibromyalgia, then you are at a higher risk than someone without anyone in their family

I have fibromyalgia, as does our daughter. My mum has me. Neither of my 2 sisters have fibro although several of my dad's cousins do (all same side of his family). Looks like I was the lucky one to get the genes 😂🤣😂

[Painny]

You took me back to older generation in my family,

My mother had severe fibromyalgia, unbeknown to me I was diagnosed years later not knowing that this was a condition I was carrying all my life.

In some cases it may be hereditary, don’t know, other members have more knowledge

So sorry that your whole family are having the same journey, all the best

[E3178]

My mum had what was called fibrositis I was in pain from the age of 12 so I feel there could be a connection.I understand that fibrositis is now called fibromyalgia. I lost my mum in my early 20s so we didn't have chance to discuss anything. I grew up in pain and accepted it as just being part of me.

I got fed up a few years ago and went to see a rheumatologist privately who diagnosed me with fibro within 10 minutes.

[Elaine200756]

Hi Tinkerbell, this must be devastating for you and my heart goes out to you. Looking back, I think I had chronic fatigue or fibromyalgia as a child 😘

[Midori]

I'm pretty sure my son has the early stirrings of it. He had costochondritis as a child, he also has Hyperextension of joints, and can dislocate his right shoulder easily. He also has gut problems. He's not a fan of the doctor though! I was diagnosed with Fibrositis when my children were young, (before Fibro was a thing). Finally diagnosed with Fibro when I was 60!

Cheers, Midori

[Hidden]

Hi Tinkerbell, I got it from my mother but she never had it as bad as me. I can put up with all the pain, the drama and anything this condition throws at me but the thing that l find debilitating is seeing how it is affecting my son. Fibromyalgia has gone straight for his memory. Forget passing exams! And he is in denial. Can you imagine arthritis as a young boy? Raynaulds, and the like.