Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

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has Amitriptyline ever made your pain worse?

right my fellow Fibro friends, I need some advice! so was taking Baclofen, but came off it as I didn’t see any help…. That week I was given Amitriptyline, we...

right my fellow Fibro friends, I need some advice! so was taking Baclofen, but ...

JoLouise88

•2 hours ago

1 Reply

burning mouth syndrome related to fibromyalgia

I’m just wondering if anyone else has had burning mouth syndrome ? (roof of mouth looks like a bruise but it burns and stings continuously) I have had it for...

I’m just wondering if anyone else has had burning mouth syndrome ? (roof of mou...

Lh1979

•3 hours ago

Be the first to reply

GP letter

Hi, Does anyone know how you go about getting a letter about your diagnosis of fibromyalgia and how it affects you from your gp?

Hi, Does anyone know how you go about getting a letter about your diagnosis of f...

CookieMunch22

•14 hours ago

1 Reply

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What are we supposed to do?

So given our condition is lifelong and incurable it is pointless going to see the GP but DWP apparently now ask in a pointed fashion how many times have you...

So given our condition is lifelong and incurable it is pointless going to see th...

Fibrooh

•20 hours ago

6 Replies

Physiotherapy

Did anyone else find seeing a physiotherapist for the pain a bit useless? I had an appointment with one recently and he pretty much talked over me the whole...

Did anyone else find seeing a physiotherapist for the pain a bit useless? I had...

OmorfaOneira

•2 days ago

12 Replies

help with Memory

can anyone help I’ve had fibro for past 4 years. I work full time and recently my memory is getting really bad. It’s making me feel incompetent and terrible....

can anyone help I’ve had fibro for past 4 years. I work full time and recently m...

Bar123ney

•2 days ago

9 Replies

LIVING WITH FIBROMYALGIA

A cake walk it is not. A walk in the park it is not. A cinch it is not. SO to give you an insight into what it really is like ........ Please do check out...

A cake walk it is not. A walk in the park it is not. A cinch it is not. SO to g...

Anthonyh7

•3 days ago

9 Replies

TD off

Oh Boy! Just when you think it's going well! The people who are doing our wet room have come for little tweaks and more measuring, They are asking for a...

Oh Boy! Just when you think it's going well! The people who are doing our wet ...

Debsdelight3108

•3 days ago

10 Replies

New member intro

Hi thanks for signing me up. I've had fibromyalgia since 2010, currently taking Tramadol but looking to change to something non-opioid. Considering Nefopam as...

Hi thanks for signing me up. I've had fibromyalgia since 2010, currently taking ...

BlueHippopotomus

•3 days ago

12 Replies

Not fit to work "X"

Hi everyone, I’m new here and really need some advice. I’ve been signed off as “Not fit to work” by my doctor since Nov 2024 due to ongoing health issues. On...

Hi everyone, I’m new here and really need some advice. I’ve been signed off as ...

TommyShemik

•4 days ago

16 Replies

Sweating?

Hi, I do have fibromyalgia... although not as bad as some peoples, What I find very difficult is the amount of hot sweats... day in day out. Has anybody...

Hi, I do have fibromyalgia... although not as bad as some peoples, What I find v...

saj01

•5 days ago

12 Replies

Newbie

I’m new to this form and hope for some views. I am under rheumatology for severe reynaulds and digital ulcers. Had ileprost which did not work and now on...

I’m new to this form and hope for some views. I am under rheumatology for severe...

Spook257

•5 days ago

4 Replies

zopiclone

For those who take zopiclone, I have taken it for 15 years and tried coming off very slowly and had awful rebound/side effects. I was advised it’s easy to come...

For those who take zopiclone, I have taken it for 15 years and tried coming off ...

Choccilover

•6 days ago

15 Replies

Liquid morphine

I have Fibro and other problems, but, following a fall in the garden, it was established that as well as Osteoarthritis, I had damaged my knee. Six weeks ago I...

I have Fibro and other problems, but, following a fall in the garden, it was est...

GillieGG

•7 days ago

13 Replies

temperature control

Hi all, How are you doing today? Newbie here! A bit about me. I have systemic sclerosis, connective tissue disease and sclerosis. Hypovitaminosis and...

Hi all, How are you doing today? Newbie here! A bit about me. I have systemic...

peppa

•8 days ago

16 Replies

Naproxen

Good morning, does anyone on here take naproxen daily? And have found it safe to do so, I've been prescribed it for osteoarthritis and after reading about some...

Good morning, does anyone on here take naproxen daily? And have found it safe to...

Princess61

•9 days ago

29 Replies

Dr A on instagram

hi everyone if you are on instagram check out dra he’s a uk GP and often posts articles and info on Fibro. Very interesting

hi everyone if you are on instagram check out dra he’s a uk GP and often posts a...

Madred14

•10 days ago

3 Replies

So sorry

To my Fibro family, I would just like to say how sorry I am For using the 'Poop emoji and the word 🤬 I didn't realise how much "Out of order" These were...

To my Fibro family, I would just like to say how sorry I am For using the 'Poo...

Debsdelight3108

•10 days ago

11 Replies

Stop the 4 Point Rule Petition Welfare Cuts

Hi everyone, I've just become aware of another petition which Charlie Anderson has started.If it reaches 100,000 signatures it gets debated in parliament....

Hi everyone, I've just become aware of another petition which Charlie Anders...

Eclipsemidnight

•11 days ago

Be the first to reply

Dreaded pip review

Hi all. Sorry to repeat anything that might have been answered. Has anyone written "no change" on Thier pip review and actually had it renewed ? I don't know...

Hi all. Sorry to repeat anything that might have been answered. Has anyone writt...

Mrdiagnosis

•11 days ago

9 Replies

Long time since I've been here...Hello one and all.

Just a quick tell of a website that I found which, to me, tells more truth of our problems. See what you think, Take care and still hoping that someone...

Just a quick tell of a website that I found which, to me, tells more truth of ou...

fibrojan

•12 days ago

4 Replies

Cure for spasms

Hi all I know I not been around for a while but now I am struggling to cope. I have chronic pain all over my body and I am going into muscle spasms regularly...

Hi all I know I not been around for a while but now I am struggling to cope. I h...

Africanmonkey

•12 days ago

16 Replies

Hi,Does anyone live in East London/ Essex area?

I had an accident at work a few weeks ago, at work. I fell from a height whilst sitting on a medical stretcher / bed landing on my sacrum. The legs...

I had an accident at work a few weeks ago, at work. I fell from a height whil...

Zari0800

•13 days ago

4 Replies

Does anyone live in the North of Scotland? Do you know what it's like to get a carer in the area ?

Hi I'm Dawn,I'm thinking of moving the North of Scotland nr Wick but I'm heavily dependant on carers currently. Does anyone know if they have a network of...

Hi I'm Dawn,I'm thinking of moving the North of Scotland nr Wick but I'm heavily...

Smilesalot

•14 days ago

8 Replies

welfare cut you help

hi scope need our help to sign petition to get number they need here is link https://campaigns.scope.org.uk/page/165719/petition/1?locale=en-GB 🙏🫶🏻

hi scope need our help to sign petition to get number they need here is link h...

Geeforce99

•15 days ago

2 Replies

March Newsletter highlights

Don't forget to sign up to our news letter: https://newsletter.fmauk.org/signup •App Review: Explore the pros and cons of the Visible App vs. the wearable...

Don't forget to sign up to our news letter: https://newsletter.fmauk.org/signup ...

desquinn

Partner•17 days ago

1 Reply

Travelling Pain 🤔

Hey Fibro ChumsMany many years ago Fibro started in my arms , legs feet and hands. This was for so many years, then it travelled to my Neck, Shoulders and head...

Hey Fibro ChumsMany many years ago Fibro started in my arms , legs feet and hand...

Frenchi88

•17 days ago

14 Replies

Welfare Cuts Scope Campaign

I do not post often but like most people in this community I am concerned by the welfare cuts. I wanted to make everyone aware that Scope has a campaign with...

I do not post often but like most people in this community I am concerned by the...

Eclipsemidnight

•17 days ago

12 Replies

Walk In The Woods.

Hey fybro family, I hope everyone is keeping as well as they can. I went for a lovely walk in the woods yesterday with my dog Ziggy, the spring flowers were...

Hey fybro family, I hope everyone is keeping as well as they can. I went for a ...

Dreamgreen

•18 days ago

5 Replies

FIBROMYALGIA

IT MAKES ME SO AWFUL AND SCARED AND STIFF AND SICK IN TUMMY. GLARE SENSITIVITY, LIGHT NOISE SMELL SENSITIVITY. ACHING ALL OVER CAN FEEL LIKE LIFTING AND MOVING...

IT MAKES ME SO AWFUL AND SCARED AND STIFF AND SICK IN TUMMY. GLARE SENSITIVITY, ...

Praise56

•20 days ago

12 Replies

Write a post or ask a question

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

has Amitriptyline ever made your pain worse?

burning mouth syndrome related to fibromyalgia

GP letter

What are we supposed to do?

Physiotherapy

help with Memory

LIVING WITH FIBROMYALGIA

TD off

New member intro

Not fit to work "X"

Sweating?

Newbie

zopiclone

Liquid morphine

temperature control

Naproxen

Dr A on instagram

So sorry

Stop the 4 Point Rule Petition Welfare Cuts

Dreaded pip review

Long time since I've been here...Hello one and all.

Cure for spasms

Hi,Does anyone live in East London/ Essex area?

Does anyone live in the North of Scotland? Do you know what it's like to get a carer in the area ?

welfare cut you help

March Newsletter highlights

Travelling Pain 🤔

Welfare Cuts Scope Campaign

Walk In The Woods.

FIBROMYALGIA

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