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Endometriosis UK

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I am going to write to my local MP.... could someone help me do this....

Just a quick question. How would I briefly explain what's be happening, where, how I am not feeling listened to, ignored, let down. Could you possibly help me...

Just a quick question. How would I briefly explain what's be happening, where, h...

Teeflyers

•2 hours ago

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womb cancer

I had endometrial cancer, complete hysterectomy I May. I’ve been incontinent since; this isn’t leakage, it floodage! All the pelvic floor exercises in the...

I had endometrial cancer, complete hysterectomy I May. I’ve been incontinent sin...

Crumble62

•2 hours ago

1 Reply

Bleeding for Months Straight

So, I have a diagnosis of PCOS. In 2021 I was told I had deep pelvic endometriosis aswell. Following a recent MRI I had in June, I was told they couldn’t see...

So, I have a diagnosis of PCOS. In 2021 I was told I had deep pelvic endometrios...

ArcticMonkeys

•3 hours ago

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Hoping someone has experienced similar

I was diagnosed with endometriosis following a laparoscopy in 2022. Both adnexa adherent into the POD which was partly obliterated. Rectum also pulled up...

I was diagnosed with endometriosis following a laparoscopy in 2022. Both adnex...

Possibleendo2022

•6 hours ago

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Endo & Adeno Post Op Pain

Hi all, I’m 7 weeks post op and still experiencing all the pain I had before. Endo has been excised from pelvic walls, ligaments and ovary detached from...

Hi all, I’m 7 weeks post op and still experiencing all the pain I had before. ...

Tangoandmax

•12 hours ago

9 Replies

endometrioma / chocolate cyst help

hi there, I am seeing advice and previous experiences on women who have suffered with large (4cm+) chocolate cysts on their ovaries and if anyone r was able...

hi there, I am seeing advice and previous experiences on women who have suffer...

MRBO

•12 hours ago

3 Replies

NHS can’t help. Try mushrooms

hi all, This is my first post. I was surgically diagnosed with endo in 2020 at 39, after 3 years of difficulties to conceive and 13 years of approaching...

hi all, This is my first post. I was surgically diagnosed with endo in 2020 at ...

LRP-Endo

•13 hours ago

2 Replies

Feeling lost

I feel completely lost today. After finally getting my diagnosis last week I was on top of the world. Now I’m back in reality. My pain is so bad. The past 3...

I feel completely lost today. After finally getting my diagnosis last week I was...

PastaGirl13

•21 hours ago

2 Replies

I just want to be heard

Hi, never done this before. Sorry in advance if it doesn't make sense. So I started my period at age 12. Suffered with them really bad and they were heavy. I...

Hi, never done this before. Sorry in advance if it doesn't make sense. So I sta...

Teeflyers

•2 days ago

53 Replies

now what?

had my endo surgery last year, had some complications and was told I had an ovary adhered. Waited months, was in pain for months to go back for another scan to...

had my endo surgery last year, had some complications and was told I had an ovar...

Granolalover23678

•2 days ago

1 Reply

Diagnostic Laparoscopy

THEY FOUND ITTTTTT! On Friday 13th (now considered the luckiest day in my life) I went for my laparoscopy and they found A LOT (surgeon’s words) of...

THEY FOUND ITTTTTT! On Friday 13th (now considered the luckiest day in my life)...

Lunaloo123

•2 days ago

13 Replies

Prostrap Brown Discharge

Hi all, I’ve been on Prostrap since the start of Feb this year. I have stage 4 endo and large endo on my ovaries.. I did have a period to begin with but then...

Hi all, I’ve been on Prostrap since the start of Feb this year. I have stage 4 ...

Drizzie

•3 days ago

3 Replies

Post-lap medical suggestions

Hi everyone! I had a laproscopy just over 4 weeks ago and got an endo diagnosis. I got the written report from my surgeon on Friday with recommendations for...

Hi everyone! I had a laproscopy just over 4 weeks ago and got an endo diagnosis....

velowatching

•4 days ago

6 Replies

Leg pain, mobility aids and trying to feel less alone

Hi everyone! This is my first ever post and I'm really hoping to find some other people who might be sharing the same experience as me. I've been struggling...

Hi everyone! This is my first ever post and I'm really hoping to find some other...

PastaGirl13

•4 days ago

21 Replies

Do I do or not!

Hello, I have been told I’m going through the pre-menopause, I am having some bad symptoms. The Dr had suggested HRT but I am so worried, I have...

Hello, I have been told I’m going through the pre-menopause, I am having some b...

MemycatandI

•4 days ago

1 Reply

Pain, bloating and fatigue

Hi everyone. I was diagnosed last year with endometriosis and I have cysts on my ovaries. I think it's stated due to perimenopause and the HRT I have been...

Hi everyone. I was diagnosed last year with endometriosis and I have cysts on my...

HD16

•4 days ago

12 Replies

Back pain

Hi all I'm wondering if anyone is struggling with severe back pain? Today I am crippled my legs also feel like they are made of stone. I'm really really...

Hi all I'm wondering if anyone is struggling with severe back pain? Today I am c...

Lornalost89

•4 days ago

4 Replies

Post lap consult Qs?

Looking for your suggestions for Qs and discussions so I can get the most out of my appointment… 1st lap in April confirmed endo in my pelvic wall and the...

Looking for your suggestions for Qs and discussions so I can get the most out of...

JEWM

•4 days ago

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Feeling lost and confused

I'm not sure what I'm hoping to gain from this post other than to maybe speak to people who understand what this is like. So far I manage pain with a tens...

I'm not sure what I'm hoping to gain from this post other than to maybe speak to...

Elsa150

•5 days ago

3 Replies

Surgery cancelled on the day

Hi, Has anyone every experienced surgery cancelled on the day. I was booked in for stage 4 endo and bowel surgery, however this was cancelled at 4pm, after...

Hi, Has anyone every experienced surgery cancelled on the day. I was booked in f...

Meeya_345

•5 days ago

3 Replies

Has anyone here seen an endometriosis nurse if so what help can they provide?

Hello, I am based in Wales and was diagnoised with endo when I was 18 via laparoscopy and now 25 and still have major issues. Even on the pill and implant I...

Hello, I am based in Wales and was diagnoised with endo when I was 18 via lap...

Nicjane

•5 days ago

11 Replies

diegonest and the implant

Hey guys this is my first post on here! I got diagnosed with endo in April after years of suffering. I have been taking diegonest for about a year and I’ve...

Hey guys this is my first post on here! I got diagnosed with endo in April afte...

Whizz19

•5 days ago

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experience with peri menopause?

Hello everyone, I am wondering what to expect being peri menopausal with endo. At a recent meds review it was mentioned that often a flare in symptoms is...

Hello everyone, I am wondering what to expect being peri menopausal with endo....

Ebdex

•5 days ago

7 Replies

Confused and need advise

Hello, it took 8 years for diagnosis of endometriosis. Already had children and decided it was better to have a hysterectomy, however left my ovaries to...

Hello, it took 8 years for diagnosis of endometriosis. Already had children and ...

29rosie

•5 days ago

3 Replies

1st consultation with endo specialist- confused feelings

hi, I guess I’m just posting to see if anyone’s had a similar experience. I’ve had pain mostly on my left side (pelvic pain) which is more excruciating during...

hi, I guess I’m just posting to see if anyone’s had a similar experience. I’ve h...

endoliv

•6 days ago

13 Replies

Hello...How is everyone?

Happy Friday everybody. I haven't posted for a while and for that I apologise. Work has been soooo busy and hectic. That aside, I'm genuinely wondering how...

Happy Friday everybody. I haven't posted for a while and for that I apologise. W...

endotheline

•6 days ago

12 Replies

Peoples experiences on Dienogest

I’m wanting to know how people have felt on dienogest and if they had any side affects. I am 7 weeks post laparoscopy where I was diagnosed with endo. I have...

I’m wanting to know how people have felt on dienogest and if they had any side a...

Bagel96

•7 days ago

13 Replies

Gynae appt tomorrow

First post here but this forum is so helpful. I'm feeling very anxious. I've been on a waiting list to see the gynae and now I'm so confused about what to...

First post here but this forum is so helpful. I'm feeling very anxious. I've bee...

Shortbread1980

•7 days ago

5 Replies

The pill and endometriosis

Has anyone come off the pill and symptoms stayed the same? I was put on the pill (without being asked) after a hospital admission in april. I have been near...

Has anyone come off the pill and symptoms stayed the same? I was put on the pill...

Chocolatefanatic

•7 days ago

6 Replies

Endo/ibs/perimeno/which one!?

Hi all. Very new here. I guess I’m just looking to see if anyone has any similar issues, a bit of reassurance and advise me on what the heck I’m meant to be...

Hi all. Very new here. I guess I’m just looking to see if anyone has any similar...

Kateos81

•7 days ago

14 Replies

Write a post or ask a question

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

I am going to write to my local MP.... could someone help me do this....

womb cancer

Bleeding for Months Straight

Hoping someone has experienced similar

Endo & Adeno Post Op Pain

endometrioma / chocolate cyst help

NHS can’t help. Try mushrooms

Feeling lost

I just want to be heard

now what?

Diagnostic Laparoscopy

Prostrap Brown Discharge

Post-lap medical suggestions

Leg pain, mobility aids and trying to feel less alone

Do I do or not!

Pain, bloating and fatigue

Back pain

Post lap consult Qs?

Feeling lost and confused

Surgery cancelled on the day

Has anyone here seen an endometriosis nurse if so what help can they provide?

diegonest and the implant

experience with peri menopause?

Confused and need advise

1st consultation with endo specialist- confused feelings

Hello...How is everyone?

Peoples experiences on Dienogest

Gynae appt tomorrow

The pill and endometriosis

Endo/ibs/perimeno/which one!?

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