Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

70,734 members • 52,159 posts

All posts for September 2023

looking for answers

hello! I have recently been diagnosed with severe pelvic endometriosis after years of fighting. My diagnosis was given to me by post 5 days after I was...

hello! I have recently been diagnosed with severe pelvic endometriosis after ye...

FH90

•8 months ago

3 Replies

surgery ready

So I’m on the countdown to my total hysterectomy on 5th October. Had the pre op tests and book of a tick box questionnaire. Feeling a bit weird, I know all the...

So I’m on the countdown to my total hysterectomy on 5th October. Had the pre op ...

MrsPaddingtonBear

•8 months ago

2 Replies

Contraception and Epilepsy.

Evening ladies,This is just a quick one to see if anybody else has epilepsy and endo. One of the epilepsy meds is contraindicated with a lot of the pills. I...

Evening ladies,This is just a quick one to see if anybody else has epilepsy and ...

Kirsty360

•8 months ago

3 Replies

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endo symptoms on hormonal therapy

hello, im just wondering for those who are on any kind of hormone therapy eg pill, IUD and DONT have period because of this what are your symptoms?? I don’t...

hello, im just wondering for those who are on any kind of hormone therapy eg p...

PBGV24

•8 months ago

4 Replies

Pain management for endometriosis

Hi, does anyone have any suggestions for pain relief? I'm in the process of trying to get a diagnosis for suspected endometriosis A few days ago I was...

Hi, does anyone have any suggestions for pain relief? I'm in the process of try...

Usernaame

•8 months ago

13 Replies

laparoscopy on weds, first one! Help!

hello! I have my first lap on Wednesday and I am SO nervous. I feel sick thinking about it. Can anyone help me relax? Any advice on what to take and also let...

hello! I have my first lap on Wednesday and I am SO nervous. I feel sick thinkin...

Rosiehannah1

•8 months ago

12 Replies

Coil and bloating

hi everyone. I had a coil fitted 6 weeks ago for endometriosis and since then I have been bloated constantly. I’m currently having peppermint tea, apple cider...

hi everyone. I had a coil fitted 6 weeks ago for endometriosis and since then I ...

MonieBL

•8 months ago

3 Replies

How long did you wait for a hysterectomy for Adenomyosis?

I'm desperate to have a hysterectomy and am seeing the consultant in 2 months. I'd be interested to know how long people have had to wait. My rough guess is 2...

I'm desperate to have a hysterectomy and am seeing the consultant in 2 months. I...

Mindfullness4791

•8 months ago

2 Replies

Advice please.

Hi everyone I’m new to this site but wondered if anyone had any advice for me. I have been diagnosed with severe endometriosis which has extended to bowel...

Hi everyone I’m new to this site but wondered if anyone had any advice for me. ...

Nutty13

•8 months ago

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second laparoscopy

I had my first laparoscopy in Sept 2021 when they drained my 6cm endometrioma. Now, 2 years later my endometrioma is back so I was offered a second surgery in...

I had my first laparoscopy in Sept 2021 when they drained my 6cm endometrioma. ...

ucsilla

•8 months ago

2 Replies

Breast pain

Hi everyone. Just a quick question. I've not been diagnosed yet but GP and gynae suspect endo. One of the (many!) symptoms I've had is breast pain during/just...

Hi everyone. Just a quick question. I've not been diagnosed yet but GP and gynae...

CitizenErased

•8 months ago

1 Reply

Mini pill causes acid reflux/gastritis?

I've been on the progesterone only mini pill (desogestrel) for 18 months now to help with endometriosis pains before I have surgery (hopefully early next...

I've been on the progesterone only mini pill (desogestrel) for 18 months now to ...

Jessieb92

•8 months ago

5 Replies

Endromitriosis

Hi , i have recently just been diagnosed with endromitriosis. I am 29 recently just had a laparoscopy. Any help or advice would be a massive help Thank you .

Hi , i have recently just been diagnosed with endromitriosis. I am 29 recently j...

Char6031

•8 months ago

3 Replies

Endometriosis and Fertility

Hi guys :) hoping to get some advice/support I am 34 years old. I was diagnosed with Endometriosis stage 4 in 2021 and had surgery at this point. I don’t...

Hi guys :) hoping to get some advice/support I am 34 years old. I was diagnose...

Lovelife26

•8 months ago

9 Replies

Laxatives for constipation

What do you use? The gp has just changed me from laxido to fybogel mebeverine. I've taken half a sachet and the pain is horrendous. It is causing awful cramps....

What do you use? The gp has just changed me from laxido to fybogel mebeverine. I...

Mindfullness4791

•8 months ago

6 Replies

Anyone with similar symptoms to help with lap decision?

I came off the pill after 14 years and have had a few months of heavy periods, crippling stomach and lower back pain in first 24-48 hours of my period, with...

I came off the pill after 14 years and have had a few months of heavy periods, c...

AllieLW

•8 months ago

7 Replies

Has anyone used Beneden health?

I'm getting desperate 🥹 After 2 years of crohnic pelvic pain with associated bowel/bladder issues and probable Adenomyosis. I just can't see this getting...

I'm getting desperate 🥹 After 2 years of crohnic pelvic pain with associated bo...

Mindfullness4791

•8 months ago

8 Replies

weight loss and bloating loss after surgery?

so I’ve steadily gained quite a rotund stomach over the last 9 months I reckon. Since January when my bleeding and bloating became horrific. My question is -...

so I’ve steadily gained quite a rotund stomach over the last 9 months I reckon. ...

Kieraface

•8 months ago

2 Replies

Weight Gain

Hi Guys, I was diagnosed with endo in January. I am really struggling with weight gain ( not sure if it is related) Do you have any advice on what exercises...

Hi Guys, I was diagnosed with endo in January. I am really struggling with wei...

Lily_purple

•8 months ago

8 Replies

Early signs of ovarian torsion?

Hi all, I’ve had a large endometrioma (around 11cm) for about a year now and am on the waiting list for surgery. On my period now and was in a lot of pain,...

Hi all, I’ve had a large endometrioma (around 11cm) for about a year now and am...

siob96

•8 months ago

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Endo back after hysterectomy

I had hysterectomy in March 2020 leaving my ovaries in. I've recently had an ultrasound due to pain and bloating that has indicated that my endo is back...

I had hysterectomy in March 2020 leaving my ovaries in. I've recently had an ul...

SMW1976

•8 months ago

6 Replies

NHS endo appointment

Hi all, This only relates to people in the UK on the NHS for endo treatment: I have been seen privately by Mr Afifi at the Birmingham endo clinic for an...

Hi all, This only relates to people in the UK on the NHS for endo treatment: ...

endo_the_stigma

•8 months ago

8 Replies

Hormones vs hysterectomy

I am 43 and facing the next (hopefully last) stage in endometriosis life. I have had two laparoscopic surgeries and a successful few years on the mirena coil....

I am 43 and facing the next (hopefully last) stage in endometriosis life. I have...

Rarebitrabbit

•8 months ago

23 Replies

Recently Diagnosed and need some advise xx

hello :) I have only recently been diagnosed 2 weeks ago with endometriosis which has been affecting me my whole life but doctors have been saying it was...

hello :) I have only recently been diagnosed 2 weeks ago with endometriosis wh...

EmilyKindon

•8 months ago

23 Replies

mirena coil advice

hey ladies, just wanted to know what your experience has been like with the mirena coil. My gyny wants to fit one when I have my surgery and I’m not sure I...

hey ladies, just wanted to know what your experience has been like with the mi...

Kieraface

•8 months ago

22 Replies

Operations and GMC

Hi I’ve had a complaint in with GMC for a long time, it was about not having the hysterectomy with colorectal involvement which meant I had to have a further...

Hi I’ve had a complaint in with GMC for a long time, it was about not having th...

Moon_maiden

•8 months ago

13 Replies

Pregnancy with large endometrioma

Am interested in trying to conceive in the next year. was found to have a 10 cm endometrioma on my left ovary confirmed by MRI. I have pain during my period,...

Am interested in trying to conceive in the next year. was found to have a 10 cm ...

bluesky1991

•8 months ago

8 Replies

Implantation

Hi, I am not one to jump to conclusions and im past the point of hoping each much I catch been a long while since iv done that...until now!!!!!!!! I have...

Hi, I am not one to jump to conclusions and im past the point of hoping each muc...

Fighting-Endo

•8 months ago

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Stage 4 surgery questions

hi ladies I’ve got stage 4 deep infiltrating/possible bowel lesions etc . Known for just over a year now and initially opt for no surgery and back to back...

hi ladies I’ve got stage 4 deep infiltrating/possible bowel lesions etc . Known...

Bondi64

•8 months ago

12 Replies

Pain so bad, contemplating leaving work

Hiya, I just wanted to share my issues and see if anyone is going through, been through the same and has any advice. I am currently struggling with my endo...

Hiya, I just wanted to share my issues and see if anyone is going through, been ...

Rwby_Rose

•8 months ago

15 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for September 2023

looking for answers

surgery ready

Contraception and Epilepsy.

endo symptoms on hormonal therapy

Pain management for endometriosis

laparoscopy on weds, first one! Help!

Coil and bloating

How long did you wait for a hysterectomy for Adenomyosis?

Advice please.

second laparoscopy

Breast pain

Mini pill causes acid reflux/gastritis?

Endromitriosis

Endometriosis and Fertility

Laxatives for constipation

Anyone with similar symptoms to help with lap decision?

Has anyone used Beneden health?

weight loss and bloating loss after surgery?

Weight Gain

Early signs of ovarian torsion?

Endo back after hysterectomy

NHS endo appointment

Hormones vs hysterectomy

Recently Diagnosed and need some advise xx

mirena coil advice

Operations and GMC

Pregnancy with large endometrioma

Implantation

Stage 4 surgery questions

Pain so bad, contemplating leaving work

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