Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

70,734 members • 52,159 posts

All posts for April 2023

is fibrotic adhesion related to endo or surgery or both

got my mri results and had a lap in november 2022 where endo nodule was found on the utersacral ligament and superficial endo in left side of POD. Had a mri...

got my mri results and had a lap in november 2022 where endo nodule was found on...

•1 year ago

menopause and endometriosis

Hello new to here. Diagnosed with endometriosis in my late 30s after suffering from terrible period pains and everything else. Had an amazing Endo Consultant...

Hello new to here. Diagnosed with endometriosis in my late 30s after suffering f...

•1 year ago

Infertility clinic no help at all!

So I posted on here before about having an ovarian cyst removed last year and the surgeon doing the dye test at the same time and finding endometriosis. Just...

So I posted on here before about having an ovarian cyst removed last year and th...

•1 year ago

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Anyone with endo going through IVF/DEIVF?

I was diagnosed with stage 4 endo back in jan 2015. Since then we went through IVF in early 2020 and had complications with egg collection puncturing my endo...

I was diagnosed with stage 4 endo back in jan 2015. Since then we went through I...

•1 year ago

Struggling to get a diagnosis

Hi all! I've recently joined this community after stumbling across it on Endometriosis UK's website when looking for some resources. I was wondering if any of...

Hi all! I've recently joined this community after stumbling across it on Endomet...

•1 year ago

1 week post-laparoscopy

Hi, I have posted only once here, when I was at my lowest, and the support and advice was everything I needed and it truly helped me move on and push for...

Hi, I have posted only once here, when I was at my lowest, and the support and ...

•1 year ago

employer support

Hello all, I was hoping someone could give me some advice regarding support with my employer. I work in the NHS within a patient facing role where flexible...

Hello all, I was hoping someone could give me some advice regarding support wit...

•1 year ago

decapeptyl montly injection when will my period return?

Hi, I'm wondering when my periods will return. I had 3 x monthly injections and ive stopped them as wasnt helping I'm wanting to try for a baby.

Hi, I'm wondering when my periods will return. I had 3 x monthly injections and ...

•1 year ago

Employer not being supportive about endometriosis / invasion of privacy

Hi all, I was wondering if anyone has any advice on how to approach having an employer who is not supportive of endometriosis / treatment, and consistently...

Hi all, I was wondering if anyone has any advice on how to approach having an ...

•1 year ago

Stage 4 Endo but minimal symptoms

Hi, I'm writing this as I'm at home recovering from a laproscopic cystecomy (sorry if that's spelt wrong!) last week. The gynae consultant diagnosed me with...

Hi, I'm writing this as I'm at home recovering from a laproscopic cystecomy (sor...

•1 year ago

Diagnostic process

Hi everyone. I'm not really sure whether I should be posting on here, because I don't have confirmed endometriosis, but I have many of the symptoms, which have...

Hi everyone. I'm not really sure whether I should be posting on here, because I ...

•1 year ago

periods after surgery & nerve pain/numbness

hello, just wondering what people’s periods have been like after laparoscopy? Mine were super light now the have stopped - should I be concerned? I am on the...

hello, just wondering what people’s periods have been like after laparoscopy? ...

•1 year ago

The Endometriosis Clinic London - Is it worth it?

I have superficial endometriosis and I'm at a point with doctors where they don't have many solutions left for me -- Has anyone is a similar position found...

I have superficial endometriosis and I'm at a point with doctors where they don'...

•1 year ago

feeling unwell with endometriosis

I have mild endometriosis, does anyone else get days where you feel rubbish achy, and really tired ?

I have mild endometriosis, does anyone else get days where you feel rubbish achy...

•1 year ago

Any endo exiscion success stories? Bowel involvement x

Hi would love to hear about endometriosis excision surgery stories. Do you think it was worth having? How much has it affected the pain level and how long have...

Hi would love to hear about endometriosis excision surgery stories. Do you think...

•1 year ago

chronic fatigue

hi guys so a little about me first. Ive been suffering with crippling pain since october, after many visits to a&e and my gp theyre pretty sure i have endo....

hi guys so a little about me first. Ive been suffering with crippling pain sinc...

•1 year ago

First period after laparoscopy

Hi everyone, I am almost 2 weeks post lap, with endo removed. My question is, how was your first period after surgery? I came on a couple of days ago and...

Hi everyone, I am almost 2 weeks post lap, with endo removed. My question is,...

•1 year ago

Stage 4 endo with adynomyosis- sub hysterectomy, please advise on it

Hi everyone. I have been diagnosed of endometriosis via laparoscopy in 2018. I never had any issue other than couple of days of painful period until September...

Hi everyone. I have been diagnosed of endometriosis via laparoscopy in 2018. I n...

•1 year ago

lap yesterday!

5 years and yesterday finally got the answers for my pain. Endometriosis found. My surgeon also mentioned adhesions? And my appendix was fused to scar tissue....

5 years and yesterday finally got the answers for my pain. Endometriosis found. ...

•1 year ago

Pregabalin for pain and want o come off

Hi I have suffered severe pain in my lower limbs of unknown origin. Cramps and heavy legs, hard to walk and do ordinary things. I am 77 and was in...

Hi I have suffered severe pain in my lower limbs of unknown origin. Cramps an...

•1 year ago

bowel endometriosis/pouch of Douglas/IBS

anyone who has endometriosis on the bowel/Pouch of Douglas/IBS, I’ve been getting stomach pain recently that is really painful and uncomfortable. It will start...

anyone who has endometriosis on the bowel/Pouch of Douglas/IBS, I’ve been gettin...

•1 year ago

Talking to employer about conditions

Hi everyone! This is my first post, I joined tonight. I have PCOS and endo. My symptoms often prevent me from going about my activities as normal (despite...

Hi everyone! This is my first post, I joined tonight. I have PCOS and endo. My s...

•1 year ago

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