Diagnostic process: Hi everyone. I'm not... - Endometriosis UK

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Diagnostic process

Watercolour12 profile image
9 Replies

Hi everyone. I'm not really sure whether I should be posting on here, because I don't have confirmed endometriosis, but I have many of the symptoms, which have been on-going and getting me down for a few years. I've had lots of tests & seen various specialists but nobody seems to have considered endo, and I just wondered what others' experiences are, and should I be pushing to be seen by a gynaecologist? Thank you for your time and sorry again if I shouldn't be posting here- wasn't sure where else to go.

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Watercolour12
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9 Replies

Hello! Of course you can post here, many people on the forum are fighting for a diagnosis. Unfortunately you do have to keep pushing to be listened too, and absolutely push for a referral to gynaecology. Have you mentioned endo to any of the doctors/specialists you've seen?

Watercolour12 profile image
Watercolour12 in reply to

Thank you, not sure why I didn't see these responses! I managed to get a referral and MRI and am waiting for a laparoscopy. Thanks again

Rainbow2468 profile image
Rainbow2468

Hi you have every right to speak here, do keep going back to your doctor's a lot of people here recommend mri as a good diagnostic tool, so perhaps get on to you GP about having an mri. But don't give up you need to know what is causing the problems you are having. Sending you a big hug too xx

Watercolour12 profile image
Watercolour12 in reply toRainbow2468

Thank you so much. I've made progress since my post and am waiting for a laparoscopy x

Rainbow2468 profile image
Rainbow2468 in reply toWatercolour12

I'm glad you're getting the help you need hope all goes well with your laparoscopy. Have a lovely day x

Shell1212 profile image
Shell1212

Hi, I would definitely push it to see someone. I started having problems in 2004 when they questioned infertility. I never fell pregnant. Only got a diagnoses last year. I'm now 47. To late for any kids, plus least I finally know why I never fell pregnant. Don't let them fob you off. The years fly by. I'm probably speaking for all of us when I say the frustration of never get taken seriously or brushed off for years, is massive.

take care of yourself

Watercolour12 profile image
Watercolour12 in reply toShell1212

Thank you for sharing <3 I hope you're doing okay, that sounds like a tough journey. It's crazy making to be dismissed like that!I'm waiting for a laparoscopy now after having an MRI. Take care of yourself too

Slinks profile image
Slinks

I'm in the same situation and been going back and forth for a few years. Finally they've referred me to a specialist who is listening and not dismissing my pain. It was only after I complained to NHS England and my practice I got anywhere. The last GP I saw said my pain could be in my head I was fuming! Keep pushing although I know it's hard

Watercolour12 profile image
Watercolour12 in reply toSlinks

Thank you for sharing. It's so hard isn't it! Glad you've finally seen someone who is listening but my gosh what a journey. I've managed to get an MRI and am waiting for laparoscopy. Although unfortunately saw a very unsympathetic consultant

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