Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

70,720 members • 52,156 posts

All posts for January 2023

bloat

does anyone find they wake up slim and go to bed most nights so swollen and bloated.? Is this normal with endo or more along the ibs signs? It’s not triggered...

does anyone find they wake up slim and go to bed most nights so swollen and bloa...

Adeno2020

•1 year ago

9 Replies

Prostap & Chemical Menopause

I went to see my gynae yesterday after waiting 2.5 years for my appointment (Covid!). I have been struggling more and more with the pain (I am stage 4) and the...

I went to see my gynae yesterday after waiting 2.5 years for my appointment (Cov...

redsoledshoegal

•1 year ago

23 Replies

How long have people been waiting for a laparoscopy?

I was referred in June 2022 for a diagnostic laparoscopy and I am still on a bloody waiting list. It has been 7 months! I understand the NHS is under pressure...

I was referred in June 2022 for a diagnostic laparoscopy and I am still on a blo...

RueBlu3

•1 year ago

44 Replies

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Endometrioma found on left ovary - unable to see the right ovary…

Hi everyone, I was diagnosed with endo about 8 years ago and had three successful laps to remove patches and had been symptom free since then taking the pill...

Hi everyone, I was diagnosed with endo about 8 years ago and had three successfu...

SKW10

•1 year ago

1 Reply

Support 1st lap

I have my first laporoscopy sheduled in 4 weeks I'm nervous. From my symptoms I think I have ureter endo. I have severe flank pain front n back... I also have...

I have my first laporoscopy sheduled in 4 weeks I'm nervous. From my symptoms I ...

Gem657

•1 year ago

12 Replies

I just feel so hopeless

Bleeding won't stop, I've had tests. It's been years, I have no answer. Is it endo, is it adeno? Dunno.Bleeding for 10+days then I've a period. Thyroid checked...

Bleeding won't stop, I've had tests. It's been years, I have no answer. Is it en...

Nm1993

•1 year ago

17 Replies

recently diagnosed w/ endometriosis

just wanted to ask if it’s possible to be diagnosed through an ultrasound? Thanks

just wanted to ask if it’s possible to be diagnosed through an ultrasound? Thank...

Alexgrace

•1 year ago

5 Replies

thoracic/diaphragmatic endometriosis- keen to hear anyone else’s stories

Hi Ladies, have any of you had successful surgery to help with Thoracic/Diaphragmatic endometriosis? I was diagnosed with endo in 2011 and have had a...

Hi Ladies, have any of you had successful surgery to help with Thoracic/Diaphrag...

Dolomite1989

•1 year ago

10 Replies

Zoladex worth it?

Hi, I have stage 4 endo with 2 large endometriomas on each ovary plus adeno. I currently have the coil and take desogestrel continuously. I saw my consultant...

Hi, I have stage 4 endo with 2 large endometriomas on each ovary plus adeno. I ...

Saff21

•1 year ago

10 Replies

Hysterectomy

hi everyone. I’m am looking for some advice please. So my partner who had stage 4 endometriosis, has had to undergo a full hysterectomy to get rid of this...

hi everyone. I’m am looking for some advice please. So my partner who had stage...

Helpwithpain1984

•1 year ago

16 Replies

Endometriosis since I was 21

Hi guys, I’ve been diagnosed with endometriosis cysts in my left ovaries, one has grown and 2 are still small, now I have two on my right ovaries, I’m going...

Hi guys, I’ve been diagnosed with endometriosis cysts in my left ovaries, one ha...

Ru1989

•1 year ago

11 Replies

Post menopausal endo?

Does anyone have any experience of going through the menopause and finding relief from endo? My current GP wants me to come off the pill due to high risks at...

Does anyone have any experience of going through the menopause and finding relie...

MiniTina

•1 year ago

5 Replies

Zoladex and medical gaslighting endo

Hi all,I am a long termer living, going on 20 years D.I.E. diagnosed or rather not diagnosed in late 20’s via an unrelated pelvic surgery. Stage 4? level...

Hi all,I am a long termer living, going on 20 years D.I.E. diagnosed or rather n...

Hope264

•1 year ago

3 Replies

Where do you feel pain?

I'm currently waiting to have a lap to diagnose what I'm pretty confident is endo. I'm currently having 24/7 pain, this flare up has last about a month so far....

I'm currently waiting to have a lap to diagnose what I'm pretty confident is end...

Banders93

•1 year ago

2 Replies

Estrogen pills

Hi allWas just wondering if anyone has any feedback or experience with vaginal estrogen pills? I can't even cope with Dr's/smears touching down there so not in...

Hi allWas just wondering if anyone has any feedback or experience with vaginal e...

Escapologygirl

•1 year ago

6 Replies

Doctor makes it seem like I want to have surgery and not like I actually need it

After struggling with severe constant daily pain for a year and a half, a gynaecologist has decided to put me on a waiting list for surgery. I didn't go see...

After struggling with severe constant daily pain for a year and a half, a gynaec...

JustPain2

•1 year ago

4 Replies

Discrimination at work - help!

Hi All, I am currently under an occ health support plan as I suffer with endometriosis pcos and medically enduced osteoporosis due to being put into the...

Hi All, I am currently under an occ health support plan as I suffer with endome...

Spangalow07

•1 year ago

9 Replies

Double desogestrel pill

Has anyone else been told to take two pills a day? My gynaecologist told me to try it over a month ago to try and reduce bleeding and pain. My pain has reduced...

Has anyone else been told to take two pills a day? My gynaecologist told me to t...

Surfingblue

•1 year ago

2 Replies

Dienogest

Hi All,Just had my specialist appointment with Endometriosis Consultant (although didn't get to see him as emergency came in so it was with his colleague).I...

Hi All,Just had my specialist appointment with Endometriosis Consultant (althoug...

Deedee666

•1 year ago

4 Replies

can you drain an endometrioma without surgery?

Does anyone know if it is possible to drain an endometrioma without surgery? I am thinking because I had IVF recently and during egg collection, they used an...

Does anyone know if it is possible to drain an endometrioma without surgery? I ...

ForABabyPanda

•1 year ago

6 Replies

How to ensure a thorough diagnostic lap

Hi there, I am from Canada and have suspected endo. My gynecologist is planning to do a laparoscopy soon to check. I have requested a check only, not removal,...

Hi there, I am from Canada and have suspected endo. My gynecologist is planning ...

Brann

•1 year ago

2 Replies

Blood in poo

I have endo pouch of Douglas and on uterosacral ligament on left side and also hemmoids. I am experiencing frequent blood in my poo which happens a couple of...

I have endo pouch of Douglas and on uterosacral ligament on left side and also h...

me94

•1 year ago

6 Replies

Pain when peeing in pelvis?

hi I’m wondering what the pain feels like for people when on your period and trying to pee? For me it feels like wind pain in pelvis as I’m trying to pee and...

hi I’m wondering what the pain feels like for people when on your period and try...

Jsrzb

•1 year ago

1 Reply

Laparoscopy and excision surgery, is it worth it?

Hi everyone, I’m at a crossroad in my life. I’m 36 and was able to conceive a child almost 3 years ago. I am now at the point where I am struggling to manage...

Hi everyone, I’m at a crossroad in my life. I’m 36 and was able to conceive a ch...

hanybobany

•1 year ago

3 Replies

Endo interfering with nerves?

HiExtensive endo was found during my lap in June 2021 - ovaries, bowel, diaphragm etc. I had my right ovary and tube removed. Four increasingly painful periods...

HiExtensive endo was found during my lap in June 2021 - ovaries, bowel, diaphrag...

Sloany

•1 year ago

7 Replies

Post Lap findings and IBS

Hi everyone, I had a laparoscopy and hysteroscopy on Wednesday. The surgeon found numerous areas of endo outside of my uterus and was luckily able to remove...

Hi everyone, I had a laparoscopy and hysteroscopy on Wednesday. The surgeon fou...

JT1992

•1 year ago

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travelling with endo

hi all, not sure if this is appropriate place to post or not so apologies if not. I was wondering if anyone can direct me to a good travel insurer for heading...

hi all, not sure if this is appropriate place to post or not so apologies if not...

Jem33

•1 year ago

11 Replies

Laparoscopy when on period?

Hello! My laparoscopy is next month and I think it’s going to fall at the same time as my period. Can surgery still go ahead even if you’re on your period?...

Hello! My laparoscopy is next month and I think it’s going to fall at the same t...

Yellow-Moo

•1 year ago

12 Replies

Coming off GNRH analogues

Hi, I have been on prostrap and then zoladex for the past 2.5 years. This was to help with pain which it did initially and i have been waiting for so long...

Hi, I have been on prostrap and then zoladex for the past 2.5 years. This was ...

Awwy

•1 year ago

7 Replies

Perimenopause??

Hi ladies, Have or are any of you going through perimenopause/ early menopause? I'm really struggling with confusion ( brain fog) anxiety & depression. I feel...

Hi ladies, Have or are any of you going through perimenopause/ early menopause? ...

Heartof3

•1 year ago

55 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for January 2023

bloat

Prostap & Chemical Menopause

How long have people been waiting for a laparoscopy?

Endometrioma found on left ovary - unable to see the right ovary…

Support 1st lap

I just feel so hopeless

recently diagnosed w/ endometriosis

thoracic/diaphragmatic endometriosis- keen to hear anyone else’s stories

Zoladex worth it?

Hysterectomy

Endometriosis since I was 21

Post menopausal endo?

Zoladex and medical gaslighting endo

Where do you feel pain?

Estrogen pills

Doctor makes it seem like I want to have surgery and not like I actually need it

Discrimination at work - help!

Double desogestrel pill

Dienogest

can you drain an endometrioma without surgery?

How to ensure a thorough diagnostic lap

Blood in poo

Pain when peeing in pelvis?

Laparoscopy and excision surgery, is it worth it?

Endo interfering with nerves?

Post Lap findings and IBS

travelling with endo

Laparoscopy when on period?

Coming off GNRH analogues

Perimenopause??

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