Endo interfering with nerves?

[Sloany]

HiExtensive endo was found during my lap in June 2021 - ovaries, bowel, diaphragm etc. I had my right ovary and tube removed. Four increasingly painful periods later, I reluctantly took my gynae' s advice and went on prostap for a year. It was great in that it stopped my periods, but I felt that the pain in general was much the same. My gynae has been very dismissive of my symptoms (stabbing ovary pain, back pain, stabbing chest pain, rib pain and ever present shoulder pain) saying that it must be due to something else as prostap puts everything to sleep!

I came off the prostap in October, and while I still haven't had a period, I have had spells of period-like pain since December and been sure it was coming , but it just hasn't happened. I kind of wish it would!

The reason for my post is that over the past few months I have felt the shoulder pain travelling down my right arm and into my hand. I get numbness and pins and needles and also a lot of pain in my elbow. This morning I have woken up to a similar feeling in my big toe, also on the right. Since my lap in 2021 i have experienced sciatic pain, also on my right, that wasn't there before.

I went to my gp last week and she is arranging for all sorts of tests, but I would like to go armed with some knowledge of possible. Had anyone else experienced anything similar? I am an otherwise healthy 49 year old!

Thanks in advance x

[Lindle]

Are you in the UK and was your lap by a regular gynaecologist?

[Sloany in reply to Lindle]

Yes and yes!

[Lindle in reply to Sloany]

Can I ask which UK country as pathways differ.

[Sloany in reply to Lindle]

I’m in England (south-west)

[Lindle in reply to Sloany]

Unfortunately this gynaecologist has treated you completely against regulations. As soon as severe endo was found she should have referred you straight to a specialist endo centre. It is a requirement of NHS England. You have several in the SW - two in Bristol, one in Cornwall, in Plymouth and in Exeter.

Medical treatment is not appropriate at all and will do nothing for severe endo.

I have put the link below to the NHS England specification that applies but it can be complicated to navigate so if you join a group called Endorevisited there is a detailed file on how to get a referral. x

england.nhs.uk/wp-content/u...

[Sloany in reply to Lindle]

Thanks very much for taking the time to reply x

[Duopuss]

I have had right shoulder pain for over a year that is endo related (they think on my diaphragm) and numbness/tingly that was investigated and no cause found. The only thing that helped the pain is amitripyline which I have to take on the first day of my period until the day I ovulate. Hope you get some answers