Endometriosis Book Recommendations?

[Kimmeka]

Fancy doing some reading and would love some recommendations 😊

[thara9643]

try amazon

[USgalwthendo]

I liked: “The Autoimmune Connection” by Rita Baron-Faust MPH. I read it from the library years ago and just purchased a used copy from Amazon (USA). It mentions endo (I have stage 4) but also other autoimmune conditions such as Sjogrens which I was also just diagnosed with. The main premise is that if you have one condition you often have multiple and that they are related. I have asthma too so that’s 3 autoimmune conditions. I find the public library has a wealth of books on endo and you can save a lot of money that way too. I’m also savoring my other Amazon purchase: “the 4 week endometriosis diet plan”- Katie Edmonds NTC

[TennisAM]

To improve the mental health impact:

The Happiness Trap by Russ Harris.

I used to resist pain, was frustrated, upset etc. Pain used to happen in the early hours of the morning regularly and could never get back to sleep

After using this book and observing pain for 3 weeks, severe pain happened again at night. One night I was woken 5 times, each time I said to myself "this doesn't matter". I went back to sleep each time within minutes.

This is an invaluable book for anyone that puts the work in.

[Hidden]

Hi, I read a book on endo by Dr Jessica Drummond, "Outsmart Endometriosis: Relieve Your Symptoms and Get Your Career Back on Track."

It had a useful description of endometriosis and suggestions to help make a plan to manage it.

I read it directly after getting my diagnosis of endometriosis, and found it useful. Some of the sections are information-dense, so a bit like a reference to go back to and read again later.

Other main places I found information are endometriosis.org and the Endometriosis UK website.

At the time, I read everything I could find on the internet including research papers and guidance documents for patients and practitioners.

The NICE guidance documents are worth reading.

I can say that there is a lot for the medical profession to learn about endometriosis because it could be much better understood.

[Kimmeka in reply to Hidden]

Thank you 😊 Do you think is worth reading even tho I’m not diagnosed yet?

[Hidden in reply to Kimmeka]

Hi Kimmeka,Depending on the person, it can take a long time to get a diagnosis.

I'd say that if you're interested in the topic, it's worth reading about.

[Lindle]

STOP ENDOMETRIOSIS AND PELVIC PAIN: What Every Woman & Her Doctor Need to Know. Paperback – Illustrated, 30 Aug. 2012

by A COOK (Author)

amazon.co.uk/STOP-ENDOMETRI...

Also the official guideline by ESHRE

eshre.eu/Guidelines-and-Leg...

[Endo_Jaded in reply to Lindle]

I second Dr Andrew Cook and his book, his newer one definitely.

Dr Cook is the reason I have progressed on the ever lengthy cycle of endometriosis care.

I’d been dismiss since I was 8 forced on to the pill at 11 and my symptoms never listened too. Even after a massive endometrioma on my ovary. I wasn’t even properly treated prior to my Lap or during the failure that was one.

It took 20+ years from first symptoms to actual diagnosis.

Dr Cook helped me regarding Lupron/Prostap, this led me to research these via the legal channels (I’m in law) and medical channels. I soon realised that this is not a drug anyone should be handed as a first menopause drug or in some cases, at all. Even Dr Cook recommend not using them.

So I fought for Synarel nasal spray to induce menopause and I am so glad I did.. even with minor side effects, I feel more balanced and while I still have pain (I have other conditions and endometriosis pain that can’t be hidden).

Also.. outsmart endometriosis or vagina problems.

Avoid any endometriosis diet books. I’ve spoken about this in a post elsewhere on here. Diet plans are a pile of poop. Each person with endometriosis is different and there is no cap that fits all, but many will try and force it.

Remember, too that a lot of older information is outdated, inaccurate and misleading. Not to mention everyone and their aunt thinks if they write a book on Endo they are an Endo specialist. But other than a real specialist (few and far between) they are not. Build your own individual plan that works for you, and by all means share and help others but this disease is definitely unique to each woman.

[Lindle in reply to Endo_Jaded]

I personally think diet is very important especially when it is to aid the liver in metabolizing hormones - so avoiding alcohol, caffeine and chemicals generally and in processed foods for example.

I'm not a fan of GnRH agonists as a treatment for endo at all and not just prostap. Nafarelin acetate works in the same way and will just mask symptoms and not endo itself. Also it should only be taken once for a max of 6 months the same as prostap so not really a long term solution.

[Vickster23]

Private Parts by Eleanor Thom - brilliant book on struggling with diagnosis & treatment and introduced me to the heaven that is an electric heat pad! Thoroughly recommend.