Follow up Results with my Gp after having Medic... - Thyroid UK

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Follow up Results with my Gp after having Medicheck privately . Any help would be amazing.

Tinkerbell_84 profile image
8 Replies

Hi All Thanks again for all your support if i didn't have this group to chat with I think I would have gone crazy.

These were my Private blood tests done 4 ish weeks ago.

CRP 0.305

Ferritin 30.8 range 30-169

Folate 12.2

B12 64.3 range 37.5-188

Vit d active 64

TSH 3.54 range 0.27-4.2

Free T3 3.8 range 3.1-6.8

Free thyroxine 12.1 range 12-22

Thyroglobulin antibodies 28.3 range 0-115

Thyroid peroxidase antibodies 25.7 range 0-After advice from this page I went back to my Gp who was absolutely useless and said none of my symptoms were thyroid related. But she said she'd run more tests. Had some very interesting results if anyone can help.

Se thyroid peroxidase ab con(antibodies I believe this is.

1260 u/ml range <60

TSH 3.9

FREE T4 11.2

250H vit D 115

FERRITIN 13UG/L RANGE 15-300UGL

SERUM FOLATE 17.1

SERUM VIT B12 440 RANGE 180-900

SERUM ELECTROLYTES

SERUM SODIUM 139 RANGE 133-146.00

Serum potassium 4.6 range 3.50-5.30

Serum creatinine 73 range 46.00-92.00

GFR calculated 77

Serum oestradiol 1604.5

LIVER FUNCTION

SERUM BILIRUBIN 7 <21.0

SERUM TOTAL PROTEIN 76 60.00-80.00

SERUM ALBUMIN 40 35-50

GLOBULIN 36 22.00-43.00

SERUM ALKALINE PHOSPHATE

71 30.00 -130.00

SERUM ALT 17 <41.00

SERUM FSH 15.7

FULL BLOOD COUNT

TOTAL WHITE CELLS 4.9 10*9/L 4.00-11.00

HAEMOGLOBIN EST 136 115-165

PLATLET COUNT 185 150.00-400.00

RED BLOOD RBC 5.13 3.80-5.501

HAEMATOCRIT 0.44 0.37-0.47

MEANS CORPS MCV 84 80.00-100.00

MCH MEAN CORP 26.5 27.00-33.00

RED BLOOD CELL DISTRIBUT WIDTH

15 11- 14.80

NEUTROPHIL 3.3 1.7-7.50

LYMPHOCYTE COUNT 1.2 1.00-4.500

MONOCYTE COUNT 0.4 0.20-0.80

EOSINOPHIL COUNT 0.1 0.00-0.40

BASOPHIL 0 0.00-0.40

NUCLEATED RED CELL COUNT 0

Sorry there is so much info on here but these are all the teat the gp ran.

I had these taken on the Friday 26th May

Since then I've listened to SlowDragon and I've been taking 4000iug vit D

1200 Vit b12 sub

1000 vit c

And due to start vit b Complex Friday.

And been taking a kefir shot every morning which is really helping.

And bran flakes every morning with extra vitamins and this has also been good.

Thanks so much any help greatly taken x

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SlowDragon profile image
SlowDragonAdministrator

Se thyroid peroxidase ab 1260 u/ml range <60

So high TPO thyroid antibodies confirms autoimmune thyroid disease also called Hashimoto’s

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high TPO and/or high TG thyroid antibodies

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis.

Both are autoimmune and generally called Hashimoto’s.

Significant minority of Hashimoto’s patients only have high TG antibodies (thyroglobulin)

20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis

In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)

Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels

Low vitamin levels affect Thyroid hormone working

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances.

Most common by far is gluten.

Dairy is second most common.

A trial of strictly gluten free diet is always worth doing

Only 5% of Hashimoto’s patients test positive for coeliac but a further 81% of Hashimoto’s patients who try gluten free diet find noticeable or significant improvement or find it’s essential

A strictly gluten free diet helps or is essential due to gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and may slowly lower TPO antibodies

While still eating high gluten diet ask GP for coeliac blood test first as per NICE Guidelines

nice.org.uk/guidance/ng20/c...

Or buy a test online, about £20

Assuming test is negative you can immediately go on strictly gluten free diet 

(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially) 

Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

drknews.com/changing-your-d...

Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease

pubmed.ncbi.nlm.nih.gov/296...

The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported

nuclmed.gr/wp/wp-content/up...

In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned

restartmed.com/hashimotos-g...

Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.

Similarly few months later consider trying dairy free too. Approx 50-60% find dairy free beneficial

With loads of vegan dairy alternatives these days it’s not as difficult as in the past

Post discussing gluten

healthunlocked.com/thyroidu...

SlowDragon profile image
SlowDragonAdministrator

FERRITIN 13UG/L RANGE 15-300UGL

Ferritin is deficient

GP should do full iron panel test for anaemia

cks.nice.org.uk/topics/anae...

Serum ferritin level is the biochemical test, which most reliably correlates with relative total body iron stores. In all people, a serum ferritin level of less than 30 micrograms/L confirms the diagnosis of iron deficiency.

Never supplement iron without doing full iron panel test for anaemia first and retest 3-4 times a year if self supplementing.

It’s possible to have low ferritin but high iron

Test early morning, only water to drink between waking and test. Avoid high iron rich dinner night before test

Stop iron supplements 5-7 days before testing

Medichecks iron panel test

medichecks.com/products/iro...

Look at increasing iron rich foods in diet

Eating iron rich foods like liver or liver pate once a week plus other red meat, pumpkin seeds and dark chocolate, plus daily orange juice or other vitamin C rich drink can help improve iron absorption

List of iron rich foods

dailyiron.net

Links about iron and ferritin

irondisorders.org/too-littl...

davidg170.sg-host.com/wp-co...

Great in-depth article on low ferritin

oatext.com/iron-deficiency-...

drhedberg.com/ferritin-hypo...

This is interesting because I have noticed that many patients with Hashimoto’s disease and hypothyroidism, start to feel worse when their ferritin drops below 80 and usually there is hair loss when it drops below 50.

healthunlocked.com/thyroidu...

Posts discussing Three Arrows as very effective supplement

Great replies from @FallingInReverse

re ferritin and Three arrows

healthunlocked.com/thyroidu......

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

Great reply by @fallinginreverse

healthunlocked.com/thyroidu...

Iron patches

healthunlocked.com/thyroidu...

Thyroid disease is as much about optimising vitamins as thyroid hormones

healthunlocked.com/thyroidu...

restartmed.com/hypothyroidi...

Post discussing just how long it can take to raise low ferritin

healthunlocked.com/thyroidu...

Iron and thyroid link

healthunlocked.com/thyroidu...

Posts discussing why important to do full iron panel test

healthunlocked.com/thyroidu...

Good iron but low ferritin

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

Chicken livers if iron is good, but ferritin low

healthunlocked.com/thyroidu...

Shellfish and Mussels are excellent source of iron

healthline.com/nutrition/he...

Iron deficiency without anaemia

healthunlocked.com/thyroidu...

Ferritin over 100 to alleviate symptoms

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

Great research article discussing similar…..ferritin over 100 often necessary

ncbi.nlm.nih.gov/pmc/articl...

Low Iron implicated in hypothyroidism

healthunlocked.com/thyroidu...

Really interesting talk on YouTube, link in reply by Humanbean discussing both iron deficiency and towards end how inflammation can also be an issue

healthunlocked.com/thyroidu...

Inflammation affecting ferritin

healthunlocked.com/thyroidu...

Updated reference ranges for top of ferritin range depending upon age

healthunlocked.com/thyroidu...

Thank you for your incredible patience while you have been awaiting the outcome of our ferritin reference range review. We conducted this with Inuvi lab, which has now changed the reference ranges to the following:

Females 18 ≤ age < 40. 30 to 180

Females 40 ≤ age < 50. 30 to 207

Females 50 ≤ age < 60. 30 to 264l

Females Age ≥ 60. 30 to 332

Males 18 ≤ age < 40 30 to 442

Males Age ≥ 40 30 to 518

The lower limits of 30 are by the NICE threshold of <30 for iron deficiency. Our review of Medichecks data has determined the upper limits. This retrospective study used a large dataset of blood test results from 25,425 healthy participants aged 18 to 97 over seven years. This is the most extensive study on ferritin reference ranges, and we hope to achieve journal publication so that these ranges can be applied more widely.

SlowDragon profile image
SlowDragonAdministrator

Folate 12.2

B12 64.3 range 37.5-188

SERUM FOLATE 17.1

SERUM VIT B12 440 RANGE 180-900

and I've been taking

1200 Vit b12 sub

And due to start vit b Complex Friday.

Which B12 have you been taking

Which B complex have you got

IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue separate B12

SlowDragon profile image
SlowDragonAdministrator

private tests

TSH 3.54 range 0.27-4.2

Free T3 3.8 range 3.1-6.8

Free thyroxine 12.1 range 12-22

GP tests

TSH 3.9

FREE T4 11.2

What’s the range on GP Ft4 test result

Is this first GP thyroid test

Retest again in 6-8 weeks

Essential to improve low vitamin levels as these tend to lower TSH (often all GP incorrectly looks at)

Low ferritin in particular tends to lower TSH

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Tinkerbell_84 profile image
Tinkerbell_84

Thank you so much for all the info SlowDragon you've been so helpful to me.

So with regards the Hashimoto's being so high so basically saying this can be may be sorted with diet. As I did cut all Dairy out last year and didn't show any effect so I've been back in dairy now since January. Regards gluten I always have issues with bloating with bread so I never eat bread haven't for years but cakes/and bran flakes I'm absolutely fine should I stop this even though I don't eat much anyway? I did stop gluten a few years ago going gluten free with my ceral and cakes and found I felt worse.

The B12 I've been taking is the Better you under the tongue.

The b complex is the complete b complex natures aid it has all 8 b vitamins. I haven't started taking this yet as you said take the B12 just on its own for a week before introducing the complex .

So my husband asked could I have Hashimoto's because I have low Ferritin?

I've also seen that covid 19 and the moderna booster can have started this off as all my problems started weeks after having this.

My Dr is calling me to discuss results on Monday I will ask for a full Iron Panel test.

Is there anything I should ask her?

Should I go see an endocrinologist or like you said get my vitamins up first.

I do have a thyroid nodule found 2 months after my covid booster could this be connected?

Yes since Friday I've started eating Red meat again I'm taking Kefir every morning and having bran flakes and eating more. And since Friday I've lost 4lbs which is madness. I've was eating less to try and lose the 10lbs I'd gained as I hadn't been able to shift it for the last year.

So sorry yes TSH 3.9 range 0.55-4.78

T4 11.2 11.5-22.70

Yes I've had about 6 TSh and T4 test with gp in the last 8 months. All my TSH are all around the 3.8-4.2 marker with same range as above .

My T4 I've fluctuate between 10.5-11.2 I had one that was 11.6 but this was tested at 11am before I found out it had to be before 9am.

Because I have Hashimoto's will I need to take medication ? I'm guessing the are going ro give me iron supplements when I speak to Dr on Monday when she calls to discuss results.

Thanks so much for all you help always 😘

SlowDragon profile image
SlowDragonAdministrator in reply to Tinkerbell_84

husband asked could I have Hashimoto's because I have low Ferritin?

More likely that you have low ferritin because you have Hashimoto’s

TSH 3.9 range 0.55-4.78

T4 11.2 11.5-22.70

With (just) below Ft4 ….you should be started on Levo.

How old are you (please add to your profile)

Standard starter dose is 50mcg unless over 65 years old

once settled on levothyroxine

Look at cutting gluten

Ideally get coeliac blood test FIRST

Then trial strictly gluten free diet

Regards gluten I always have issues with bloating with bread so I never eat bread haven't for years but cakes/and bran flakes I'm absolutely fine should I stop this even though I don't eat much anyway? I did stop gluten a few years ago going gluten free with my ceral and cakes and found I felt worse.

I've started eating Red meat again I'm taking Kefir every morning and having bran flakes and eating more. And since Friday I've lost 4lbs which is madness. I've was eating less to try and lose the 10lbs I'd gained as I hadn't been able to shift it for the last year.

Weight gain can be linked to being anaemic

Tinkerbell_84 profile image
Tinkerbell_84 in reply to SlowDragon

Hi slow dragon thanks so much again for all your insight. With regards my age I am 39 female. I will update my profile.

Arh so we though the Hashimoto's was because I had low iron. Arhhhhh.

*Ideally get coeliac blood test FIRST!!

I'm speaking to my Dr Monday so I will ask for this, but to be honest I don't eat much gluten anyway I haven't eaten bread in years I do have bran flakes in the morning . Should I still get the test even thought I don't eat much?

I do have some ibs symptoms but to be honest not very often since I cut eating bread out. I have read alot of hashimoto's people have alot of issues with this.

Mine has been alot of muscle and joint pain, heavy periods(since covid booster) 2 years ago. Irregular periods, brain fog, weight gain, always cold I go to bed in a jumper every night even in sumer. Always have cold hands and feet,puffy face ,puffy legs, irritability , get down quite bad mentally, swelling in my fingers on both hands.

So is being anemic another issue I have or does it all come down to the Hashimoto's?

I've been given details of a Gp who specialises in Hashimoto's. My gp has written me a letter to a specialist as she doesn't believe there is anything wrong with my throid but wants advice. I have found a Gp private that specialises in thyroid and in particular Hashimoto's, or do I see and endocrinologist?

Many thanks

X

SlowDragon profile image
SlowDragonAdministrator in reply to Tinkerbell_84

Mine has been alot of muscle and joint pain, heavy periods(since covid booster) 2 years ago. Irregular periods, brain fog, weight gain, always cold I go to bed in a jumper every night even in sumer. Always have cold hands and feet,puffy face ,puffy legs, irritability , get down quite bad mentally, swelling in my fingers on both hands.

So these are hypothyroid symptoms and probably been creeping up for years

Hashimoto’s is insidious. Likely had symptoms slowly increasing for 5 -10 years

Should I still get the test even thought I don't eat much?

No not worth testing

So is being anemic another issue I have or does it all come down to the Hashimoto's?

Hashimoto’s/hypothyroidism results in low stomach acid….this leads to poor nutrient absorption and low vitamin levels, especially low ferritin

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