Experiences with Anaemia | HealthUnlocked

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Anaemia

But there we are in Plymouth railway station when my GP surgery called and told me I may have Simple Anaemia. Not sure if the Lady at the office said simple or not¿?? Anyway I am booked in to see my GP when we get back.But there we are in Plymouth railway station when my GP surgery called and told me I may have Simple Anaemia. Not sure if the Lady at the office said simple or not¿?? Anyway I am booked in to see my GP when we get back.

davidcantswimin PMRGCAuk

Possible anaemia.

Hi all. I am permanently tired to the point of fatigue. I have also got permanent pain in major joints. G. P. Has told me my liver function is doing really well. Had blood tests as he thinks I might be anaemic. Waiting on results. Have been told I can't take iron tablets due to the damage they causeHi all. I am permanently tired to the point of fatigue. I have also got permanent pain in major joints. G. P. Has told me my liver function is doing really well. Had blood tests as he thinks I might be anaemic. Waiting on results. Have been told I can't take iron tablets due to the damage they cause

craigspookyin British Liver Trust

Haemolytic Aneamia

Just wondering if anyone else is suffering from the anaemia with Thyroid issues. Thank You.Just wondering if anyone else is suffering from the anaemia with Thyroid issues. Thank You.

vickilouin Thyroid UK

Dr has stopped my injections because of a blood test!!

I have neurological symptoms and he suggested increasing to monthly im injections could be possible,,, until the results came back with anaemia but b12 +2000. They now want to find out what is causing the anaemia!! Talk about frustrating I know why my b12 level was high.I have neurological symptoms and he suggested increasing to monthly im injections could be possible,,, until the results came back with anaemia but b12 +2000. They now want to find out what is causing the anaemia!! Talk about frustrating I know why my b12 level was high.

Newcastleloverin Pernicious Anaemia Society

pernicious anaemia - advice needed

If anyone can point me in the right direction with the pernicious anaemia angle I would appreciate it. Thank you.If anyone can point me in the right direction with the pernicious anaemia angle I would appreciate it. Thank you.

purple44in Thyroid UK

B12 injections will alleviate pernicious anaemia symptoms

My father was diagnosed with pernicious anaemia and treated with B12 injections. I had Schillings test (about 25 years ago) and told I had pernicious anaemia and now receive B12 injections 3 monthly. Blood results show levels are within range.My father was diagnosed with pernicious anaemia and treated with B12 injections. I had Schillings test (about 25 years ago) and told I had pernicious anaemia and now receive B12 injections 3 monthly. Blood results show levels are within range.

Bitter1957in Pernicious Anaemia Society

Gastroenterologist familiar with Autoimmune Gastritis?

Hello, Does the Pernicious Anaemia Society have a list of recommended UK gastroenterologists familiar with Autoimmune Gastritis? Or does anyone here know one they can recommend please?Hello, Does the Pernicious Anaemia Society have a list of recommended UK gastroenterologists familiar with Autoimmune Gastritis? Or does anyone here know one they can recommend please?

GastritisB12in Pernicious Anaemia Society

B12 results

I have got pernicious Anaemia. My B12 was 805 only six weeks after my last injection. My new GP has been making me stick to 12 weekly gaps. Any thoughts ThanksI have got pernicious Anaemia. My B12 was 805 only six weeks after my last injection. My new GP has been making me stick to 12 weekly gaps. Any thoughts Thanks

morgan45in Pernicious Anaemia Society

Has it been this all along?

I was diagnosed with pernicious anaemia about ten years ago. I wasn't told much about it except that my levels were low and I needed to get them up. I was given an injection or two and then refused so I got them up with supplements and it was never mentioned again.I was diagnosed with pernicious anaemia about ten years ago. I wasn't told much about it except that my levels were low and I needed to get them up. I was given an injection or two and then refused so I got them up with supplements and it was never mentioned again.

MariaMein Pernicious Anaemia Society

I think I have PA but my test results say otherwise? (& rapid increase in symptoms?)

I have had anaemia for about a year and my GP has been trying to work out what is causing it. I initially had low-ish b12 so had the b12 injections and my anaemia improved somewhat; since then I have been on the b12 pills instead (as we wondered if i had a dietary deficiency).I have had anaemia for about a year and my GP has been trying to work out what is causing it. I initially had low-ish b12 so had the b12 injections and my anaemia improved somewhat; since then I have been on the b12 pills instead (as we wondered if i had a dietary deficiency).

greatcrestedgrebein Pernicious Anaemia Society

Pernicious Anaemia-Starting B12 injections and folic acid

Hi, Seen my GP yesterday to discuss recent blood test results and my GP is starting my B12 injections on Monday. 3 a week for 2 weeks initially. My folate is also low so she has given me a 3 month supply of folic acid. I know from the very knowledgeable posters on this site that I should not take folicHi, Seen my GP yesterday to discuss recent blood test results and my GP is starting my B12 injections on Monday. 3 a week for 2 weeks initially. My folate is also low so she has given me a 3 month supply of folic acid. I know from the very knowledgeable posters on this site that I should not take folic

Fallingapart0627in Pernicious Anaemia Society

Pernicious anemia with "normal" B12, MMA, and homocysteine

Testing for antibody to intrinsic factor was positive, consistent with pernicious anaemia. After treatment with intramuscular B(12) injections (1000 μg daily for 1 week, weekly for 6 weeks, then monthly), she made a remarkable clinical recovery"Testing for antibody to intrinsic factor was positive, consistent with pernicious anaemia. After treatment with intramuscular B(12) injections (1000 μg daily for 1 week, weekly for 6 weeks, then monthly), she made a remarkable clinical recovery"

genesurfin Pernicious Anaemia Society

DNA RESULTS - out of options ?

Slightly elevated MMA (c 350-400 nmol/L with range of 0-280) is considered either: - Increased propionic acid uptake =SIBO (tested in Oct 2017- and found inconclusive: either SIBO / IBS) or - Normal variation (for me) - so not a health problem Pernicious Anaemia has not been excludedSlightly elevated MMA (c 350-400 nmol/L with range of 0-280) is considered either: - Increased propionic acid uptake =SIBO (tested in Oct 2017- and found inconclusive: either SIBO / IBS) or - Normal variation (for me) - so not a health problem Pernicious Anaemia has not been excluded

CherylclaireForum Supportin Pernicious Anaemia Society

Going to doc - advice?

Hello, I am going to my doctor to ask them to review my medical history and diagnosis of pernicious anaemia. I know doctors do sometimes miss the diagnosis so what kinds of blood tests would you suggest I ask for? Thanks in advance for any help!Hello, I am going to my doctor to ask them to review my medical history and diagnosis of pernicious anaemia. I know doctors do sometimes miss the diagnosis so what kinds of blood tests would you suggest I ask for? Thanks in advance for any help!

MariaMein Pernicious Anaemia Society

Sulphazaine and anaemia

Has anyone developed anaemia resulting from taking Sulphasazine ? This was my first treatment I was just starting week 6 of taking this drug when my hb went down to 72. My platelets and other blood work was degranged.Has anyone developed anaemia resulting from taking Sulphasazine ? This was my first treatment I was just starting week 6 of taking this drug when my hb went down to 72. My platelets and other blood work was degranged.

Getting a diagnosis for pernicious anaemia.

How to get doctor to test for pain and can i have it done while having b12 booster injections?How to get doctor to test for pain and can i have it done while having b12 booster injections?

Louise234catsin Pernicious Anaemia Society

Iron Deficiency and PA

Hi guys, just wanting to know if anyone else has iron deficiency problems along with pernicious anaemia? I struggle to gain any iron stores from taking tablets and have had two infusions previously. They work great but about 6 months later my levels are down again. I had (have?)Hi guys, just wanting to know if anyone else has iron deficiency problems along with pernicious anaemia? I struggle to gain any iron stores from taking tablets and have had two infusions previously. They work great but about 6 months later my levels are down again. I had (have?)

LauraF1in Pernicious Anaemia Society

finding a specialist

hi everyone, am pv/ jak2 positive (2007)(et from 2001) and on hu for years (2011)and recently struggling with anaemia type symptoms , but haemoglobin ok. mch & mcv low ferritin 8. a few broken bones and lots of fatigue/ clumsiness. and a recent mmelonoma. have struggled getting haematologists to addresshi everyone, am pv/ jak2 positive (2007)(et from 2001) and on hu for years (2011)and recently struggling with anaemia type symptoms , but haemoglobin ok. mch & mcv low ferritin 8. a few broken bones and lots of fatigue/ clumsiness. and a recent mmelonoma. have struggled getting haematologists to address

Lemonverbenain MPN Voice

3 in the household with Pernicious Anaemia looking to try Methylcobalamin - assistance please

We all have Pernicious Anaemia (amongst many autoimmune conditions & specialist has recommended trying Methylocbalamin . Does anyone have any advice on where to obtain please. I already buy T3 Meds from Germany but couldn't see Methylocbalamin on their list.We all have Pernicious Anaemia (amongst many autoimmune conditions & specialist has recommended trying Methylocbalamin . Does anyone have any advice on where to obtain please. I already buy T3 Meds from Germany but couldn't see Methylocbalamin on their list.

Swanagegirlin Pernicious Anaemia Society

Macrocytic anaemia ??

At my last GP visit he told me the reason he stopped my injections in March (I now self inject daily) was that the haematologist told him that he should on no account be prescribing b12 injections because I do not have macrocytic anaemia.At my last GP visit he told me the reason he stopped my injections in March (I now self inject daily) was that the haematologist told him that he should on no account be prescribing b12 injections because I do not have macrocytic anaemia.

Numbsewin Pernicious Anaemia Society