Experiences with

Anaemia

He’s gradually got weak & has dizzy spells.i suspect anaemia . I had to practically threaten GP for a blood test for him, which he’s got an appt for on Monday.I always thought that after this surgery B12 was a must!

I have a history of anaemia, low vit D and low B12 (i take igennus super B complex). I went down the route of exploring whether I had pernicious anaemia because I have a high MCH and b12 levels at the lower end. Ive been on high strength B12 supplements since April 2020.

Folate deficiency is also mentioned. https://cks.nice.org.uk/topics/anaemia-b12-folate-deficiency/diagnosis/signs-symptoms/ I like the fact there is a note that says symptoms of B12 deficiency can occur without anaemia and without low B12 levels. Could be a useful list to pass on to GPs.

I now also have it on my medical records that I refuse to be tested for B12 now I am on injections for my Pernicious Anaemia. I have been on the B12 injections since 2012.

Looking for something else, I happened across this mention of a pre-WW2 product for pernicious anaemia. Thought I'd post as a matter of possible interest.

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I found a Haematologist consultant's powerpoint presentation about the "[i]diagnosis and management of vitamin B12 disorders"[/i] which, in discussing pernicious anaemia, made reference to an association with blood group A.

He said no as they only give injections for pernicious Anaemia and to get a multi vitamin with B12 and suggested retesting in the new year. Is this the correct treatment ?

Is there an easy explanation i can give the gp tomorrow regarding the pernicious Anaemia test and a serum methylmalonic acid blood test.

Iwas diagnosed at hospital Pernicious Anaemia 1988.I had my prescription.monthly & injected myself with Cyanocobalamin..no probs. I moved to the U.S 1989 continued with the month.jabs no prob....Moved back here 5 yrs ago..but can only have every 3 mths ..have to go to clinic.

dropping MCH & MCV levels, they were previously ok but getting lower each time, I’ve had varying reasons given for this & would be grateful for anyone else’s experience before I try to speak to my consultant again I’ve been told it could be to do with periods so wondered if men also have lower levels Also anaemia

I am new here and this has probably come up before but I am trying to find out if there is a connection between PMR/GCA (they are not sure which I have) and anaemia - my Hb was 70 - I was given 2 bags of blood back in March (at start of lockdown!!)

One test said new anaemia and the other said the iron was over the top of the range. Any ideas what’s going on? Thank you 😊

During the pandemic last year I was de-diagnosed of pernicious anaemia, my levels were about 700ng/l (I had injected myself) I then didn’t have any injections and after 6 months was down to 300 ng/l.

I had to do blood tests again the start of September and my b12,folate and iron was low, everytime I search these three as low pernicious anaemia shows up B12 - 194 (211-760) Folate - 2.8 (3.8-18.2) Iron 2.7 (6.0 -33.0)

I know with pernicious anaemia, alot of you all will be taking injections, but I need further blood tests to confirm whats going on, so any recommendations would be hugely appreciated. Thanks!!!

I’m really confused about stomach acid and atrophic gastritis and pernicious anaemia.. I have both and understand from posts I’ve read on here that stomach acid is low/missing but I’ve just read the below .. is it down to higher stomach acid or not Enough ?

I had a haemorrhage and transfusion 14 years ago and it seems since then I’ve always had a problem with anaemia! Think I will make an appointment with the doctors but wanted to ask her until I can get one! Thanks

Now I have the diagnosis, does anyone think it's ok for my regular GP to keep referring to it as anaemia? Or should I give her some literature?

What would be the effects of my wife being taken off B12 injections when she has pernicious anaemia, she’s previously had two transfusion and a iron transfusion many thanks in advance. My question is because she had her b12 injection but had to have bloods done at the same time