Quote " Patients only like T3 Lyrothyroxine bec... - Thyroid UK

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Quote " Patients only like T3 Lyrothyroxine because it makes them feel better "

crystalcat10 profile image
19 Replies

From my endocrinology appointment earlier this week , and a different North East Health Trust

using the term " Health loosely ".

My response " and do you have a problem with that " . he had no come back just mumbled something about heart attack , and i wouldn't be getting any from him . this was after i told him the GP suggested it and would possibly be willing to prescribe . Heck i don't even know if i want the stuff .

in summery -

He was irritated i was even there .

Offred to solutions other than take more levothyroxine the skies the limit

Implied i wasn't taking my medication it was my fault

couldn't even tell you his name because he mumbled it twice and had no name badge

I left feeling totally defeated , i feel my life has no value to the NHS , i will never trust any Dr again with any condition . At the moment I'm down and out . trying to process the experience and figure out what next .

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19 Replies
J972 profile image
J972

😹

You literally couldn’t make it up

Jingley profile image
Jingley

Patients only like T3 Lyrothyroxine because it makes them feel better

Isn't that the whole point of taking it ???????

Sleepman profile image
Sleepman

Bonkers

A letter of complaint to hospital top person would be my next move.Describe symptoms and add your blood test results.

Ask for a written reply as to next steps and that you are considering taking legal advice

State you take levo every day at hiven time with no other meds or food.

If nothing improves with treatment, forum may advise about complaint to GMC.

Read some of your other posts showing sky high TSH snd low T3 and T4 despite very high levo dose over 200 mg.

arTistapple profile image
arTistapple

This is what we are up against. Medics who think we want to feel better?

I really want to say something extremely profane and I swear a lot more the older I've got, but I dont want to get banned or offend anyone's delicate sensibilities but shall content myself with 🤬 😡.

Where do they find these people. If you get a copy of the follow up letter to your GP would this numpty's name be on it and if so could you complain? There must be a very deep well of idiots somewhere and the NHS dredges them up to talk absolute nonsense to patients.

God the absolute cheek of wanting to feel better, the very nerve.

helvella profile image
helvellaAdministratorThyroid UK

A few questions:

Why do anti-depressants get prescribed?

Why do pain-killers, anaesthetics, etc., get prescribed?

Why do we have the right to refuse treatments that might make us feel worse? (Any treatments, of course, but this is in context.)

tattybogle profile image
tattybogle

Street drugs that 'feel good' are much easier to get hold of than Liothyronine is .

if 'feelgood' effect was all people were after , very few of them would bother putting themselves through the emotional and physical grinding mill of NHS endocrinology to try and get prescribed T3 .

and if this muppet really thinks T3 is so much 'fun', have they never wondered why there is absolutely zero market for it among those who illegally use MDMA or THC for enjoyment ? ..... it's because it's no more 'fun' than drinking 6 expresso's in a sauna would be , that's why.

you would struggle to give it away to anyone looking for 'feelgood/ fun' ... it would be like going to a cocktail bar and offering shots of benylin ... useful if you need it , and will make you feel better ... but not 'fun' to use if you don't need it .

crystalcat10 profile image
crystalcat10 in reply to tattybogle

this so right , i wish you could have been in there with me

Sparklingsunshine profile image
Sparklingsunshine in reply to tattybogle

The only place I've seen T3 used outside of a medical need is by bodybuilders who are trying to cut bodyfat. And even they aren't doing it for the high.

DippyDame profile image
DippyDame

" Patients only like T3 Lyrothyroxine because it makes them feel better "

Hells bells! This is shocking!

How dare patients aim to feel better!!

What are undergrad medics taught.....they are clueless!

I, for one, would now be dead without T3...fact!

Stick that in your pipe and smoke it Dr XYZ!!!

I've had to self source T3 and to learn how to use it appropriately

It just gets worse!!

Complain!

Can you post any recent results..

T3 is key and I suspect yours is on the floor

For good health every cell in the body must be flooded with T3 by way of an adequate and constant supply

You may be down....but here you are not out!!

The collective thyroid knowledge and experience here is far greater than that of any medic

First....a full thyroid test to include TSH, FT4, FT3, vit D, vit B12, folate, ferritin and if not already checked thyroid antibodies TPO and Tg

thyroiduk.org/testing/priva...

Just ask!

crystalcat10 profile image
crystalcat10 in reply to DippyDame

previous post has full results

TSH 40.4 ( 0.35-5.5)

T4 12 (9.0-23.0)

T3 2.7 (3.5 -6.5)

DippyDame profile image
DippyDame in reply to crystalcat10

Good grief, if that test was carried out following advised protocol then these labs are abysmal...you must be feeling miserable.

Just checked your previous post....

has many patients taking as much as 500mcg

Hard to believe.....they should be on T3. Excess levo is not advisable among other issues it can increase cancer risk

You absolutely need to start complaining and/or self medicating.

TiggerMe profile image
TiggerMe

I can't word it better than all the others.... take from this that you have been failed (along with most of us here) and are now empowered to treat yourself as it is by far the best option, you know what you need, you've done the research, we are all here to help 🤗

Classic   tattybogle T3 is certainly hitting the spot there😁

As Tigger says you've got nothing to lose in treating yourself, you've tried the good patient route and they've failed you.

You owe them nothing but you owe it to yourself to feel better if possible. Lots of us source T3 and your very regrettable experience demonstrates why. In a weird way I feel empowered by your experience although I'm extremely sorry you had to go through it.

Because if any doctor in the future challenges me about why I take T3 I shall simply reply" because I wanted to feel better" . Personally I've wasted enough time feeling crap.

Also am I right in thinking the NE area is the worst for getting T3?

crystalcat10 profile image
crystalcat10 in reply to Sparklingsunshine

you are correct , a certain misogynistic Professor is based up here and unfortunately has massive influence not only locally but nationally . But us poor North Easterners appear to bear the brunt as if we hadn't been dealt a bad enough wrap to begin with

Sparklingsunshine profile image
Sparklingsunshine in reply to crystalcat10

I thought I remembered some forum members mentioning this person and I'm sure it was in the NE. Well if that sort of pig headedness is what you are facing its even more grist to the mill of getting your own T3 and figuratively and literally flipping the bird to him 🖕

sparkly profile image
sparkly

I have actually had this said to me 3 times by 3 different medics over the years that "anyone who takes t3 will feel good" It does make you think that the medical profession think that t3 is a bit of a recreational drug. Not a replacement hormone that your body needs to be well and function because you're not able to produce it yourself 🤦🏼‍♀️

Sparklingsunshine profile image
Sparklingsunshine in reply to sparkly

Its pretty worrying that they think a hormone that normal healthy people produce effortlessly is the same as booze or cannabis. I wonder if they tell Addison's patients the same about Hydrocortisone or Diabetics about insulin.

You do sometimes wish these doctors could experience what its like to be hypo and perhaps develop a bit of empathy. Their lack of both knowledge and compassion is concerning.

crystalcat10 profile image
crystalcat10

i would like to thank you all for the responses to my post

i had been feeling very down after the experience , I'm feeling very supported by you all .

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