Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,668 members • 8,205 posts

All posts for August 2020

Ibrance and Berberine combo

Hello, I just finished my first three weeks of Ibrance. My ANC IS AT .4. Yikes that’s low. After a week it only went up to .5. Does anyone have any suggestions...

Hello, I just finished my first three weeks of Ibrance. My ANC IS AT .4. Yikes t...

Canchondo

•4 years ago

3 Replies

Quantum Clinic in Lewes

Has anyone been to the Quantum Clinic in Lewes - particularly with bone metastasis? Kate x

Has anyone been to the Quantum Clinic in Lewes - particularly with bone metastas...

Olha

•4 years ago

Be the first to reply

In praise of Ibrance and Letrozole

My initial right-breast cancer appeared (grew very quickly to the size of a grapefruit) in 1992. I had 6 courses of chemo, very extensive mastectomy, 34...

My initial right-breast cancer appeared (grew very quickly to the size of a grap...

seiler

•4 years ago

28 Replies

Want to take advantage of all our features? Just log in!

Mixed news

I haven't written a post in some time. I always want to be uplifting when I do. In earlier posts, I mentioned my concern for my daughter. My cancer returned...

I haven't written a post in some time. I always want to be uplifting when I do....

AuntMildred

•4 years ago

55 Replies

Starting Ibrance

Is anyone else afraid of starting on Ibrance because of the side effect on your immune system? Has anyone tried it and gone off it and the cancer did not get...

Is anyone else afraid of starting on Ibrance because of the side effect on your ...

hopefulinadks

•4 years ago

52 Replies

COC Protocol

Has anyone tried the COC Protocol for breast cancer? They prescribe repurposed combinations of existing licensed medications that are used to treat conditions...

Has anyone tried the COC Protocol for breast cancer? They prescribe repurposed c...

hopefulinadks

•4 years ago

12 Replies

new memeber

Hi My name is Anita .I am 52 years old and was diagnoses with stage 4 Jan 2020. I take Ibrance and Letrozole with 2 shots once a month since February. I feel...

Hi My name is Anita .I am 52 years old and was diagnoses with stage 4 Jan 2020. ...

Anitafazz

•4 years ago

25 Replies

GOOD NEWS BUT STILL TREMBLING!

Good News From the Scans. Still Trembling Internally Last week was the week of scans, consultations, a continuum of lymphedema therapy and anxiety about all...

Good News From the Scans. Still Trembling Internally Last week was the week of ...

jersey-jazz

•4 years ago

43 Replies

Letrozole Palbociclib scalp pain hair loss

Burning tender scalp, feels like a chemical burn. Major sudden hair loss after 7 months. I am on Letrozole & Palbociclib. Anyone with this experience? What...

Burning tender scalp, feels like a chemical burn. Major sudden hair loss after 7...

WaveCatcher

•4 years ago

6 Replies

Barbs vision

I’ve developed double vision for the last few days so reluctantly went to emergency eye hospital this morning...doctor wants a brain mri scan and I’m scared to...

I’ve developed double vision for the last few days so reluctantly went to emerge...

Barbteeth

•4 years ago

72 Replies

Xeloda hand/foot issues

Any tips or advice for hand/ foot issues on xeloda? Other than lowering dose.

highhopes1

•4 years ago

11 Replies

To be on Ibrance or not?

To be on Ibranceor not? I moved from CA to PA and last Nov. had a pet scan and it was cancer free, clear. I was on Ibrance and letrozole for two years as my...

To be on Ibranceor not? I moved from CA to PA and last Nov. had a pet scan and i...

sujata2

•4 years ago

42 Replies

Starting Ibrance soon

I’ll be starting Ibrance in 2 weeks and I’ve read some instances where the tumor has gotten smaller. I’m wondering if anyone has improved enough to go off the...

I’ll be starting Ibrance in 2 weeks and I’ve read some instances where the tumor...

Ilovehorses

•4 years ago

49 Replies

Pain relief

Hi ladies I’ve been in touch with my GP who is helping me with pain relief Having tried morphine slow release she tried me on a low dose of oxycodone with fast...

Hi ladies I’ve been in touch with my GP who is helping me with pain relief Havin...

Barbteeth

•4 years ago

30 Replies

Markers

Well I got my 3rd month markers in the end and after the fourth month I'm having a scan. The results are CA12.5 = 14 down from 17, but started at 42, CA15.3...

Well I got my 3rd month markers in the end and after the fourth month I'm having...

Beryl71

•4 years ago

5 Replies

Moving hospital and changing oncologist.

Hi, Is anyone having treatment at The North Devon District hospital? I’m heading to view a property in that area but I’m concerned about having to change...

Hi, Is anyone having treatment at The North Devon District hospital? I’m head...

Blakeysangel

•4 years ago

4 Replies

Verenzio

Anybody on Verenzio. If so, how are you doing?

Selmac

•4 years ago

11 Replies

Period

Typical now they have taken me off hormone drugs think I'm starting a period

Kiera49

•4 years ago

10 Replies

Help Patients by Sharing Your Voice!

Greetings, Please help us gather data on your MBC treatment experience by taking a short survey. I am involved with the Patient-Centered Dosing Initiative...

Greetings, Please help us gather data on your MBC treatment experience by taking...

Bestbird

•4 years ago

37 Replies

Scan time

Good morning ladies! I’ve not posted in awhile, but I have a scan tomorrow morning and I’m asking for prayers and strength! I hope everyone is staying safe...

Good morning ladies! I’ve not posted in awhile, but I have a scan tomorrow morni...

kduck

•4 years ago

51 Replies

dog collar and matching leash

Hi, I just have to tell you all about the fabulous leash and collar we got Wally. He is where my picture should be, but he doesn't have the new collar on in...

Hi, I just have to tell you all about the fabulous leash and collar we got Wally...

hdhonda

•4 years ago

4 Replies

One year down - PET scan results

After getting sky-high Tumor markers despite CT scans of my chest showing marked improvement, my doc ordered a PET scan. I just have to say he is the BEST -...

After getting sky-high Tumor markers despite CT scans of my chest showing marked...

Iwasborntodothis

•4 years ago

21 Replies

Epidural tumor

Hi there I have epidural tumor at level T5-T6 showing mild cord compression. I understand it has been ‘stable’ for a year. They are recommending radiation...

Hi there I have epidural tumor at level T5-T6 showing mild cord compression. I...

Joey1965

•4 years ago

14 Replies

Eribulin (Halaven)

Hello everyone. I’ve just spoken to my oncologist about the results of my liver biopsy and there is no change in the receptors, it’s still hormone positive and...

Hello everyone. I’ve just spoken to my oncologist about the results of my liver ...

Julie2233

•4 years ago

21 Replies

Adriamycin anyone?

So after Ibrance, Taxol, Fulvestrant, Avastin (still taking Fulvestrant and Denosumab), Xeloda. It looks like my next port of call is either more Taxol (which...

So after Ibrance, Taxol, Fulvestrant, Avastin (still taking Fulvestrant and Deno...

BangorBelle

•4 years ago

24 Replies

First cycle xeloda completed

First cycle of xeloda completed now glad I'm on a break, apart from fatigue and sickness had no other symptoms, but sickness was hard to cope with

First cycle of xeloda completed now glad I'm on a break, apart from fatigue and ...

Kiera49

•4 years ago

16 Replies

Juicing, supplements, chemo

Does anyone who is currently on chemo do juicing and/ or take supplements? Wondering how they help and/or interact.- what advice or cautions were given by...

Does anyone who is currently on chemo do juicing and/ or take supplements? Wond...

NamasteLove

•4 years ago

4 Replies

Has anyone on ibrance have to stop working?

I am a nurse and 60 years old and have good days and bad days. The bad days are so weak and sleep 18 hours . I have been out of work and am deciding not to go...

I am a nurse and 60 years old and have good days and bad days. The bad days are ...

Mcangel11

•4 years ago

23 Replies

Giving Back

Hello everyone, I’ve been regularly visiting this board for about 18 months and received some wonderful responses when I first posted. I wasn’t in the best...

Hello everyone, I’ve been regularly visiting this board for about 18 months and ...

stardust1965

•4 years ago

32 Replies

PET scan results not good. Take note of my symptoms

Hello ladies. My PET scan results came back and they are grim. I have brain lesions, my lung nodules have grown in size and intensity, a spot on my vertebrae...

Hello ladies. My PET scan results came back and they are grim. I have brain lesi...

MyMiracle13

•4 years ago

117 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for August 2020

Ibrance and Berberine combo

Quantum Clinic in Lewes

In praise of Ibrance and Letrozole

Mixed news

Starting Ibrance

COC Protocol

new memeber

GOOD NEWS BUT STILL TREMBLING!

Letrozole Palbociclib scalp pain hair loss

Barbs vision

Xeloda hand/foot issues

To be on Ibrance or not?

Starting Ibrance soon

Pain relief

Markers

Moving hospital and changing oncologist.

Verenzio

Period

Help Patients by Sharing Your Voice!

Scan time

dog collar and matching leash

One year down - PET scan results

Epidural tumor

Eribulin (Halaven)

Adriamycin anyone?

First cycle xeloda completed

Juicing, supplements, chemo

Has anyone on ibrance have to stop working?

Giving Back

PET scan results not good. Take note of my symptoms

Search posts

Pinned Posts

Latest poll

Has this community positively impacted your breast cancer journey? If yes, please describe how in the replies below

Topics

Archive