Is anyone else afraid of starting on Ibrance because of the side effect on your immune system? Has anyone tried it and gone off it and the cancer did not get worse?
Starting Ibrance: Is anyone else afraid... - SHARE Metastatic ...
Starting Ibrance
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hopefulinadks
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Have been using Ibrance and Letrozeole for past four months! So far no side effects! Tumor went from 5.4 to 2 in 21 days, but just slight decrease in size of lymph nodes. Hoping for the best-----only time will tell! Grateful I am not in pain. I wish you the very best in your journey with this disease! I take it one day at a time, do what I can to help myself and what doctors suggest! Be blessed!
Thank you for your response!!! May I ask what dosage you are on and if you have side effects? I appreciate your kind words and positive feedback! I am currently only on Fulvestrant and have been terrified of Ibrance and lowering white blood cell count, hair falling out (again)etc. Glad it is working so well for you!
I just noticed that you have no side effects so that answers that question!
I also got the thinning of the hair but I didn't notice it. I would check the shower drain and nothing more than usual so I was glad that I was not losing hair until two weeks later when I got the energy to vacuum my rug and OMG...(I have no kids or pets) and there was so much hair in the vacuum and I was shocked. So it falls out but it wasn't noticeable to me on my head.
But I read tips and it was suggested that I got silk pillowcases to sleep on because they are less harsh on your hair when sleeping that regular pillowcases so I bought silk ones. I did not use the hairdryer except if I was going out. But I was only on it for three months. So maybe try buying silk pillowcases and not all have the same side effects. Everybody has different. We have other medical issues or may be on other medication so for the most part, you can only find out how it affected other people, but you may experience no or different side effects. I was on 125 mgs. of Ibrance I believe but I had no idea that my onco could have lowered the dosage but I hated it. My week off I was so sick while others felt the same or some felt even better.
Thank you so much for responding, I have heard about the silk pillowcases but haven't tried them. My hair seems to be thinning a little on the Fulvestrant already. I am learning so much listening to you folks! I am still not sure what to do but I think my upcoming scans may force me to try it. It's comforting to hear from people like you who offer tips and share your experiences. Every one does seem to have a different view. I guess I will find out when the time comes. God Bless and keep fighting!
If I may ask, what did you take after you went off the 3 months of Ibrance? Exploring options although every drug seems to have the same awful possible side effects.
I read further down this page that you are on Verzenio. 
I was on ibrance and had allergic reaction to it the whole time. Docs kept me on it until they became hives and that was it after 9 months.
Francesca, can you tell me what the allergic reaction was. I still have a horrible breakout on my forehead and face. It does get better some days but hasn’t gone away in quite a while. Some days it itches, but most days it’s just really broken out and dry.
I had rash all over my belly which I was on an antihistamine for but then they became hive like. Since it was questionable if it was doing any good dr decided to stop it
Everyone is different and there is no one size fits all
I was upset because of reading people on it for years. I have to go by what my body tells me
Hi Francesca10,
I came across your post today.
I am on Ibrance for 10 months. For the past 2 months i had my face breakout & forehead in a dermatitis like manner, itchy, broken, dry, micro pimple like rash & larger blocked pores (sorry if that's too much info ). I never had any history of skin problems even as a teenager.
I realised that my scalp had been very tender for the same period of time that my face had been suffering.
I read that the Ibrance irritates the hair follicles. I had lost all body hair & sadly a lot of hair from my scalp too. I am POSITIVE that my face was reacting to the Ibrance.
I never used a lot of cosmetic products & the same ones for years, but i stopped everything.
I used a glycolic face cleanser once ( Dr Lewins) to help remove old skin gently.
After that...
1. Used coconut oil to cleanse with cool very clean face wash cloths & water. The coconut oil also absorbs into old skin to effectively remove it from your face ( like olive oil does for cradle cap ).
2. Then i rubbed in most of a cod liver oil capsule ( our family skin cure all for preventing chicken pox scars & healing wounds & diaper rash ) in the morning & at night ( with towel on my pillow for any smell 😄).
3. wore no make up.
4. misted my face with water & rosewater
( food grade..to smell nice & keep the skin moist)
5. Used a very bland moisturiser to coat over the skin, sealing the moisture in. ( Mine was Kora, almost sorbolene cream like. Today i swapped to a Jurlique rose serum ...feeling great.)
My skin 5 days later is 85% healed. It hasn't looked this good for months, so i am pretty happy. I would sun bathe my face if it was sunny. I really see this resolving itself in a few more days.
Hope you are feeling good soon.🙂
* i wanted to note that i did not have a bacterial infection. Always check with your pharmacist or g.p.
That’s quite the regimen. I don’t think I’m that disciplined, but good for you. I’ll refer back to this if I want to try it. Thank you for posting.
I am sorry that you had a difficult time with Ibrance. Thank you for sharing your experience. This seems to be a harder decision for me than a lot of folks out there so I appreciate all of the input and information. God Bless.
You are not the only one who has these fears!! I joined this group a couple weeks ago because I too have fears of starting Ibrance It’s been very reassuring to hear that some have barely any side effects or minimal. I’ve learned that these drugs seem to work on all of us differently so I have agreed to give the Ibrance a try but if it gives me side effects that ruin my quality of life I’m going to ask for something different. My dr first put me on anastrozole and I felt completely exhausted and my feet hurt terribly, along with extreme hot flashes. When he gave me Letrazole to take instead I can honestly say I don’t seem to have any side effects! Yet there are others on here who had problems with Letrazole but no problems with anastrozole. It’s taken me a while to reach the point where I’m willing to give Ibrance a try and I’d be lying if I didn’t say I’m still a bit afraid. You have taken a wise first step to making your decision by joining this group. Keep us updated on what you decide and how you make out. I’m due to start the Ibrance the first week of September (Giving me time to recover from radiation, though I feel totally fine!). Take care and do your research!! Knowledge is power!
You mirror my feelings in your comments. I don't want to live with uncomfortable or debilitating side effects and lose my hair again . I will have to eventually give it a try I think. I have scans coming up and that will make up my mind for me. It seems we all have to try something eventually. I am not sure that there are really any drugs out there without side effects. As of now, I am doing stereotactic body Radiosurgery on the lesions and Fulvestrant. I will keep you posted on the Ibrance and please let us know how Ibrance works for you. That is probably around the same time I would be trying it. Best of luck and care to you. I am relieved to hear someone express the same concerns that I have.
Francesca10 , I have the same question for you that I asked Kearnan. I am wondering what treatment you were given after you went off the Ibrance. I have an Oncologist appointment Monday and I would like to ask about all the possibilities and why they start with Ibrance.
I’ve been on Ibrance and Letrozole for a little over a year, 14 cycles. I started on 125 mg but had to drop straight to 75 mg due to low neutrophils. From what I understand, they’re required start you on 125 mg and then drop as needed. I may be wrong on that.
Thank you. That is great information. I learned from you and others that I can at least lower the dose. I hope the 75 mg works for you!
I'm starting ibrance at 75 mg my doctor wanted me to start on a hundred mg but because I won't do it she said that she can start me at 75 because I'm afraid of side effects
I’m glad your doc listened to you. I did start on 125 first, but they immediately knew I couldn’t stay there. If your neutrophils and side effects are good on 75, maybe you could increase it. Good luck.
Thank you!
Hi Hopefulinadks!
I've been on Ibrance 125 for more than five years, no problems at all aside from fatigue.
Since this drug basically doubles the amount of time before progression of whatever drug it's paired with (e.g. Letrozole, Faslodex...), I pretty much brush aside the fatigue and consider it a small price to pay for time on this planet/good quality of life.
I know there are some women here who have very severe cases of neutropenia (sp), e.g. below 500, but they are the exception, not the rule. My neutrophil counts have remained basically between 500 and 1,000 (something like "grade 3 neutropenia") the entire time I've been on it and I've not gotten sick once, not even a cold.
My doc said that it appears that the Ibrance-induced neutropenia seems not to compromise the immune system as much as one would think given the blood counts. This made sense to me, in light of my personal experience.
Re: going off it/cancer possibly not getting worse, I guess my honest question is, why would you consider this at this point? If you read posts on this board you'll see that many, many of us have been taking Ibrance for a long time and are fine. I, for one, am so grateful it exists and is available to me. If you try it and you have serious issues, you can try reducing dosage, which seems to resolve most problems people have. If you STILL have problems, then I guess it'd be a good idea to move on to the next treatment?
I'm sure it's stressful to begin a new treatment and read all of the possible side-effects beforehand...but it's unlikely you'll have any serious issues...
Best,
Lynn
Kdiet• in reply to
My experience has been similar to yours. I justchanged oncologists. My new doctor is a hematologist and an oncologist and he is more knowledgeable and more comfortable with my lower neutrophil levels. He took me back up to 125mg as that is the dosage the scientists did the clinical trials at - not 100mg or 75mg.
kearnan• in reply to
Wow five years on 125 mg. of Ibrance. That drug kicked my butt. I had to take like two naps per day and the fatigue was harsh and my week off I was sick I could barely get out of bed. It happened the week off for the three months I was on it was my worst. I would start to get depressed knowing the off week was coming up. But I was new to this, and had not found a forum board yet, so I had no idea that the dosage could be lowered at all. The bad thing was my onco seemed surprised that I felt so sick on my week off. Then when I found this forum board, I see there were others like me that got very sick on their week off, others felt the same on or off and others felt even better. So I learned we all experience different side effects. What upset me was that all my onco said was that food would taste different. She did not mention at all about my week off and I was not prepared to have food in the house, had to cancel all plans I had. God bless that you are on that dosage for five years. I am now on Verzenio, at the lowest dosage at 50 mgs. twice per day with no week off and I rarely, have to take naps, and feel somewhat "normal." Maybe if she had lowered the dosage, but she never mentioned it and it was not until I joined a forum board that I found out many oncos had lowered the dosage for their patients.
hopefulinadks• in reply to
Thank you for sharing your positive experience. It gives me hope that perhaps I will be one of the lucky ones if I decide to go with Ibrance. To be honest I think It's just a matter of when not if unless my upcoming scans are good which I am doubtful will happen because my cancer markers are up. I will keep a positive attitude and pray for good results!
Hi hopeful. I’m on my 7th month of Ibrance/ exemestane. 125 dose. I had a bit of a physical adjustment to the drugs... fatigue, stomach issues, mild case of shingles. Now, four months later I am feeling good— nausea is gone, no noticeable side effects at all. I find the tablets so much better for my stomach than the capsules. I need more sleep than I used to— but overall having success and feeling pretty darn good. I wish you the very best!
Thank you. Once again I am learning from you folks. Tablets seem better than capsules. I will be bringing all of this information with me when I see my oncologist next week, I am also grateful to know that just because it starts out bad, it could get better.
I’ve had quite a bit of exhaustion but that may be due to my age as well(73). But as far as going off it and going back on, I’ve heard that once you go off, they won’t put you back on it. Insurance might be a factor in that and as it is very expensive, I wouldn’t want to go back on it and pay the full price! You might ask your oncologist about their policy on it.
I'm 71 and have had no side effects. Have more energy that before my treatment started.
It’s good to hear that it doesn’t affect everyone the same way! I also have a good amount of bone pain so opioids could be part of my exhaustion.
Thanks for the info!
Hi!
I have been on it for 5 months and have had no side effects other than low white blood cells.
Most of us have those with ibrance, which is why each cycle is only 21 days. Our bodies then recover in the following week and for some like me, it takes another week before wbcs back to normal again and I begin the next cycle. My oncologist has never worried about the drop each month and says it’s not dangerous.
I feel so blessed not to have had any of the side effects mentioned by Pfizer. I too was terrified to begin. As someone else mentioned, I take it one day at a time and in general feel well on my meds. Life’s a bit harder now with Covid hampering our movements but I’m very careful; don’t go shopping myself and only go out when necessary and for taking daily walks. When visiting with friends and family, it’s outdoors and at a distance of 6 ft. These are guidelines given by my oncology Nurse Practitioner.
Once you begin ibrance, do drink lots of water to flush your organs. Another tip from my nurse.
Take care and let us know how you’re getting on. Big virtual hugs, Kathleen
Drinking lots of water with this medication is a wonderful tip and greatly appreciated. I will definitely keep that in mind. It is also nice to hear that someone else was afraid to get on the "Ibrance wagon". I almost feel that once I start, I can't go back. I hope when I do, I have a similar experience with mild side effects. Thank you for that and the virtual hugs!
I have tolerated Ibrance (125mg ) / Letrozole well for over 2 1/2 years with a few side effects eg ., hair thinning ,but not that noticeable with a good hairstyle , and some tiredness at times in my cycle , but I have adapted to this and rest when feeling more tired . It has been a good treatment for me . And there is lots of advice from the ladies on here on how to cope with any side effects .
My immune system has coped well with it ( I was even allowed a breast reduction op while on it !) . With Covid to contend with now , I just follow all the distancing / hygiene guidelines , and avoid groups of people , but I do get out and about , I am just more cautious .
As to coming off it , most of us who it has worked for , stay on it indefinitely . If it stops working , then there are other treatments your onc can prescribe . I hope I can get much longer on this protocol as I have been able to lead a fairly normal life ... and have even started a new hobby - cycling on an e- bike !
Wish you well with your treatment , but do consider Ibrance ... the dose can be lowered for you if it isn’t being tolerated at the higher levels , or you can consider a change of treatment if you find it doesn’t suit you , having tried it . Take care ! x
I've been on Ibrance and letrozole four months with no side effects and tumour markers are down. Scan next month will hopefully confirm it's working. Good luck.
It takes a while for it to work. Give it time. My inc says the hormonal treatments are slow but do work.
We are all very individual in our reactions to meds. I find that Ibrance is pretty tolerable. Every cycle is different. The fatigue gets me and I am losing hair.
But, you may not experience all the side effects
My platelet count goes down as does my wbc, but recovers in 2 weeks. Your onc can play with your schedule and dosage. I wish you well!
Dear Hope,
Ibrance does cause me to be tired, but I am grateful that it works on me and is easier than I imagine IV chemo to be. I dread the day it no longer works on me. Being 74, I don't have to deal with school age children or working though. We are all different and our cancer and circumstances are different. I wish you the best and hope you find one that will be easy for you to continue your current lifestyle. Blessings, Hannah
I am still trying to adjust to Ibrance. The only side affect is my immune system. Have been trying different dosages and now am down to 75 mgs. and trying two weeks on and one week off. I haven't been on it long enough to know about other side affects. It took a month to get my immune system up but this time it only took two weeks. So at least I am tolerating the dosage better.
Cheers, June S.
I've been on Ibrance since mar 2019 and doing well. I am currently on 75mg after reducing it from 100mg after the first year due to low neutrophils. The first few months were the hardest with side effects but most are gone. It is worth sticking with it. I have had some hair thinning but that seems to have stopped. You learn to manage the fatigue. Please don't let the side effects scare you away. Most are manageable or temporary. My neutrophils hover around 800-1000 and I have only had 1 cold during treatment.
I have been on ibrance for approx 24 cycles & Fulvestrant injections . Started at 125mg then 100mg and starting 75mg next week . The lower dosage is partially due to low neutrophils , fatigue , and me wanting to be more active ( I am 56 )hoping the lower dosage will help . BUT it is working and keeping the cancer beast at no progression this entire time .
I have had some hair thinning off and on but it has improved and my hair has changed texture ( but it is only hair ) .
I have been on Ibrance now for over 4 years-- 51 cycles. I started on 125mg but within a month my counts were so low we decided to drop it to 100 , where I have been ever since. I continue to have low wbc counts and fatigue, but nothing I can't live with. I lose a bit of hair during certain phases of each cycle but still have a full head. I started Ibrance with Exemestane .. then switched to letrozole and finally now am on it with fulvestrant. Hoping I can keep this going for a long time. Good luck as you begin this process. It means changes and some tougher days but if it works and keeps the cancer at bay , that's the most important thing. God bless.
I was originally on Ibrance as my first drug. I hated it. By the third week, I felt that fatigue and since I never had chemo or radiation I was not prepared for it. My week off I could not even get out of bed. Long story a bit shorter, I had an infection in my leg (an inside boil in the groin area) that is very painful and makes it hard to walk. I had this precancer and twice wound up in emergency room. It always came back but the minute I would start to feel it, I would go to my primary and get antibiotics and then it would go away. Until I was on Ibrance and this time it was not going away. My onco gave me antibiotics (and kept me on Ibrance and it was still not working, meanwhile, I could barely walk bc the friction of my thighs made the pain unbearable. Then she had me on it for another two weeks and took me off the Ibrance. But because my immune system was then weakened it did not work. I had to have invasive surgery which basically they cut out the tunnels in my thigh and I was told it would be an "excruciatingly painful" recovery. And it was since I had large gaping holes in my upper thigh.
What should have been a month recovery wound up being almost four months. Although I continued to get my falsodex injections, I was off the Ibrance for almost three full months.
My onco decided that I was not going to stay on the Ibrance anymore bc of how long my recovery took (and it never really full healed). So before that I have to have a scan again, etc.
They discovered a NEW tumor in my breast that happened during the three months I was off the Ibrance. I had to have mammogram again and then biopsies again and I was confused. I had no idea that you could have two different kinds of breast cancer in one breast. So my onco said if the new tumor turned out to be a different kind of breast cancer, that would cause a whole new treatment plan. Luckily, the second tumor was the same type of cancer as my original diagnosis so I continued then with Vernezio (in place of the Ibrance).
So yes, three months off the Ibrance and a second cancer tumor grew behind my original one. I was grateful that it was the same type (imagine that
Kearnan, you have been through the ringer. I had bilateral breast cancer with different cancers in each breast at the same time so I imagine you probably could have two in the same breast. It sounds like going off the Ibrance did make the cancer come back. Makes you wonder if it is just keeping it at bay and if going off it causes cancer to be more aggressive. Hope the Vernezio gives you better results. I am not even sure what that drug is. I image it's in the same class as Ibrance. My oncologist has never mentioned anything but Ibrance.
Verzenio was the 2nd line of treatment that it seems most oncos use, at least for my estrogen breast cancer. I could not do the higher doses of Verzenio which are 150 and 100 mgs. per day. Verzenio is taken twice a day with no breaks. The higher doses caused me (and is a known side effect) severe diarrhea. I am on the lowest dosage now which is 50 mgs. twice per day. The difference for me is so vast. I rarely need naps (On Ibrance at least twice a day) and I basically feel normal. I do not have the hair loss (although it was not too bad on Ibrance, I was losing hair, thinning out) so I don't have that on the Verzenio. I am so much happier on the Verzenio. But my onco never suggested (and this was before I joined a forum board so I knew so little about breast cancer) that she could have lowered the dosage. But I hated the Ibrance but who knows if at a lower dose, I might have done better.
The only sure thing I learned was that everyone has different and varied side effects from the same dosage and medication so hard to go by what one person may say. There were women that felt the same on Ibrance on their week off and their were women that felt better on their week off and then there were the ones like me who felt very sick on their week off. I think my onco got nervous about how long the holes in my leg took to heal. Even when I went back to her and she looked she was like OMG...you still have a big hole. (She was the one who recommended the surgeon to me and I think she realized what a mistake that was after the surgery and recovery period.) I told her if I had the time I would have sued him in Court but that I don't have the time for that now.
I am on ibrance and letrozole since June, 2019. I had to drop my dosage to 75 because my blood went so low . Also am prone to UTIs now. I am going on antibiotics for 6 months. Also hair loss. I am just happy that my cancer is not progressing so far.
Hope all goes well for you
Theresa
Thank you Theresa for taking the time to reply. I wish you the very very best on your journey and hope that you stay well and that the antibiotics do the job. It is wonderful that your cancer is not progressing .
Thank you for sharing your personal experience. I will keep an open mind, You all are so helpful! I am happy that Ibrance has been so good to you. God Bless and here's to continued success for you!
Hi Hopefulinadks,
I was TERRIFIED of starting on Ibrance also. I put it off for a month until i felt emotionally ready to cope with any side effects.
I have been on Ibrance for 10 months with Arimadex & now Letrozole. My mass was over 16cm at diagnosis & grew aggressively while on I.V chemo. I am currently considered disease stable & have had great results on Ibrance.
●Immune system history & VICTORY even on Ibrance.
I have not been ill once since diagnosis . I was dreadfully run down, sleep deprived, under fed,stressed out & the most anemic person my oncologists had encountered - even on iron transfusions. ( sad but true)
I attribute my ability to NOT GET ANY COLD OR FLU despite my poor health for YEARS entirely to COD LIVER OIL.😄
•Prior to Cod liver oil I contracted every single cold & flu going, running endlessly into each other & ongoing.
As to the immune system; I have found that since i have been taking cod liver oil ( not de-natured * - worth reading on WHY you shouldn't use denatured C.L.O ) & vitamin D3 supplements ( i was D deficent, live in a climate & latitude that prevents natural D3 accumulation from sunshine exposure.)
- You need to take sufficient dose for it to be measurable in your blood serum. My oncologist prescibed 4000IU. I now take 3000IU most days as ongoing .
- It takes MONTHS for your body to restore a deficiency if you have one, a few capsules will not restore your body's needs.
- interesting FACT: Viruses engage in taking down YOUR vitamin D receptors when they invade your body. They are ACTIVELY trying to prevent you from being able to defend yourself by limiting your ability to intake more D3. You have only your reserves to fall back upon ( if you have any stored) which will then become depleted as your body uses what it needs daily, let alone for defence .
Under STRESS from life & Cancer YOUR body chews through B vitamins. These are SUPER important to MAINTAINING GOOD HEALTH & STRONG DEFENCES. ( Dietary sources are best, there are a range of supplements but you do need a sufficient dose 2 x a day to allow for maximum absorption. Brewer's Yeast supplements & Yeast flakes are great in salads & most things kind of like a flavour enhancer that is good for you.)
Zinc & Copper are necessary for all wound healing & supporting your immune system.
Copper, it has been suggested can help with healing nerve damage. I have been using it to see if it will help with my Palitaxel induced neuropathy. ( since a lot of us would have been subjected to this.)
Vitamin C sounds obvious, but it is easy to neglect a SOLID healthy FRESH diet especially going through treatments.
I highly recommended juicing for better health
Also recommend that you feed your body everything it needs to re-build your bone marrow & immune system DAILY as the Ibrance is constantly taking it down. In your week off of Ibrance I feel that this especially important.
( I use organic free range eggs & a quality pâté as sources for loads of trace & macro nutrients, proper bone broths & sardines, herring etc are great too. Remineralising your body. )
We must INVEST in ourselves to have better health. Often we are on our own & are the care givers & rarely the recievers, so we MUST learn to GIVE to ourselves. Be Kind & Generous to ourselves & EAT REALLY WELL.😊
*Sorry if that was A LOT of reading.😄
* I never had any menopause like symptoms.
Occasional cold chills, no other side effects until scalp pain & hair loss.
Recently KA-BOOM 80% of my hair fell out in the past two months. My scalp was SOOOO TENDER, then CHEMICAL BURNING pain. As i had done cooling cap & no oncologist ever informed me or medicine leaflet, that i did not know that this is a sign preceeding hair loss. So DO WATCH OUT FOR THIS & TELL YOUR ONC if you experience this.
I wound up wearing ice packs on my head ALL DAY it was so bad.☹ I am on a drug break at present. Onc will have new approach next week.
In the quest to re-grow hair / keep hair...
I am pondering with the idea of daily cold cap style session...large ice bags changed as needed...reduce scalp inflammation...help keep hair? It did END the pain...but too late for my already lost hair.
( microscope photos of ibrance lost hair shows that the drug distruption can cause the hair shaft to increasingly narrow until achieving breaking point, rather similar to a classic beaver toppled tree ). I have NO idea about what to try for that....but i am going to put my thinking cap on!😄
Minoxidal 2% & 5%seems to be the only starting options...followed by oral Minoxidal & Spironolactone for retaining/ regrowing hair without any measurable results for 3 to 6 months or longer. I had read that *Rosemary oil used in the same concentration as Minoxidal topical was equally successful without the same side effects( * ref: Dr Anthony Youn ). But i would check up on side effects of Rosemary oil if using it regularly.
Very last thing....i promise.
I was on Targin with Endone for dreadful neuropathy from I.V chemo. It helped me bridge the shattered broken body Arimadex & Letrozole gave me. It allowed me TO FUNCTION very similar to pre-cancer " me."
I have progressively reduced my dose as needed until i very rarely use any pain relief.
I feel like a lot of ladies on these meds are tolerating too much pain daily without relief. So this was important to say. You have A RIGHT TO PAIN RELIEF. YOU HAVE A RIGHT TO LIVE YOUR LIFE....LIVE...not just try & cope.
Adequate pain relief may actually help a decent number of women TOLERATE their meds & stay on them.
Stay STRONG & travel WELL.
Such wonderful information! Do you take copper or zinc supplements and if so what dose? Are there cod liver oil pills or do you take a spoonful? I currently take 6000 IU of D3 and trace minerals and iodine as well as VitaminB complex , E, cur cumin and biotin. I take Vitamin C but not every day as I have read conflicting reports on wether or not it also helps the cancer. I had read also that Green Tea extract is good for bone mets. However, after I started taking it I read it can be harmful to your liver and better to drink the tea. Please keep us all informed on the hair quest!!!! Thanks for the info,
I see you got a lot of feedback from this great group of ladies. After ibrance failed I went on xeloda but had a reaction to it. Next was Herceptin and perjeta which caused heart failure to start. Now am on affinitor and arominse-so far so good but I have doubts if it’s working because my markers are rising.
If you can tolerate ibrance stay with it.
Good luck with your decision let us know how you do♥️
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