One year down - PET scan results - SHARE Metastatic ...

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One year down - PET scan results

Iwasborntodothis profile image

After getting sky-high Tumor markers despite CT scans of my chest showing marked improvement, my doc ordered a PET scan. I just have to say he is the BEST - scan was at 8 am and he called me at almost 7 pm with results.

The only new thing they found were some hip mets and a possible fracture. He started the call by asking if I had pain I hadn't told him about - ummm yes, oops. Here I thought I simply had arthritis. So, I will get an MRI to check.

Celebrating this may same strange but my imagination had gone wild with all of the other possibilities.

I am wondering if there are options to full hip surgery that anyone has used. I'm 56 and having a hip surgery doesn't sound pleasant as I am super active.

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Iwasborntodothis
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21 Replies
Thrifty51 profile image
Thrifty51

I had two partial hip replacements within 3 weeks time period. That is also how I found out about the MBC. Although I would not want to have to go through that again, I can tell you that the recovery was not too difficult. I did go to an orthopedic recovery hospital for about two weeks with both surgeries and made sure I did all the exercises and more if I possibly could. I am 69 and that was almost 2 years ago. I now walk long distances, swim, and ride a stationary bike so the surgeries did not slow me down.

Wishing you the best,

Audrey

Iwasborntodothis profile image
Iwasborntodothis in reply toThrifty51

Thank you! Sounds like you are an exercise machine!

RLN-overcomer profile image
RLN-overcomer in reply toThrifty51

Wow You had a great outcome, but you worked hard to get there. GOD bless you.

SeattleMom profile image
SeattleMom

Hello!

Just to let you know that my mom, while in her 90's had two separate hip surgeries. The first one failed with pins and plates. The second one, a full hip replacement, was successful in that she was able to continue to walk. At that age, the surgery prevented her from spending the remainder of her life in a wheel chair if she had opted out. I guess my point is that, if a 90 plus patient can do it, so can anyone! God bless you and good luck!

Linda XXOO

Iwasborntodothis profile image
Iwasborntodothis in reply toSeattleMom

Thank you I know there are much worse things to worry about. I have no idea how I can have a fractured hip and not know it.

SeattleMom profile image
SeattleMom in reply toIwasborntodothis

I don’t want to make it sound like a cake walk. Any surgery takes recovery time. Also so amazing how we can all shrug off pain sometimes and just figure it’s aging or arthritis!

Hope you do well!! 🥰🥰

8576 profile image
8576 in reply toIwasborntodothis

I thought the same. I have 4 fractures to my pelvis. How is this possible when I can still walk and drive my car? The fractures are called unsubstantiated fractures and happen because of bone weakness.

Wishing you well, Cheers, June S.

Iwasborntodothis profile image
Iwasborntodothis in reply to8576

Thank you!

hdhonda profile image
hdhonda

Is it possible they could do radiation? This is way out of my knowledge, but I do know they sometimes do radiation for bone mets. Good luck with getting pain relief. Blessings, Hannah

Iwasborntodothis profile image
Iwasborntodothis in reply tohdhonda

I am going to ask because I see that a lot of ladies on this site have had that. You guys are all such a blessing

in reply toIwasborntodothis

Hi, I had cyberknife on a lesion on my spine and it was successful . Maybe you could check that out . ? Kevina

Iwasborntodothis profile image
Iwasborntodothis in reply to

I will ask! Thanks!

Iwasborntodothis profile image
Iwasborntodothis in reply tohdhonda

I am starting radiation tomorrow - 5 rounds on my hip. I saw my hip MRI. The top of femur is basically all cancer thru the marrow. They are treating me like some kind of freak because I am really not in that much pain and I have been exercising - went skiing in March...I am a little freaked by the image. I guess we'll see how it goes.

hdhonda profile image
hdhonda in reply toIwasborntodothis

Dear Iwasborntodothis,

You are in my heart and prayers. I wish the very best for you. Blessings, Hannah

Iwasborntodothis profile image
Iwasborntodothis in reply tohdhonda

Thanks!

mariootsi profile image
mariootsi

Celebrating your results with you! I know our imaginations get the best of us! So relieved for you.

Iwasborntodothis profile image
Iwasborntodothis in reply tomariootsi

Thanks!

stardust1965 profile image
stardust1965

I don’t have any knowledge of the treatment you can expect going forward. But I did want to say that your optimistic approach is wonderful to read. I think before every scan we prepare ourselves for the worst but hope and pray for the best. Celebrate away.

Iwasborntodothis profile image
Iwasborntodothis in reply tostardust1965

I am only optimistic because I know all of you are here for me and for everyone else.

WordNerdSharron profile image
WordNerdSharron

It's good to celebrate small wins. I am happy that your news was better than you expected. Keep pressing on!

diamags profile image
diamags

I'm so happy that your onc is so on top of this. It makes the journey a lot easier. I can't help with any advice about your hip, but I hope that it sorts out well.

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