Xeloda hand/foot issues

[highhopes1]

Any tips or advice for hand/ foot issues on xeloda? Other than lowering dose.

[Kiera49]

I just use cream but my feet and hands haven't been too bad although only done 1 cycle. Hopefully others can help more

[beachlover65]

I am so sorry that you are having trouble. I did too. I lost all skin on bottoms of feet and palms of hands. I used bag balm and utter cream with urea. At night, I put on cotton gloves to sleep in. I also had to wear gloves to wash dishes. It was quite painful. Eventually I decided to change my therapy. I'm on my 8th different treatment. You have to have a quality of life. Things will work out. All the best to you!

[Loriterranova in reply to beachlover65]

Beachlover I am so sorry u weren't able to tolerate xeloda. If u don't mind me asking what type of breast cancer do u have and what treatment r u on now? Best, Lori

[beachlover65 in reply to Loriterranova]

Hi Lori, I have had mets to bones and liver since Aug. 2016. I am currently on a clinical trial drug and doing well for now. How about you?

[8576 in reply to beachlover65]

Just wanted to drop in here to say thanks for doing the trial. You are helping us all to a better place. Great to hear you are doing well.

Cheers, June S.

[Julie2233]

I had 3 rounds and my hands and feet both turned bright red, and walking caused deep blisters (which didn’t hurt that much) on the soles of my feet. The dose was reduced slightly (4300 to 4000 per day) and this helped tremendously.

[highhopes1]

Thank you all. My mom is actually the one on treatment. She just started her 1st round of xeloda and is currently on day 11. Things had been going great. Energy level really good, just a little irritation with gi. But starting day 9, woke with a red foot that felt like it's sunburnt. Today has a little puffiness to it but it's definitely a nuisance. But we are elated because she can already tell her breast with tumor is showing and feeling improvement. I wish everyone the very best going through this.

[SusieIM]

I had that it sucks, still have it but not as bad as I did; I put lots of Bag Balm on both hands and feet. I am sorry you are going thru this.

[Bubbles001]

I’ve been on Xeloda for five months and use Udderly Smooth Extra Care 20 each night. It’s not sticky and absorbs quickly, so it’s easy to use. If you try it, get the one with 20% urea, not 10%. I do have some blisters on the soles of my feat, but the cream seems to keep them in check.

[barbarac76]

Hi,

It's so nice of you to post for your mother. Happy to hear she is tolerating the side effects of Xeloda. My biggest problem with Xeloda was the hand/foot syndrome (especially the feet). Here's some of the things I did to manage - these were part of the guidelines from my cancer center:

1. Eliminate/reduce activities that cause friction to the feet (jogging, aerobics, etc.). Before Xeloda I used to walk and hike for hours. Now, my limit is about one hour.

2. Soak feet in cold water after an activity.

3. Avoid soaking your feet in warm water.

4. Use lotion (anything that contains Urea seems to a good choice - I use Udderly Smooth -Extra Care 20.

5. Wider width sneakers - the wider width helped prevent blisters.

Hope this helps and I hope your mother gets a long run with Xeloda. If you use the search bar (search Xeloda), you can find a lot of helpful information that other ladies have posted over the years.

[highhopes1]

Thank you so much!! I certainly appreciate all the help!