Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

22,272 members•16,288 posts

All posts for August 2024

Target iron levels

Had 3 blood tests over last 9 months to monitor low iron / anaemia and effect of taking iron supplement (ferrous Fumarate 210mg per day). Advised by GP ( week...

Had 3 blood tests over last 9 months to monitor low iron / anaemia and effect of...

50568789

•2 months ago

6 Replies

UK RLS patients' Survey

We have received over 3000 responses to the survey so far.This is fantastic as it will enable RLS-UK to show the scale of suffering and enable us to push for...

We have received over 3000 responses to the survey so far.This is fantastic as i...

Joolsg

•2 months ago

38 Replies

Buprenorphine side effects- sertraline

I suffer from depression as a side effect from Buprenorphine and having tried pregabalin unsuccessfully (50mg/day) i asked my GP to prescribe trazodone. He was...

I suffer from depression as a side effect from Buprenorphine and having tried pr...

davchar23

•2 months ago

25 Replies

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The Role of Gut Microbiome in Sleep Quality and Health: Dietary Strategies for Microbiota Support

Here's an interesting article on the relationship between gut microbiome and sleep for those who are interested in this topic. It's not specific to RLS but...

Here's an interesting article on the relationship between gut microbiome and sle...

amrob123

•2 months ago

9 Replies

Hi, I've just joined & hope to find out more about other poor suffers of this awful condition.

I suffer terribly from RLS & have done for we over 20 years

Tramp66

•2 months ago

5 Replies

Best IRON supplements for RLS? Currently trying Pramipexole but learning about the risk of augmentation...

I am 33F. I had RLS (in my shins) as a teen-early 20s, but it was usually a sign of being tired and going to bed was enough. Eventually it got worse, moved up...

I am 33F. I had RLS (in my shins) as a teen-early 20s, but it was usually a sign...

Catsmeow13

•2 months ago

30 Replies

Clonazapam

I have been taking Clonazapam for five days, told to increase to 1.5mg at 0.5mg increments over two to three days. I am now at 1mg each night and I dont sleep,...

I have been taking Clonazapam for five days, told to increase to 1.5mg at 0.5mg ...

Keith1231

•2 months ago

17 Replies

shower or bath.

Which is the best for rls pain ,bath or shower.

Bantamdyno

•2 months ago

7 Replies

coming off ropinirole after augmentation

I would like advice on how best to manage the sleepless nights as I try to wean myself off ropinirole which I’ve been taking in gradually increased amounts...

I would like advice on how best to manage the sleepless nights as I try to wean ...

Seakale

•2 months ago

18 Replies

Consult with Dr about Pramipexole

Attended an appointment with my personal doctor to discuss getting off pramipexole. I was armed with the Mayo updated algorithm printed out. After a few...

Attended an appointment with my personal doctor to discuss getting off pramipexo...

madhttr

•2 months ago

4 Replies

Change in Rx and RLS is drastically reduced

I am now off Trazodone, added Lithium and Seroquel and reduced Buspirone in half. I am no longer taking Ropinirole. I am also taking Lamotrigine. RLS symptoms...

I am now off Trazodone, added Lithium and Seroquel and reduced Buspirone in half...

Chocolatelover1211

•2 months ago

4 Replies

UK RLS Patients Survey

RLS-UK is working with Joeli Brearley at Pregnant Then Screwed and have prepared a survey for completion. Would all UK members please complete? Many thanks....

RLS-UK is working with Joeli Brearley at Pregnant Then Screwed and have prepared...

Joolsg

•3 months ago

62 Replies

Calamas root

No clinical trials exist however calamas has been used for thousands of years, do your own research. I currently take half teaspoon of calamas root powder in...

No clinical trials exist however calamas has been used for thousands of years, d...

RLSSCARER

•3 months ago

5 Replies

please help

I’m new here and I’m really struggling with restless legs and arms and night sweats. I’m not sleeping and as soon as I relax arms n legs play up then I get hot...

I’m new here and I’m really struggling with restless legs and arms and night swe...

Ladytaf

•3 months ago

22 Replies

Switching from pramipexole to gabapentin

Dear all, I have been taking pramipexole once a day (0.18) for over 3 years to treat severe (daily) RLS. However, I would like to switch to gabapentin if...

Dear all, I have been taking pramipexole once a day (0.18) for over 3 years to ...

LULI018

•3 months ago

6 Replies

RLS Targinact & Pregabalin

is anyone using Targinact and Pregabalin for RLS and what strength? I am taking 15 mg Targinact twice a day (at 9.30 am and about 10.15 pm), together with...

is anyone using Targinact and Pregabalin for RLS and what strength? I am takin...

susiehandley

•3 months ago

22 Replies

Oh woe is me

Hi thereI am a mess I have to say. I was diagnosed with fibromyalgia about 10 years ago after 25 years of pain that wouldn't go away. I've had RLS on and off...

Hi thereI am a mess I have to say. I was diagnosed with fibromyalgia about 10 ye...

TwitchySue

•3 months ago

16 Replies

Interesting: "pro-dopamine regulator KB220"

Hello All, I've encountered this compound (actually there are several formulations / variants) which I believe you need an Rx for in the US. It's been...

Hello All, I've encountered this compound (actually there are several formu...

AmazedAnt

•3 months ago

4 Replies

perampanel

Has anyone had any experience with this drug? Especially after coming off DAs.

Has anyone had any experience with this drug? Especially after coming off DAs. ...

sigurdur

•3 months ago

14 Replies

TEMGESIC or BUPRENORPHINE ?

Pesently taking Targin10/5 but only gives relief 4-6 hours at night. Today my sleep specialist swapped me over to Temgesic(.2mg) assuring me it would last all...

Pesently taking Targin10/5 but only gives relief 4-6 hours at night. Today my s...

Retiredlady

•3 months ago

8 Replies

Ropinirole and dizziness

Hi all, I’ve just joined this forum. Thank you all from a desperate woman! I’m currently taking 0.5mg of ropinirole every night. I was on a higher dose of...

Hi all, I’ve just joined this forum. Thank you all from a desperate woman! I’m c...

LunaWise

•3 months ago

11 Replies

RLS ?

I started with nocturnal leg cramps and twitching of calves about a month ago. This occurs mainly at night and at times when at rest. I do not get the urge to...

I started with nocturnal leg cramps and twitching of calves about a month ago. T...

Chiquita123

•3 months ago

10 Replies

RLS GUT PROBLEMS

I post fairly often on this forumMy name is William Henry I had a Zoom Session with RLS-UK just over a week ago There were 5 women in the session plus myself...

I post fairly often on this forumMy name is William Henry I had a Zoom Session w...

williamghenry

•3 months ago

5 Replies

Iron Infusion

My consultant is considering giving me an iron infusion to increase the ferritin level in my blood to 100. If there is anyone in the RLS Forum who has had an...

My consultant is considering giving me an iron infusion to increase the ferritin...

Isle-of-Axholme

•3 months ago

13 Replies

Baclofen

Has anyone used baclofen for RLS? I take it with my methadone and it seems to help me sleep through the night. When I tried not taking it, my sleep was...

Has anyone used baclofen for RLS? I take it with my methadone and it seems to h...

violetta254

•3 months ago

7 Replies

Zyrtec

It seems like I remember someone mentioning using Zyrtec for opioid sweats. Am I remembering correctly? Methadone has been a life saver for me but I really...

It seems like I remember someone mentioning using Zyrtec for opioid sweats. Am...

violetta254

•3 months ago

3 Replies

Have you tried this or have you assumed it won't work?

Probably my last post because I solved my RLS problem. It's gone, and no drugs. I've posted this as a c omment in response to several individual posts but get...

Probably my last post because I solved my RLS problem. It's gone, and no drugs. ...

Bernaldi

•3 months ago

46 Replies

pain/RLS

I have found that when I have medium to severe pain in my arms and shoulders my RLS starts. Especially if I am sitting down.

I have found that when I have medium to severe pain in my arms and shoulders my ...

jojomary

•3 months ago

4 Replies

I think I’m having Pramipexole withdrawal symptoms??

Hi you knowledgeable lot. How soon can withdrawal set in? I’ve reduced my pramipexole from 5 at night to 4 for the last 3 nights and feel rough. I feel...

Hi you knowledgeable lot. How soon can withdrawal set in? I’ve reduced my prami...

Delilah162

•3 months ago

15 Replies

my fourth week on gabapentin-next?

I've suffered with RLS for about 15 years and was prescribed pramipexole about 12 years ago. As I now know, predictably the symptoms eased but eventually...

I've suffered with RLS for about 15 years and was prescribed pramipexole about...

Claypot

•3 months ago

4 Replies

Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

All posts for August 2024

Target iron levels

UK RLS patients' Survey

Buprenorphine side effects- sertraline

The Role of Gut Microbiome in Sleep Quality and Health: Dietary Strategies for Microbiota Support

Hi, I've just joined & hope to find out more about other poor suffers of this awful condition.

Best IRON supplements for RLS? Currently trying Pramipexole but learning about the risk of augmentation...

Clonazapam

shower or bath.

coming off ropinirole after augmentation

Consult with Dr about Pramipexole

Change in Rx and RLS is drastically reduced

UK RLS Patients Survey

Calamas root

please help

Switching from pramipexole to gabapentin

RLS Targinact & Pregabalin

Oh woe is me

Interesting: "pro-dopamine regulator KB220"

perampanel

TEMGESIC or BUPRENORPHINE ?

Ropinirole and dizziness

RLS ?

RLS GUT PROBLEMS

Iron Infusion

Baclofen

Zyrtec

Have you tried this or have you assumed it won't work?

pain/RLS

I think I’m having Pramipexole withdrawal symptoms??

my fourth week on gabapentin-next?

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