pain/RLS

[jojomary]

I have found that when I have medium to severe pain in my arms and shoulders my RLS starts. Especially if I am sitting down.

[SueJohnson]

Are you slowly reducing the ropinirole as advised on your last post?

By the way I noticed you live in Tennessee and there is a Quality Care Center at Vanderbilt of which there are only 12 in the USA and they have world renowned experts on RLS there. Any of the following are excellent Dr. Arthur Scott Walters the Director, Dr. Kanika Bagai, Dr.Mariana Bedoya, Dr Beth Ann Malow, Dr Althea Robinson-Shelton.

You would probably only have to see them in person once if that and then could do telehealth.

Who is your current doctor?

[jojomary in reply to SueJohnson]

I am only taking .5 at this time. I just have a nurse practitioner at a family medical clinic.

[ziggypiggy]

Does the pain go away when you take your ropinirole? Or, just the RLS it set off? Or both?

[707twitcher]

Since I started augmenting on DAs 9 months ago, my RLS break-throughs have been much worse in my upper arms, chest and back. I never had that before, but augmentation seems to have changed my symptoms for the worse. I wouldn't describe it as pain, but it's a heavy, antsy, awful feeling. And it seems far more intense than my old leg-twitching RLS feelings.