UK RLS patients' Survey

[Joolsg]

We have received over 3000 responses to the survey so far.This is fantastic as it will enable RLS-UK to show the scale of suffering and enable us to push for education of the medical profession and research into new treatments.

If you haven't completed it, please do so and forward to any online FB or Reddit help groups.

Many thanks.

pregnantthenscrewed.typefor...

[Kaarina Administrator]

This is fantastic news. 💪💪💪💛

I cannot help but wonder where all the UK members are that visit our RLS-UK help forum for advice. This is one way they could really help us purely by ticking a few boxes that takes 4 minutes to complete.

[Joolsg in reply to Kaarina]

Agreed. Unless people are quietly completing, without confirming.

[Kaarina Administrator in reply to Joolsg]

I really do hope so ........

[Shad0w2 in reply to Kaarina]

I have replied via the link on the e-mail sent out by Debbie from RLS (UK)

[Kaarina Administrator in reply to Shad0w2]

Thank you so much Shad0w2.

[Joolsg in reply to Shad0w2]

Thank you. 😊

[Huntingleroy]

Brilliant response but lets have more takers PLEASE

[Kaarina Administrator in reply to Huntingleroy]

Totally agree Huntingleroy!

[Graham3196]

Great response but who will spend 100 hours sorting and summarising the information?

Good on you Jools!

Sorry I couldn't participate being a foreigner!

[Joolsg in reply to Graham3196]

Pregnant then screwed, the organisation working with RLS-UK has software to analyse the results. Thankfully!

[Pippins2]

Done

[Joolsg in reply to Pippins2]

Cheers Pip.

[Kaarina Administrator]

UK members. Please help RLS-UK and complete the survey. It will only take 4 minutes of your time.

[Rameau in reply to Kaarina]

I circulated the link to three family members with RLS who have all filled it in.

[Kaarina Administrator in reply to Rameau]

Hi Rameau, brilliant news. Thank you so much. We really appreciate it.

[Joolsg in reply to Rameau]

Brilliant. Thanks so much.

[Johan10]

Jools, I completed the form as soon as you posted and hope many other silent members also. The least we can do for the cause.

[Joolsg in reply to Johan10]

Cheers Johan. 🍻

[danamias]

Could this survey go through go through GP surgeries? And there are FB groups too.

[Joolsg in reply to danamias]

It's on RLS-UK FB group & Joeli Brearley has posted to her FB group.We don't have addresses for all UK GP surgeries, but if you belong to a FB group, please copy and paste the link and ask others to complete.

[Zenawarrior73]

just filled in Jools thanks for sharing

I’m so glad I found this group there have been days I’ve been in floods of tears and this group has literally saved me

[Joolsg in reply to Zenawarrior73]

Thanks 😊 Zena

[AmyMac5]

I've also completed it and took the opportunity at the end to credit the knowledge and support of this forum in getting my RLS well under control.

[Joolsg in reply to AmyMac5]

Thanks Amy x

[Dizzydisturbed]

Why does the link say pregnant then screwed??

[Joolsg in reply to Dizzydisturbed]

The charity we are working with is 'pregnant then screwed.' They have thousands of members, and most suffer pregnancy related RLS.The younger generation use social media a lot more than the usual RLS demographic.

[GitLegs]

Done. I haven't posted before, but I've been following this forum for some time, and I'm full of admiration for those of you who so tirelessly give of your time and your expertise. Completing this survey is the very least I can do.

[Joolsg in reply to GitLegs]

Many thanks Gitlegs. Brilliant name. I'm fond of calling people git. The Northerner in me!

[Biscuitface]

Completed. Does not take any longer than 5 minutes to complete. Also helps so many of us

[Joolsg in reply to Biscuitface]

Thanks 😊

[rls-insomniac]

I've also completed the survey and spoke my mind regarding the woeful lack of knowledge of medical professionals in their treatment of RLS sufferers.

[Joolsg in reply to rls-insomniac]

Brilliant. Thanks.

[Lapsedrunner]

I’ve done it!

[Joolsg in reply to Lapsedrunner]

Thank you 😊

[Annty]

Done. Also had a ( mostly) constructive rant re Gp + neuro knowledge in U.K + how impacts on rls suffers quality of life.

[Joolsg in reply to Annty]

Excellent. It is the one common thread. The complete ignorance and negligence of UK doctors.Even the few that are supposed to be slightly better than others are STILL switching patients to the Neupro patch telling them it has a low risk of augmentation.

Which is patently untrue.

[Joolsg]

Bump

[Kaarina Administrator]

UK members. Please help RLS-UK and complete the survey. It will only take 4 minutes of your time.