Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

21,483 members • 15,160 posts

All posts for June 2023

Hi again.

Hi again,I'm having a form filled in for me by someone which requires my medical history. When I received the information from my gp surgery and read it I was...

Hi again,I'm having a form filled in for me by someone which requires my medical...

Whymelord

•11 months ago

10 Replies

Cannabis

Hi fellow sufferers,I managed to get what I hoped was a good oil,from a friend,put 3 drops under my tongue, kept it there for 20 or so seconds as I was...

Hi fellow sufferers,I managed to get what I hoped was a good oil,from a friend,p...

Whymelord

•11 months ago

10 Replies

Long Covid

I have had RLS for decades and have had more help on this site from wonderful people than from any medical person. Currently I take Methadone 15 mg daily...

I have had RLS for decades and have had more help on this site from wonderful p...

wairoa36

•11 months ago

4 Replies

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Buprenorphine

I just got off the phone to my doctor and she's agreed to give me buprenorphine! I just really need to be careful with the gabapentin as she said I have to...

I just got off the phone to my doctor and she's agreed to give me buprenorphine!...

Loopylegs

•11 months ago

8 Replies

Maple Syrup

Does anyone else get RLS from 100% pure Maple Syrup? I mean 100% as stated on the label. I have experienced restlessness quite a few times after having it in...

Does anyone else get RLS from 100% pure Maple Syrup? I mean 100% as stated on th...

Madlegs1

•11 months ago

5 Replies

Gabapentin and Oral Iron

When taking iron supplements on alternate days (iron bisglycinate 25mg) and using gabapentin nightly, how far apart should the iron and gabapentin doses be on...

When taking iron supplements on alternate days (iron bisglycinate 25mg) and usin...

PoorRichard

•11 months ago

17 Replies

Sleep study anomaly

I am interested to know if anyone has had the following experience or can offer any explanation. I have suffered with RLS for approximately 10 years and...

I am interested to know if anyone has had the following experience or can offer ...

Pinstripe

•11 months ago

20 Replies

Jakyakgamcho-Chang. Korean herbal medicine.

https://jikm.or.kr/m/journal/view.php?number=5127 I have never heard of this 'supplement' but this research article suggests it helped an Indonesian man...

https://jikm.or.kr/m/journal/view.php?number=5127 I have never heard of this 's...

Joolsg

•11 months ago

17 Replies

Buprenorphine

I currently take a10mg patch per week for chronic pain. I also have the highest dose of cocodamol on my prescription but was told to use sparingl so in crisis...

I currently take a10mg patch per week for chronic pain. I also have the highest ...

Nonameme

•11 months ago

2 Replies

carbidopa/levodopa

I'm trying to eliminate carbidopa/levodopa for RLS. It has augmented to the point that I need it every 3 hrs. around the clock. Neurologist will never...

I'm trying to eliminate carbidopa/levodopa for RLS. It has augmented to the poi...

sage43

•11 months ago

2 Replies

which DA should I go for

my GP has referred me to an Neurologist but the waiting time to see him is over a year, he suggested to my GP that try again with Pregabalin on a higher dose...

my GP has referred me to an Neurologist but the waiting time to see him is over ...

Sanmass

•11 months ago

26 Replies

Iron Infusion Attempt

This week I saw Dr Robin Fackrell privately at Bath Sulis Hospital to discuss whether an iron infusion would be an appropriate way forward for me and if so how...

This week I saw Dr Robin Fackrell privately at Bath Sulis Hospital to discuss wh...

Munroist

•11 months ago

3 Replies

Help!

Hello, everyone, I've an appointment to see my doctor tomorrow and would like to know what strength of buprenorphine helps rls? I'm not doing so good, rls back...

Hello, everyone, I've an appointment to see my doctor tomorrow and would like to...

Loopylegs

•11 months ago

14 Replies

Drug vacation?

Anyone heard or had a successful experience going off a drug because of intolerable side effects, taken a vacation from the drug, and gone back on it without...

Anyone heard or had a successful experience going off a drug because of intolera...

wantokporo

•11 months ago

4 Replies

For Sue J

Hi Sue, I wonder if you would read over the post from Fingerandus. She had contacted me apart from this and had told me she was on a diuretic amongst other...

Hi Sue, I wonder if you would read over the post from Fingerandus. She had con...

Jelbea

•11 months ago

1 Reply

Aftermath of Pramipexole

Dear Restlessleggers, I have now been without pramipexole for more than 2 weeks. I successfully used Kratom to wean off it. Even though Kratom helped me a...

Dear Restlessleggers, I have now been without pramipexole for more than 2 weeks...

sigurdur

•11 months ago

15 Replies

Tramadol and RLS

So the Doc was still scrambling around not to prescribe an ipoid. And the Mayo did suggest tramadol or codeine. So l accepted another trial of a long acting...

So the Doc was still scrambling around not to prescribe an ipoid. And the Mayo...

Springfiel1

•11 months ago

19 Replies

Book of RLS experiences.

I often wonder if our members could get together an assortment of posts about RLS, to be able to publish a small book (or even a large one), to circulate to...

I often wonder if our members could get together an assortment of posts about RL...

pennygates

•11 months ago

49 Replies

Tru Niagen

For those that have tried or continue to use TruNiagen long term, please share your experience both positive and negative. Also, has it been beneficial for...

For those that have tried or continue to use TruNiagen long term, please share y...

Wanted-sleep

•11 months ago

2 Replies

Iron Fusion

Hello all, I am seeing my doctor tomorrow morning about my very bad nights during the hot, humid weather I would appreciate any advice on the best way to...

Hello all, I am seeing my doctor tomorrow morning about my very bad nights du...

williamghenry

•11 months ago

4 Replies

Withdrawals from Pramipexole.

Hi everyone i had been taking one .088mgs pramipexole for approx 3 years plus one or two 8/500 cocodamol at night it’s never been perfect as my tolerance to...

Hi everyone i had been taking one .088mgs pramipexole for approx 3 years plus on...

Hidden

•11 months ago

6 Replies

APNEA v RLS - something else

I have recently been diagnosed with Sleep Apnea & have been given a CPAP machine to use but it seems the drugs I take for RLS (Oxycodone & Gabapentin) are...

I have recently been diagnosed with Sleep Apnea & have been given a CPAP machin...

joepublic

•11 months ago

2 Replies

Opioid dependancy

Good morning everyone, I am augmenting from pramipexole, I take three 0.088 mg per day at various...

Good morning everyone, I...

Dotmowatee

•11 months ago

23 Replies

Keto diet warning

Just came across this snippet. I know some people advocate the Keto diet as a possible relief for RLS. So - just passing on. "The ketogenic diet, long used...

Just came across this snippet. I know some people advocate the Keto diet as a po...

Madlegs1

•11 months ago

4 Replies

Meds change

hi everyone , first post on here . Been reading some of the other posts on here and Pramipexole or lack of it seems to be a theme . I have suffered from RLS...

hi everyone , first post on here . Been reading some of the other posts on here ...

Grumpies

•11 months ago

17 Replies

hi everyone

i am an 80 year old female living in Australia i migrated here at the age of 27 with two young children i have been married to my husband for 62 years have...

i am an 80 year old female living in Australia i migrated here at the age of 27 ...

Fingerandus

•11 months ago

18 Replies

Appointment at Neuropsychiatry Clinic

I have a long awaited appointment at The Barberry Centre in Birmingham where I hope to persuade the consultant I see to prescribe buprenorphine. If he agrees...

I have a long awaited appointment at The Barberry Centre in Birmingham where I h...

Flora-Rose

•11 months ago

17 Replies

Horizant

After pregabalin and gabapentin both made me nervous (I successfully tolerated the pregabalin for years, with daytime sedation however). Codeine also seems to...

After pregabalin and gabapentin both made me nervous (I successfully tolerated t...

wantokporo

•11 months ago

5 Replies

Oromorph

Hi all. Has anyone had experience of using Oromorph? Doctors have prescribed this for my mum who has CBD because she has started constantly scratching/rubbing...

Hi all. Has anyone had experience of using Oromorph? Doctors have prescribed thi...

Chelle1981uk

•11 months ago

4 Replies

Oxycodone not working

Husband is taking 10mg Oxycodone at night with 100mg Pregablin Also 5mg 3 x a day and 100mg Pregablin in morning. Oxycodone seems to have stopped working and...

Husband is taking 10mg Oxycodone at night with 100mg Pregablin Also 5mg 3 x a d...

Ephemera

•11 months ago

10 Replies

Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

All posts for June 2023

Hi again.

Cannabis

Long Covid

Buprenorphine

Maple Syrup

Gabapentin and Oral Iron

Sleep study anomaly

Jakyakgamcho-Chang. Korean herbal medicine.

Buprenorphine

carbidopa/levodopa

which DA should I go for

Iron Infusion Attempt

Help!

Drug vacation?

For Sue J

Aftermath of Pramipexole

Tramadol and RLS

Book of RLS experiences.

Tru Niagen

Iron Fusion

Withdrawals from Pramipexole.

APNEA v RLS - something else

Opioid dependancy

Keto diet warning

Meds change

hi everyone

Appointment at Neuropsychiatry Clinic

Horizant

Oromorph

Oxycodone not working

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