This week I saw Dr Robin Fackrell privately at Bath Sulis Hospital to discuss whether an iron infusion would be an appropriate way forward for me and if so how I could progress this. The outcome of the session is that Dr Fackrell will write back to my GP recommending this course of action for my RLS and hopefully I'll be able to get an infusion at my local NHS Trust.
I'll update again on the next steps when anything changes. I can confirm that Dr Fackrell was sympathetic and seemed well up to speed on RLS and the Mayo Algorithm. He took care to validate my diagnosis of Restless Legs and then went through the various treatment options from dopamine agonists which work very well for some of his patients, though alpha 2 delta ligands, opioids and infusions so I had a balanced view of all the options.
I read Amrobs post this morning about hypophosphataemia with a little disappointment but for the moment I intend to try the infusion and assess the results. It may not help me but then at least I'll know.
I'd like to thank everyone on this forum who's answered my questions about infusions and given me the information I needed to get this far
Iron Infusion - Ireland
Iron Infusion: Timing for relief?
IV iron infusion and questions
Is Iron infusion painful?
Accessing Iron Infusion
