Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

22,178 members • 16,106 posts

All posts for May 2023

Periodic Limb Movement Disorder

Hello everyone. Several weeks ago I started taking Pregabalin whilst weaning off Pramipexole. I’m now on 150mg of Pregab. 3 weeks ago, I took my last Pram!...

Hello everyone. Several weeks ago I started taking Pregabalin whilst weaning off...

Theonlypetied

•1 year ago

10 Replies

Neurologist appointment

I had my first neurologist’s appointment yesterday, I live in the Uk and the Hospital was Leicester General. My GP had written the referral explaining I had...

I had my first neurologist’s appointment yesterday, I live in the Uk and the Hos...

Elsie77

•1 year ago

12 Replies

Pennygates

I've recently had a worsening of my RLS symptoms. Now all day and night, with the odd hour of relief despite taking oxycodone (which I take for arthritic pain...

I've recently had a worsening of my RLS symptoms. Now all day and night, with th...

pennygates

•1 year ago

28 Replies

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Iron stores

Good morning I am in South Africa and see that the measurements for the different iron/ferritin levels are in another format. Does anyone know how to convert...

Good morning I am in South Africa and see that the measurements for the differe...

Cara95

•1 year ago

6 Replies

Leg discolouration

Hi, I have had RLS for 30+ years but have noticed recently (last 2 years) that my legs are becoming discoloured. They have patches that look like bruises but...

Hi, I have had RLS for 30+ years but have noticed recently (last 2 years) that m...

samd5555

•1 year ago

8 Replies

Ferritin Levels

Could Sue please advise on my Ferritin Levels. Clinician viewed03 May 2023Result typePathologyTestsUrea and electrolytesLiver function testsSerum lipid...

Could Sue please advise on my Ferritin Levels. Clinician viewed03 May 2023Result...

VENEER

•1 year ago

2 Replies

Spacing out Mirapex/pramipexole or Lyrica/pregabalin throughout the day

My friend and I were discussing our RLS medications. She mentioned that mirapex was not working for her until she started taking it throughout the day. One...

My friend and I were discussing our RLS medications. She mentioned that mirapex ...

charlie1234567890

•1 year ago

12 Replies

Replacing Pramipexole with Pregabalin

Hello Everyone, I have had RLS for at least the past twenty years with the past eight years taking 0.50mg of pramipexole with some success however recently I...

Hello Everyone, I have had RLS for at least the past twenty years with the past ...

sidepocket

•1 year ago

16 Replies

Oxycodone, Pramipexole and Codeine.

I am now on oxycodone 20mg tablets, 20mg morning and 20mg at night. I was on 8 Codeine phosphate 30mg tablets a day and one Pramipexole 0.52mg modified...

I am now on oxycodone 20mg tablets, 20mg morning and 20mg at night. I was ...

JoeR

•1 year ago

8 Replies

New Way to Get More Iron

I have been diagnosed with several autoimmune diseases in the past years, and because of celiac, and microscopic colitis, my nutritional needs have not been...

I have been diagnosed with several autoimmune diseases in the past years, and be...

eliz45

•1 year ago

4 Replies

recent worsening of RLS

I have had a worsening of my RLS over the past two weeks where I have experienced symptoms every night, severely impacting on my sleep. This is affecting my...

I have had a worsening of my RLS over the past two weeks where I have experience...

Dires

•1 year ago

26 Replies

Causes of thigh muscle pain ???

Lately I've had more and more thigh muscle pain. Some time ago a doctor mentioned "neuralgia" or fibromyalgia. Gasp! Since it's more of an issue now, I'm...

Lately I've had more and more thigh muscle pain. Some time ago a doctor mention...

ratfancy

•1 year ago

7 Replies

Lengthy however really worth your time.

https://youtu.be/vqgqtNIwCNw I am so pleased doctors are making videos about RLS and augmention

https://youtu.be/vqgqtNIwCNw I am so pleased doctors are making videos about R...

Shumbah

•1 year ago

14 Replies

Ferritin levels

Hello everyone. Just had a printout after a recent blood test. Can anyone tell me what this means - This is what it says next to serum Ferritin Level (XE24r) -...

Hello everyone. Just had a printout after a recent blood test. Can anyone tell m...

Lineker

•1 year ago

16 Replies

sleepless nights.

My story re Ropinirole is as follows. I was prescribed ropinirole by my GP and it worked well initially. However as time passed RLS started to get worse so I...

My story re Ropinirole is as follows. I was prescribed ropinirole by my GP and ...

Sleeplesnights

•1 year ago

8 Replies

Pregabalin nervousness?

I take a low dose of pregabalin at 8:30pm (100 mg) and go to bed two hours later. I am generally very tired in the evenings (much more than I would like to...

I take a low dose of pregabalin at 8:30pm (100 mg) and go to bed two hours later...

wantokporo

•1 year ago

13 Replies

Knee surgery

Hey guys! I am facing total knee replacement surgery (robotics) next month. I will be in the hospital overnight one night. I remember seeing a list in this...

Hey guys! I am facing total knee replacement surgery (robotics) next month. I...

LanaCSR

•1 year ago

2 Replies

RLS/BUPRENORPHINE/ BREATHING

I’m curious if anyone else has had sleep/breathing issues with buprenorphine. I use a sleep tracker and it started alerting me to a very serious sleep apnea...

I’m curious if anyone else has had sleep/breathing issues with buprenorphine. I ...

erinjee

•1 year ago

73 Replies

Lactulose

I have suffered badly with constipation due to taking codeine for my rls I have taking both for over a year however shying we to buy a new bottle at a chemist...

I have suffered badly with constipation due to taking codeine for my rls I have ...

Hoochybaby

•1 year ago

14 Replies

Buprenorphine

I am currently taking 300 mg Pregabalin around 7pm and 2x 30 g of codeine (sometimes 3x 30g) during the night. I am also taking ferrous sulphate at 10pm each...

I am currently taking 300 mg Pregabalin around 7pm and 2x 30 g of codeine (somet...

Happykaz

•1 year ago

9 Replies

Reference to Prof Allen video Does anyone have a maximum level they think our iron should be ?

My Iron has just dropped to 80 Nearly 4 years ago I had 4 big bags of iron I took it up to 1200 which I know is high , but my doctor was not worried because...

My Iron has just dropped to 80 Nearly 4 years ago I had 4 big bags of iron I t...

Shumbah

•1 year ago

9 Replies

RLS and epilepsy

I’m just wondering is there a link between RLS and epilepsy? My parents had RLS as do I and my siblings. My husband occasionally gets it too. There’s no...

I’m just wondering is there a link between RLS and epilepsy? My parents had RLS ...

Heather-rose

•1 year ago

6 Replies

RLS & BURPRENORPHINE

Hello everyone, I had been on Oxy for the past couple of years for pain. Recently I switched pain doctors and he switched the Oxy to Buprenorphine 8mg (film)....

Hello everyone, I had been on Oxy for the past couple of years for pain. Recent...

Josana13

•1 year ago

61 Replies

Dr Andy how to Taper off Dopamine Agonists and telling people they should not be prescribed.

https://youtu.be/_t8U89gy4G0 Some of this information is helpful . Good to show doctors that they should not prescribe dopamine agonists . Also the previous...

https://youtu.be/_t8U89gy4G0 Some of this information is helpful . Good to sho...

Shumbah

•1 year ago

8 Replies

Who knew there is an MRI that will show RLS sufferers have no iron in a the Substantia Nigra part of the brain.

https://youtu.be/4gXrvx6zkR8 The late professor Allen , certainly worth watching More children suffer from RLS than epilepsy MRI can show our brain...

https://youtu.be/4gXrvx6zkR8 The late professor Allen , certainly worth watc...

Shumbah

•1 year ago

22 Replies

RLS what for I do now

The night before last was terrible. For some years I have been taking 2x 50mg Tramadol capsules after weaning off Ropinirole about 5 years agoBut this time the...

The night before last was terrible. For some years I have been taking 2x 50mg Tr...

m1946

•1 year ago

32 Replies

Rebound from Oxy

I’m taking oxycodone for my RLS, it works well although it wears off fast. The main issue I have with it is that I get rebound symptoms as it wears off and...

I’m taking oxycodone for my RLS, it works well although it wears off fast. The...

SleeplessinOR

•1 year ago

13 Replies

Archieb

can you take pramipexole as well as Pregabalin?

Archieb48

•1 year ago

4 Replies

Symptoms Settled

Phrase "symptoms from each reduction has settled" is often mentioned here. How do I know symptoms settled, are there specific criteria?

Phrase "symptoms from each reduction has settled" is often mentioned here. How...

rls-ottawa

•1 year ago

4 Replies

My Story Up To Now

Developed RLS in my 70s. Have taken low doses of Duluxomine for 20 years to help with anxiety and depression. Am extremely sensitive to medication. I am...

Developed RLS in my 70s. Have taken low doses of Duluxomine for 20 years to help...

FreeqntFlier

•1 year ago

21 Replies

Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

All posts for May 2023

Periodic Limb Movement Disorder

Neurologist appointment

Pennygates

Iron stores

Leg discolouration

Ferritin Levels

Spacing out Mirapex/pramipexole or Lyrica/pregabalin throughout the day

Replacing Pramipexole with Pregabalin

Oxycodone, Pramipexole and Codeine.

New Way to Get More Iron

recent worsening of RLS

Causes of thigh muscle pain ???

Lengthy however really worth your time.

Ferritin levels

sleepless nights.

Pregabalin nervousness?

Knee surgery

RLS/BUPRENORPHINE/ BREATHING

Lactulose

Buprenorphine

Reference to Prof Allen video Does anyone have a maximum level they think our iron should be ?

RLS and epilepsy

RLS & BURPRENORPHINE

Dr Andy how to Taper off Dopamine Agonists and telling people they should not be prescribed.

Who knew there is an MRI that will show RLS sufferers have no iron in a the Substantia Nigra part of the brain.

RLS what for I do now

Rebound from Oxy

Archieb

Symptoms Settled

My Story Up To Now

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