Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

21,483 members • 15,160 posts

All posts for May 2023

RlS Help

Evening RLS community. I can see from reading through posts how well informed you are and might feel fustrated at providing the same guidance... but can u...

Evening RLS community. I can see from reading through posts how well informed yo...

Angie444

•1 year ago

8 Replies

Here we go again!

Many of you may recall that I have suffered terribly with restless legs and arms for decades and that I FINALLY got some relief when I was prescribed Ferrous...

Many of you may recall that I have suffered terribly with restless legs and arms...

Sher78

•1 year ago

22 Replies

Life after Sifrol?

I have augmentation and have only reduced my sifrol from .250mg to .125mg in 9 months.My body is screaming for me to increase it back up again. My sleep...

I have augmentation and have only reduced my sifrol from .250mg to .125mg in 9 m...

Retiredlady

•1 year ago

22 Replies

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Omeprazole and RLS

I’ve had worsening RLS for a while and recently realised that my Omeprazole could be a causative factor- I take 10mg daily. I’ve been reading about long term...

I’ve had worsening RLS for a while and recently realised that my Omeprazole coul...

Embroiderer

•1 year ago

13 Replies

RLS and menopause

Hey ladies! I’m suffering with menopause. What can I take to get some relief that won’t exasperate my RLS. Currently, I take the lowest dose of pramipexole and...

Hey ladies! I’m suffering with menopause. What can I take to get some relief tha...

FluteE

•1 year ago

13 Replies

Confused

At long last l received a call from one of Dr.Bagary’s team re. switching from Temgesic to Subutex. When l enquired about dosage l was advised to stay on...

At long last l received a call from one of Dr.Bagary’s team re. switching from T...

bedith6

•1 year ago

6 Replies

Seeing my GP

Hi, I've had RLS for 47 years and, as with many of us, it worsened as I got older. I have been through the DAs, Gabapentin and have just come off Pregabalin...

Hi, I've had RLS for 47 years and, as with many of us, it worsened as I got ol...

restlessinlondon

•1 year ago

5 Replies

Long term plan

If you can manage to get down to a very low dose of pramipexole and get pregabalin to help you through, what is the long term plan? How long can you stay on...

If you can manage to get down to a very low dose of pramipexole and get pregabal...

Jukebox55

•1 year ago

8 Replies

Blood results

Hi, i have now received my blood results and would like some advice please Sue/Jools. Transferrin Saturation 44% Serum Iron 25umol/l (normal 14-29) Serum...

Hi, i have now received my blood results and would like some advice please Sue/J...

Dires

•1 year ago

47 Replies

RLS and Parkinsons

A relative has Parkinsons disease. She has had some treatment that has improved her condition in the very short term, she is just two weeks since the...

A relative has Parkinsons disease. She has had some treatment that has improve...

Graham3196

•1 year ago

2 Replies

Update about the People Near Me feature

This HU feature was created back in 2015 to help connect members living locally who have similar health interests. It had good usage for a number of years but...

This HU feature was created back in 2015 to help connect members living locally ...

Kaarina

Administrator•1 year ago

2 Replies

Severe RLS for 40 years

I am a 75 year old woman who has experienced RLS since the late 1970's. I have been prescribed Requip until it didnt work, Pramipexole (Mirapex) up to 4 mg...

I am a 75 year old woman who has experienced RLS since the late 1970's. I have b...

Happygrandmother

•1 year ago

9 Replies

GABA supplements

I was wondering if anyone has taken GABA supplements for their RLS symptoms and did it help. Thank you!

I was wondering if anyone has taken GABA supplements for their RLS symptoms and...

Merny5

•1 year ago

9 Replies

Daytime leg tingling

can RLS also give daytime leg tingling in one leg? Any explanation why my RLS symptoms have worsened so much, so suddenly? Still waiting for blood results...

can RLS also give daytime leg tingling in one leg? Any explanation why my RLS ...

Dires

•1 year ago

37 Replies

Augmentation

Hi, I am trying to come off the dopamine agonist that I have been taking for the past eight years for my RLS, does anybody know if the augmentation I have...

Hi, I am trying to come off the dopamine agonist that I have been taking for the...

Mounta

•1 year ago

6 Replies

GP knew less than I did about RLS :’-(

my RLS has got considerably worse and I’m at my maximum dosage. I called for an appointment with my GP and initially she said it did sound like I had RLS....

my RLS has got considerably worse and I’m at my maximum dosage. I called for an...

Louless9

•1 year ago

10 Replies

hot legs

I notice my night time only symptom of hot sensation in legs (inside the leg not external) is seldom mentioned on the classic symptoms of rls. Are there...

I notice my night time only symptom of hot sensation in legs (inside the leg no...

Enzeno

•1 year ago

4 Replies

RLS Question

my story is simple. I’ve had restless leg, moderate to severe for almost 14 years, and I am looking for some more advice? Most of my time is spent on mirapex...

my story is simple. I’ve had restless leg, moderate to severe for almost 14 yea...

108512bea

•1 year ago

13 Replies

Reducing pramipexole

I'm on day four reducing pramipexole. Gone down from 4x0.088 to 3x0.088. This is the worst night I've had for some time. I get some RLS every night, but this...

I'm on day four reducing pramipexole. Gone down from 4x0.088 to 3x0.088. This is...

pennygates

•1 year ago

18 Replies

ropinorole and neutro patch

I’m currently on ropinorole 3mg and neupro patch 3 mg a day what is the good and bad I’ve been living with rls for over 30 years I tried getting off it in 2017...

I’m currently on ropinorole 3mg and neupro patch 3 mg a day what is the good and...

Bat3353

•1 year ago

13 Replies

Stress and RLS

I'm just wondering since RLS is caused by a lack of dopamine in the brain, does stress and anxiety also have the same effect on dopamine and can therefore...

I'm just wondering since RLS is caused by a lack of dopamine in the brain, does ...

Guitarist235

•1 year ago

10 Replies

RLS nightmare

I have had Rls for about 10 years now and am currently on Ropinirole 4mg. Nights are ok but it’s the daytime attacks that are becoming a nightmare now. I...

I have had Rls for about 10 years now and am currently on Ropinirole 4mg. Nigh...

Jimbartlett

•1 year ago

12 Replies

Rls started in afternoon

Ok so one more question. We are getting some sleep now but RLS is starting in the afternoon which it did not do before. Any ideas out there please??

Ok so one more question. We are getting some sleep now but RLS is starting in th...

Ephemera

•1 year ago

23 Replies

Gabapentin side effects

Update. Husband now on 15mg Oxycodone every night and starting to get 4 to 5 hours sleep (hooray) also taking 500mg Gabapentin 3 times a day. Still getting the...

Update. Husband now on 15mg Oxycodone every night and starting to get 4 to 5 hou...

Ephemera

•1 year ago

12 Replies

Sex and rls

Hi I'm new here and suffering with rls. I saw on one post a mention of masterbation helping rsl I'm wondering if having sex would have a similar outcome?also a...

Hi I'm new here and suffering with rls. I saw on one post a mention of masterbat...

Ceramicist

•1 year ago

27 Replies

Has anyone been on Ozempic ?

Is anybody using Ozempic or tried Ozempic and has it had any impact on RLS ?

Is anybody using Ozempic or tried Ozempic and has it had any impact on RLS ? ...

Shumbah

•1 year ago

26 Replies

Alternative ideas

I have noticed that sucking a sweet got my mind off RLS. It helps to get back to sleep as mind is occupied with something nice. Hope this works for someone! 🤞

I have noticed that sucking a sweet got my mind off RLS. It helps to get back to...

Moonwalker1967

•1 year ago

7 Replies

buprenorphine patch - any advice?

Hello, my GP has agreed to prescribe me the buprenorphine patch 5mg starting from Monday. He will not prescribe tablets at this point - he feels the patch...

Hello, my GP has agreed to prescribe me the buprenorphine patch 5mg starting fro...

Drls

•1 year ago

27 Replies

Thyroid issues

I’m wondering if any of you have been diagnosed with Hashimoto’s Disease or other thyroid issues and, if so, if getting your thyroid evened out had helped your...

I’m wondering if any of you have been diagnosed with Hashimoto’s Disease or othe...

SleeplessinOR

•1 year ago

10 Replies

Reducing Augmentation

https://sleepreviewmag.com/sleep-disorders/movement-disorders/restless-legs-syndrome/reduce-augmentation-risk-restless-legs-syndrome/ A useful article on...

https://sleepreviewmag.com/sleep-disorders/movement-disorders/restless-legs-synd...

Joolsg

•1 year ago

30 Replies

Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

All posts for May 2023

RlS Help

Here we go again!

Life after Sifrol?

Omeprazole and RLS

RLS and menopause

Confused

Seeing my GP

Long term plan

Blood results

RLS and Parkinsons

Update about the People Near Me feature

Severe RLS for 40 years

GABA supplements

Daytime leg tingling

Augmentation

GP knew less than I did about RLS :’-(

hot legs

RLS Question

Reducing pramipexole

ropinorole and neutro patch

Stress and RLS

RLS nightmare

Rls started in afternoon

Gabapentin side effects

Sex and rls

Has anyone been on Ozempic ?

Alternative ideas

buprenorphine patch - any advice?

Thyroid issues

Reducing Augmentation

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