Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

21,483 members • 15,160 posts

All posts for August 2021

Doctors letter regarding Gabapentin

Today I have received a letter from my gp's practise regarding the stopping of Gabapentin due to side effects.I presently take 4 x 300mg(2 about 9pm).Although...

Today I have received a letter from my gp's practise regarding the stopping of G...

Lambretta175

•3 years ago

9 Replies

PRAMIPEXOLE WITHDRAWAL

Hi auld grumpty again 2 weeks cutting down Pramipexole from O.180 mg by halve going to try the other half the next 2 weeks and see how it goes so far so good...

Hi auld grumpty again 2 weeks cutting down Pramipexole from O.180 mg by halve g...

auldreekie18

•3 years ago

10 Replies

Buprenorphine/ Subutex,, Temgesic,CBD, THC , Traumeel injections

I can’t not emphasis this enough Anyone starting Buprenorphine / Subutex Or the micro dose version Temgesic. You will not get this advice from your doctors...

I can’t not emphasis this enough Anyone starting Buprenorphine / Subutex Or the...

Shumbah

•3 years ago

35 Replies

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Headaches and gabapentin

Hi........I've been on gabapentin for 9 months now and it works wonderfully for my RLS. However I've been waking up with a headache on a daily basis now for...

Hi........I've been on gabapentin for 9 months now and it works wonderfully for ...

Mumswell

•3 years ago

2 Replies

Amputation?

Just kidding, new here and been reading a lot so thank you all. Been on ropinirole for 3/4 years now and it's not as effective (augmentation), so decided to...

Just kidding, new here and been reading a lot so thank you all. Been on ropiniro...

Legs-Eleven

•3 years ago

13 Replies

Sleep journal/anxiety

Just a suggestion: I keep a sleep journal to try and track triggers, drug response histories, etc. One thing I added in the last year was tracking how good...

Just a suggestion: I keep a sleep journal to try and track triggers, drug respo...

wantokporo

•3 years ago

11 Replies

CBD oil for rls

Hi,I'm thinking of trying cbd oil for the rls,has anyone had any luck with it and could I pick people's brain's and ask for recommendations for the best type...

Hi,I'm thinking of trying cbd oil for the rls,has anyone had any luck with it an...

Cameronb

•3 years ago

23 Replies

Reducing Amiltriptyline

Hi all just an update to my reducing of the Amiltriptyline I take at night. Its been a week and a bit where I've taken one every other night and found that on...

Hi all just an update to my reducing of the Amiltriptyline I take at night. Its ...

Katielove53

•3 years ago

6 Replies

THE EXPERT PATIENT IN RLS

This is the last of my planned posts challenging the view that ONLY biomedical remedies are needed to help manage RLS. Like previous posts this is a...

This is the last of my planned posts challenging the view that ONLY biomedical r...

Hidden

•3 years ago

38 Replies

New report in about Lyrica

GPs to stop prescribing Pregabalin/Lyrica, linked to 186 deaths in Northern Ireland. Link-...

GPs to stop prescribing Pregabalin/Lyrica, linked to 186 deaths in Northern Irel...

Frankiefocus

•3 years ago

19 Replies

An update

Hello again, it has been awhile because of being too busy or depressed to get around to posting anything. Anyway, 3 years on and no respite from RLS, my...

Hello again, it has been awhile because of being too busy or depressed to get ar...

Elaniemarie

•3 years ago

18 Replies

Involuntary movements

Who else experiences involuntary movements when trying to fall asleep? A few times per week, usually while lying in bed, my legs would suddenly kick/jerk or my...

Who else experiences involuntary movements when trying to fall asleep? A few tim...

Thunderstormy

•3 years ago

16 Replies

Upcoming Appointment

Hello, fellow RLS'ers, This is actually my first post; I've been a member of our community for 3 1/2, and years have learned a lot in that time. I'm a 60yo...

Hello, fellow RLS'ers, This is actually my first post; I've been a member of our...

Wys801

•3 years ago

11 Replies

Happy to be here !

Hi there ! I just joined this community and have RLS. I have been on Mirapex for already 15 years. I have extremely low ferritin levels. I have received iron...

Hi there ! I just joined this community and have RLS. I have been on Mirapex for...

Hope61

•3 years ago

9 Replies

Panic Attacks and Intense Anxiety after weaning off Ropinirole

Did any one out there find that they had severe anxiety or panic attacks immediately after weaning off Ropinirole? I was so proud to finally be off of that...

Did any one out there find that they had severe anxiety or panic attacks immedia...

Todge

•3 years ago

4 Replies

Royal College of GPs and RLS

The RCGP have written to me stating "It would be expected that any doctor who is a generalist dealing with patients with RLS would inform themslves...

The RCGP have written to me stating "It would be expected that any doctor who is...

Hidden

•3 years ago

32 Replies

Would be interested in others experience with tolerance to gabapentin

I was on 1400 mg gabapentin for 58 days which completely eliminated my restless legs, but then had to increase it to 1500 mg because of restless legs. I have...

I was on 1400 mg gabapentin for 58 days which completely eliminated my restless ...

SueJohnson

•3 years ago

Be the first to reply

Iron supplements

I just looked up my last blood test and my red blood cell count a year ago was 4.05 10* 12/L. Do I need to take an iron supplement and if so is anyone here...

I just looked up my last blood test and my red blood cell count a year ago was 4...

Stelladevico

•3 years ago

5 Replies

Rls

I just want to say I’ve suffered badly with rls and insomnia for years and my sleep pattern has been horrible with very little sleep due to awful tendency to...

I just want to say I’ve suffered badly with rls and insomnia for years and my sl...

Hoochybaby

•3 years ago

24 Replies

RLS relief

I was participating in a site like this years ago and did find it beneficial. I am new to this one and looking forward to hearing your thoughts, remedies,...

I was participating in a site like this years ago and did find it beneficial. I ...

skore50

•3 years ago

1 Reply

RLS v Tramadol withdrawal symptoms

My Specialist prescribed Tramadol for sciatica pain relief and now if I try to withdraw it I get severe RLS symptoms. I don’t know whether it is RLS or...

My Specialist prescribed Tramadol for sciatica pain relief and now if I try to ...

dinyar65

•3 years ago

4 Replies

Pregabalin Overload!

Just started a new prescription of the above two days ago. I noticed I struggled to get up yesterday and felt a little “drugged” and today the feeling is even...

Just started a new prescription of the above two days ago. I noticed I struggled...

MumofSam

•3 years ago

6 Replies

RLS temporary relief suggestion

Hi all, I suffer with RLS for years but my GP has avoided prescribing medication. However, I have tried few different things to get a relief from legs kicking...

Hi all, I suffer with RLS for years but my GP has avoided prescribing medicatio...

laviniaLavi

•3 years ago

20 Replies

Hot and cold pads and RLS

My RLS symptoms normally start reasonably gently every night around 2115-2130 But it seems that if I use hot or cold pads to treat any other problems at this...

My RLS symptoms normally start reasonably gently every night around 2115-2130 B...

thorp

•3 years ago

7 Replies

weight gain and pramipexole

does pramipexole give weight gain and swollen legs and feet ,even if i watch what i eat i put on weight , also feet and legs swollen even wearing prescription...

does pramipexole give weight gain and swollen legs and feet ,even if i watch wha...

auldreekie18

•3 years ago

17 Replies

Anyone using Oxycodone?

I've had severe RLS for years, but I also have Ankylosing Spondylitis so I'm on Tremadol for the pain (can't take anti inflammatories due to stomach problems)...

I've had severe RLS for years, but I also have Ankylosing Spondylitis so I'm on ...

KikiLea

•3 years ago

26 Replies

SLEEP

I’ve been struggling for some weeks to put together this post. Everything I’ve written is based on established facts or theories. Some is based on research...

I’ve been struggling for some weeks to put together this post. Everything I’ve ...

Hidden

•3 years ago

22 Replies

Doctors prescribe pain killer for RLS

I have been trying to take low dose ropinole with hydro ozone This worked for me several years Switched insurance took my pain killer away Now my RLS show up...

I have been trying to take low dose ropinole with hydro ozone This worked for m...

help3

•3 years ago

6 Replies

An updated Algorithm

The latest copy of Nightwalker from the RLS Foundation has a piece entitled “The management of RLS: An updated Algorithm” A copy of this is available at...

The latest copy of Nightwalker from the RLS Foundation has a piece entitled “The...

martino

•3 years ago

2 Replies

rls- meds- how to stop taking what doctors prescribe think it would be easier to stop all meds- do not know how

ROPINOLE i take .5 mg 3 times evening. i do not want to take ropinole any more. i have tried going cold turkey by third night i give in. due to Monday morning...

ROPINOLE i take .5 mg 3 times evening. i do not want to take ropinole any more. ...

help3

•3 years ago

3 Replies

Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

All posts for August 2021

Doctors letter regarding Gabapentin

PRAMIPEXOLE WITHDRAWAL

Buprenorphine/ Subutex,, Temgesic,CBD, THC , Traumeel injections

Headaches and gabapentin

Amputation?

Sleep journal/anxiety

CBD oil for rls

Reducing Amiltriptyline

THE EXPERT PATIENT IN RLS

New report in about Lyrica

An update

Involuntary movements

Upcoming Appointment

Happy to be here !

Panic Attacks and Intense Anxiety after weaning off Ropinirole

Royal College of GPs and RLS

Would be interested in others experience with tolerance to gabapentin

Iron supplements

Rls

RLS relief

RLS v Tramadol withdrawal symptoms

Pregabalin Overload!

RLS temporary relief suggestion

Hot and cold pads and RLS

weight gain and pramipexole

Anyone using Oxycodone?

SLEEP

Doctors prescribe pain killer for RLS

An updated Algorithm

rls- meds- how to stop taking what doctors prescribe think it would be easier to stop all meds- do not know how

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