Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

22,178 members • 16,104 posts

All posts for January 2020

Ongoing RLS sufferer

I have been a sufferer of RLS for ten years and more and currently on increasing dose of Ropinirole which has been more successful than pramixepole and...

I have been a sufferer of RLS for ten years and more and currently on increasing...

Debsamuels

•5 years ago

4 Replies

Trying to push through the pain

I take comfort in reading these posts, although I wish that none of us had to deal with RLS. I just flew from Raleigh to NYC to pet sit my grandpups. I was in...

I take comfort in reading these posts, although I wish that none of us had to de...

Nlthomp

•5 years ago

40 Replies

Grrrrr. Rant on docs.

I've apparently run across a rule-follower of a doc. Moved to a new city, and saw her for dizziness, RLS and neck pain. After a bunch of referrals to other...

I've apparently run across a rule-follower of a doc. Moved to a new city, and sa...

Marlayna67

•5 years ago

13 Replies

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Rls

I just want to say a thank you to everyone that have helped me on this forum I didn’t realise until I read the post starting a few years ago how knowledgable...

I just want to say a thank you to everyone that have helped me on this forum I d...

Hoochybaby

•5 years ago

3 Replies

get out of this community

Can someone please tell me how to get out of the restless leg syndrome community...I don't have this condition and really don't know how I ended up here...

Can someone please tell me how to get out of the restless leg syndrome community...

pizon

•5 years ago

6 Replies

Sleep study test

Has anyone had a sleep study test because of not sleeping with RLS? If so, any positive results? I have had RLS since 2001

Has anyone had a sleep study test because of not sleeping with RLS? If so, any p...

Smoke0728

•5 years ago

10 Replies

Should I keep going with gabapentin?

I've seen a neurologist who prescribed 300mg gabapentin at night for a month to be increased by another 300mg in the morning if it seemed helpful and side...

I've seen a neurologist who prescribed 300mg gabapentin at night for a month to ...

juweave

•5 years ago

4 Replies

That’s what the bad fairies do to you

I flippin knew I shouldn’t have boasted about getting some sleep because here we go again. Standing in the kitchen, leaning against the benches kicking my legs...

I flippin knew I shouldn’t have boasted about getting some sleep because here we...

bellalurcher

•5 years ago

6 Replies

Effects of Coming off Rotigitone (Neupro Patches

Can anyone share with me experience of coming off Rotigitone please. I've been on 2mg patches for around 15 years but they had started not to be as effective...

Can anyone share with me experience of coming off Rotigitone please. I've been...

omtenaj

•5 years ago

21 Replies

Tramadol and RLS

Hi all, I currently take 3 x 1 tramadol tablet from 6pm till 11pm and find it does the job of stopping RLS. I feel very tired most days, I have other health...

Hi all, I currently take 3 x 1 tramadol tablet from 6pm till 11pm and find it do...

Marrob

•5 years ago

13 Replies

Topamax

Does anyone take Topamax for RLS? I take ropinerole and don’t sleep without it but suffer some horrible side effects. Apparently Topamax comes with little or...

Does anyone take Topamax for RLS? I take ropinerole and don’t sleep without it b...

nosleep1969

•5 years ago

2 Replies

Daytime RLS

My RLS is worse during the day now. I've had it since childhood, but recently the symptoms are worse during the day. I still don't sleep at night. I also have...

My RLS is worse during the day now. I've had it since childhood, but recently th...

Arkangel

•5 years ago

16 Replies

pramipexole

hi guys been on many medications unfortunately the tablets that were ment to put me to sleep drove me crazy, been on pramipexole for a while didn't help much...

hi guys been on many medications unfortunately the tablets that were ment to put...

frank1942

•5 years ago

3 Replies

Miracles do happen

Ok, so I’m not one to brag (and you can call me names if you want to) but last night was the third night in a row that I had 4 hours sleep. Yes, really! I...

Ok, so I’m not one to brag (and you can call me names if you want to) but last n...

bellalurcher

•5 years ago

11 Replies

Leg Air Massager for Circulation and Relaxation Foot and Calf Massage

Has anyone used this type of massager to help with RLS On the amazon website for this it says it can help with RLS

Has anyone used this type of massager to help with RLS On the amazon website fo...

1234kids

•5 years ago

11 Replies

Multi Vitamin that doesn't induce RLS

Hi , I have never been able to take Vitamins because after 3 or 4 days they seem to make my RLS worse. I've spent a small fortune over my lifetime trying to...

Hi , I have never been able to take Vitamins because after 3 or 4 days they seem...

Icansawmyfeetoff

•5 years ago

6 Replies

Ropinerole query

Hi all. So I’ve been thinking, I currently take 2mg (2x1mg) ropinerole 1 hour before bed for PLMD, Currently it hits me like a truck and I go to bed like a...

Hi all. So I’ve been thinking, I currently take 2mg (2x1mg) ropinerole 1 hour b...

Alfsdad86

•5 years ago

10 Replies

Pramipexole

Can some one tell me please , I have been taking 268 MCG of Pramipexole for about 2 months it has been wonderful no pain with plenty of sleep, now. it’s all...

Can some one tell me please , I have been taking 268 MCG of Pramipexole for abou...

beady3

•5 years ago

23 Replies

Munchies and neupro

I do get the munchies but don’t have neutron patches. I am wondering if they work for RLS?

I do get the munchies but don’t have neutron patches. I am wondering if they wor...

1234kids

•5 years ago

1 Reply

Brand names for topirinol

Hi e1 first post had rls got about 6 years and was on ropirinol but cant remember what brand it was and my chemist recently changed me on to ardatrel which is...

Hi e1 first post had rls got about 6 years and was on ropirinol but cant remembe...

Yohanan

•5 years ago

4 Replies

3.30am

No sleep Rls alnight Waiting for sunrise Exhausted!!

Hoochybaby

•5 years ago

10 Replies

Give Peace a Chance!

I just wanted to convey what I think this forum should be about, if you all don’t mind please? I feel this forum is to provide support, companionship,...

I just wanted to convey what I think this forum should be about, if you all don’...

Hidden

•5 years ago

20 Replies

Anyone else get the munchies?

Hi, Does anyone else get the munchies when using the neupro patches? I’m binge eating really badly. If it’s not nailed down I will eat it ! My hubby taking...

Hi, Does anyone else get the munchies when using the neupro patches? I’m binge...

bellalurcher

•5 years ago

6 Replies

48 Hours with no sleep results in hallucinations

Hi all, new to this site and though I would share my recent experience. I take 2mg of ropinerole nightly to control my restless legs. The ropinerole comes...

Hi all, new to this site and though I would share my recent experience. I take ...

nosleep1969

•5 years ago

27 Replies

Brian RLS grief

I live Dorset UK I have had RLS for about 4 years Iam 75 at the moment taking rapinarole full dose ,good eve and night but not in the day iam also trying...

I live Dorset UK I have had RLS for about 4 years Iam 75 at the moment taking ra...

Griefpepsi13

•5 years ago

2 Replies

Update on gp visit

Hello I feel like I'm getting different information yet again. I visited my GPshe was very understanding about my RLS. She tried to put me on ropinerole but I...

Hello I feel like I'm getting different information yet again. I visited my GPs...

Netball-50

•5 years ago

18 Replies

A Big Thankyou

I want to thank everyone who responded to my plea for help regarding my oxycodone treatment. I have received lots of good advice and am at present...

I want to thank everyone who responded to my plea for help regarding my oxycodon...

Jelbea

•5 years ago

2 Replies

Here we go again!

First of all thank you for all of your replies to my posts. It really does make a difference knowing that you are not alone in this hell. Well folks, hospital...

First of all thank you for all of your replies to my posts. It really does make ...

bellalurcher

•5 years ago

10 Replies

How do you deal with RLS?

Hello, I’ve been dealing with RLS for at least ten years. At times, it keeps me up for hours. Currently I’m taking 3mg of Ropinirol at bedtime, and have also...

Hello, I’ve been dealing with RLS for at least ten years. At times, it keeps me ...

Nlthomp

•5 years ago

8 Replies

🧟‍♀️

This is my fourth night with absolutely no sleep whatsoever and I’m losing my grip on reality. I’ve been using neupro patches for ages but am now being weaned...

This is my fourth night with absolutely no sleep whatsoever and I’m losing my gr...

bellalurcher

•5 years ago

5 Replies

Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

All posts for January 2020

Ongoing RLS sufferer

Trying to push through the pain

Grrrrr. Rant on docs.

Rls

get out of this community

Sleep study test

Should I keep going with gabapentin?

That’s what the bad fairies do to you

Effects of Coming off Rotigitone (Neupro Patches

Tramadol and RLS

Topamax

Daytime RLS

pramipexole

Miracles do happen

Leg Air Massager for Circulation and Relaxation Foot and Calf Massage

Multi Vitamin that doesn't induce RLS

Ropinerole query

Pramipexole

Munchies and neupro

Brand names for topirinol

3.30am

Give Peace a Chance!

Anyone else get the munchies?

48 Hours with no sleep results in hallucinations

Brian RLS grief

Update on gp visit

A Big Thankyou

Here we go again!

How do you deal with RLS?

🧟‍♀️

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