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All posts for November 2023

Coming off DMTS

Good morning Everyone! My Neuro has been talking to me about coming off my DMT (Avonex) I'm 63 and studies show that efficacy /new flares lessen as you get...

Good morning Everyone! My Neuro has been talking to me about coming off my DMT ...

scoutman

•6 months ago

19 Replies

Why do I have to keep proving I’m in pain

Why does the medication I need to be stable have so many restrictions? Yes, I know, people who have abused it have died. People have also survived with it....

Why does the medication I need to be stable have so many restrictions? Yes, I k...

Wtfisup

•6 months ago

54 Replies

Join MSAA for a free educational webinar in Spanish on 11/9

*This webinar will be presented entirely in Spanish.* Cuando una persona recibe el diagnóstico de EM, hay muchas preguntas, dudas e inquietudes que podrían...

*This webinar will be presented entirely in Spanish.* Cuando una persona recibe...

EmilyG_MSAA

Partner•6 months ago

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Truth!

When you wake up, and watch the time, hoping you can just go to bed now! You know your tired! 😴 But if you take a nap, you will never sleep tonight!...

When you wake up, and watch the time, hoping you can just go to bed now! You kno...

Jesmcd2

CommunityAmbassador•6 months ago

24 Replies

5 Nov 2023 G'day yet again

G'day my ms family, no exclusions, EVERYBODY. Have a good restful day today. Sit on your butt and do nothing, or of course do what I am going to do....

G'day my ms family, no exclusions, EVERYBODY. Have a good restful day today. ...

RoyceNewton

•6 months ago

3 Replies

Hi Everyone!

Well, I've been on quite a journey. To say the least. I've had MS for22 years and I stopped all treatments back in 2018. I've had 17 years of injections. I...

Well, I've been on quite a journey. To say the least. I've had MS for22 years an...

ganna64

•6 months ago

39 Replies

The Migraine Journey!

Hello Community Fam, hooray it's Friday. I wanted to know if anyone is currently taking Nurtec for migraines. I had to titrate off of Topiramate -due to my...

Hello Community Fam, hooray it's Friday. I wanted to know if anyone is currently...

GratefulNeeC

•6 months ago

11 Replies

I do really try...

But, others have to try my patients! Seriously, some Drs just shouldnt be. I went and saw my PC last month, l told her l needed a TB test, (neuro said to get...

But, others have to try my patients! Seriously, some Drs just shouldnt be. I w...

Jesmcd2

CommunityAmbassador•6 months ago

10 Replies

3 Nov 2023 G'day ms brothers and sisters

G'day, I think that should be Sisters and brothers. I am not sure either way G'day. Beautiful day today, no unplanned accidents like yesterday, no ,nice...

G'day, I think that should be Sisters and brothers. I am not sure either way G...

RoyceNewton

•6 months ago

2 Replies

when to call your neurologist

I recently started seeing a new neurologist this year. Since then I’ve had a flare up of eye problems. I have been having severe double vision and eye pain. I...

I recently started seeing a new neurologist this year. Since then I’ve had a fla...

Littledeer

•6 months ago

21 Replies

Busy day today - O + show + interviews

Full day but all good. - Ocrevus infusion went well as expected. This time around, they gave me the steroids 5-10 min before Benadryl and I did not feel any...

Full day but all good. - Ocrevus infusion went well as expected. This time aro...

anaishunter

•6 months ago

11 Replies

Is this spasticity?

I am undiagnosed (appt with neuro scheduled), and trying to understand what is going on with my body. One of my symptoms is pain on the bottoms of my feet,...

I am undiagnosed (appt with neuro scheduled), and trying to understand what is g...

occasionalyeti

•6 months ago

16 Replies

It's Been Awhile!

Hello this stepsforNeeC. After a long few months of doctor appointments, changing Migraine Meds etc., I experienced technical issues. So I'll be...

Hello this stepsforNeeC. After a long few months of doctor appointments, changi...

GratefulNeeC

•6 months ago

15 Replies

Are the undiagnosed allowed here?

Hi all, I have not yet been diagnosed with MS. No MRI yet. I have a scheduled appt with a neuro in December, but my body seems to just be totally over 2023,...

Hi all, I have not yet been diagnosed with MS. No MRI yet. I have a scheduled ...

occasionalyeti

•6 months ago

9 Replies

2 Nov 2023 G'day R U Well?

G'day ms family. Time to answer the question. Are YOU? If not, WHY NOT. Are YOU doing everything that YOU can too be the best YOU? Come on, life...

G'day ms family. Time to answer the question. Are YOU? If not, WHY NOT. ...

RoyceNewton

•6 months ago

7 Replies

Mood Swings...

Just saying the words send me into a swing😂🤣😂 Now, l dont know if this is true or not... 🤣 l can be the happiest person around, til someone tics me...

Just saying the words send me into a swing😂🤣😂 Now, l dont know if this is tru...

Jesmcd2

CommunityAmbassador•6 months ago

19 Replies

How to pay for Assisted Living

Additional tips to pay for assisted living, posted on MSN.com, today, November 2, 2023:...

Additional tips to pay for assisted living, posted on MSN.com, today, November 2...

DM0329

•6 months ago

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love who ya are ! Careful of stress . Crying . . The inflammation carries on for days

happy birthday

309Ygi

•6 months ago

7 Replies

Panic Attack

I went to a dermatologist last week to have a cyst removed from my shoulder, and as usual Roman, my husband, came with me. The nurse took us back to the exam...

I went to a dermatologist last week to have a cyst removed from my shoulder, and...

Curlygoats

•6 months ago

24 Replies

1st Ocrevus infusion today!

I'm sitting in the infusion center having just finished my first half dose of Ocrevus. Now I just am getting the flush so I get every single drop of medicine...

I'm sitting in the infusion center having just finished my first half dose of Oc...

Szs3eb

•6 months ago

12 Replies

Struggling...

So, I've been struggling the last several months. Much moreso than my normal day-to-day struggles. I posted about one: my recent prostate cancer diagnosis....

So, I've been struggling the last several months. Much moreso than my normal day...

Angler_Eric

•6 months ago

7 Replies

1 Nov 2023 Pinch and a punch for the the first day of the month.

G'day ms family. I wish YOU to be well and coping with this illness as best YOU can, Do you occasionally read the replies people send me? It is okay to...

G'day ms family. I wish YOU to be well and coping with this illness as best Y...

RoyceNewton

•6 months ago

8 Replies

How is he?

Kenu has been conspicuously absent for quite a while. Hoping and praying for the best but fearing otherwise.

Kenu has been conspicuously absent for quite a while. Hoping and praying for th...

whwiechm

•6 months ago

3 Replies

lbenmaor Happy Birthday November 1st 🎂🧘🏻‍♀️🎂

lbenmaor, Happy Birthday from your HU forum family! Enjoy your special day, my friend! 🥳

lbenmaor, Happy Birthday from your HU forum family! Enjoy your special day, my f...

carolek572

CommunityAmbassador•6 months ago

11 Replies

Family member with MS

I want to hear from others that has a family member suffering with MS.

Masis1960

•6 months ago

7 Replies

Funny Story

Sometimes I have to take doctor appointments when I can get them, so we had to leave just when the trick-or treaters were coming out in force. The last time I...

Sometimes I have to take doctor appointments when I can get them, so we had to l...

CatsandCars

•6 months ago

9 Replies

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Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for November 2023

Coming off DMTS

Why do I have to keep proving I’m in pain

Join MSAA for a free educational webinar in Spanish on 11/9

Truth!

5 Nov 2023 G'day yet again

Hi Everyone!

The Migraine Journey!

I do really try...

3 Nov 2023 G'day ms brothers and sisters

when to call your neurologist

Busy day today - O + show + interviews

Is this spasticity?

It's Been Awhile!

Are the undiagnosed allowed here?

2 Nov 2023 G'day R U Well?

Mood Swings...

How to pay for Assisted Living

love who ya are ! Careful of stress . Crying . . The inflammation carries on for days

Panic Attack

1st Ocrevus infusion today!

Struggling...

1 Nov 2023 Pinch and a punch for the the first day of the month.

How is he?

lbenmaor Happy Birthday November 1st 🎂🧘🏻‍♀️🎂

Family member with MS

Funny Story

Search posts

Pinned Posts

Latest poll

Have you ever attended a webinar hosted by MSAA?

Topics

Archive