Are the undiagnosed allowed here?

[occasionalyeti]

Hi all,

I have not yet been diagnosed with MS. No MRI yet. I have a scheduled appt with a neuro in December, but my body seems to just be totally over 2023, and MS is what I suspect. So of course, now I am playing that game where I analyze everything that happens to my body and wonder if it is a symptom of MS, something else, or head games my body is playing with me.

Am I allowed to ask questions here? I am in a FB group, but sometimes people seem pretty annoyed to see the undiagnosed coming on and asking questions, so I wanted to check first.

Thank you!

[NorasMom]

As far as I know, everyone civil is welcome here! Personally, I welcome the undiagnosed because I remember how frustrating those years were for me. You're not quite grasping at straws, but you've learned enough to take Dr. Google with a grain of salt. Much better to discuss your issues with people who have already been there.

[kdali]

Hi! Yikes, I would nope right out of any group that tolerated trolls 😱

[goatgal]

Many of us here have had a similar journey to diagnosis. We can't give you a diagnosis, but we can share our experiences and that may be helpful to you in your struggle to sort things out. Diagnosis can only come from a medical doctor using the Macdonald criteria, but we can sometimes offer pragmatic advice that comes from our experience dealing with symptoms. I hope you don't have MS, but you are welcome to visit here.

[StacyHayward]

of course you’re welcome! I hope you get answers!

[Jesmcd2 CommunityAmbassador]

Hi occasionalyeti welcome! Of course your welcome🙂 and feel free to ask any questions you have... Or look them up if you rather.

Are you seeing an MS Neuro? Is that what they are checking you for? 🙁 Just asking because MS can mimic all kinds of things. Its funny that way...

Anyway, 🤣 you can check out mymsaa.org/ for all kinds of info also!

🤗💕🌠

[Scout4x4]

Yes you're welcome here. 😊 When your neurologist is testing for MS you need the following. Blood work, CBC with differentl.

MRI'S

One of the head. One of your cervical spine. If they can't diagnose from those request a spinal tap.

This is the commen protocol for an MS diagnoses.

[occasionalyeti in reply to Scout4x4]

Thanks! This is helpful. I did get bloodwork including CBC panel with my regular doc. Neuro is in Dec.

[CatsandCars]

Good luck to you. It's scary not knowing what's going on with your body, and it's hard not getting answers. I think a lot of us went through a lot of doctors and a lot of tests and got mostly shrugs for answers before being finally being diagnosed. I hope you don't have MS, but there are a lot of treatments now, whereas in the early 90's there was nothing.

[Mollyabigail]

You are most definitely allowed here. Sorry for the late reply. Just lost my mother 4 weeks ago, & I have been MIA lately. Please keep us posted. I remember the not knowing & wondering what the heck was going on. Prayers for you being lifted. We are here if you need to talk.