Ocruvus

[Jesmcd2]

So, what do you do when you dont get the answers you want? 🤔 Call and make another appt, and tell them...

Im NOT a quitter! And what is the strongest thing they give me, for 14 days 😖 Morphine... It better f#%=$ work! 😐

So l am going to take O dec 27th 😞

🤗💕🌠

[carolek572 CommunityAmbassador]

Glad to hear from you,  Jesmcd2 , and that you are still able to tolerate Ocrevus infusions - somewhat. Mine is scheduled in a couple of weeks, and I am looking forward to it because I haven’t experienced any negative effects from any prior infusions. We are all different. Keep Smiling, my friend

[Jesmcd2 CommunityAmbassador in reply to carolek572]

Im glad your not having any affects😁 and its working well for you! Works great for me too, I just cant tolerate it, but lm more scared of not taking it 🙁 its a damn if ya do or damn if ya dont🤷‍♀️ 🤗💕🌠

[carolek572 CommunityAmbassador in reply to Jesmcd2]

I agree, Jesmcd2

[erash]

stay strong Jesmcd2 👊

And I hope the morphine helps 🤞

[Jesmcd2 CommunityAmbassador in reply to erash]

Always! 😁 How are you? 🤗💕🌠

[erash in reply to Jesmcd2]

I feel good. Though something (maybe Ocrevus 🤷‍♀️ my last infusion was 3 yrs ago) messed up my immune system (B and T cells) and I’m having a bone marrow biopsy on Wednesday To hopefully get to the bottom of this.

[Jesmcd2 CommunityAmbassador in reply to erash]

😐 that doesnt sound good🙁 Or like a good time🙁 How long does that take? 🤔 Cause l know its going to hurt🤗💕🌠

[erash in reply to Jesmcd2]

I’m doing without anesthesia, so total procedure is under 10 minutes. After having trigeminal neuralgia, a few minutes of discomfort doesn’t seem like a big deal. I’ll let u know 🤣

[Jesmcd2 CommunityAmbassador in reply to erash]

I can give you meditaion for pain 😐 you can wish it away, so they tell me.. 🤣 🤗💕🌠

[erash in reply to Jesmcd2]

It does help take the edge off

🧚‍♀️ fairy dust 😊

[Neworleanslady in reply to erash]

Good luck!

[falalalala]

I hope it does work for you, Jesmcd2.

[Jesmcd2 CommunityAmbassador in reply to falalalala]

Me too! Hows ya doing? Staying out of trouble? 🤔🤣🤗💕🌠

[falalalala in reply to Jesmcd2]

All's well, thanks.

No trouble here.😅

[Tazmanian]

My ocrevus is in January and my neurologist is trying to get me home infusion I'll let you all know how it goes if it happens enjoy the morphine

[Jesmcd2 CommunityAmbassador in reply to Tazmanian]

Really??? Geeze even when my infusions were good, my doc wouldnt let me have my infusions in my own hospital. I hope it works out for you! 🤗💕🌠

[Tazmanian in reply to Jesmcd2]

Nothing is set yet but I am hopeful

[Jesmcd2 CommunityAmbassador in reply to Tazmanian]

🤞🤗💕🌠

[kdali]

I hope it helps! Do they check your B cells before infusions?

I'm definitely a quitter 🤣

[Jesmcd2 CommunityAmbassador in reply to kdali]

They check the day of🤷‍♀️ and l hope it helps too... but its kinda like this, the h@@@ l know, or the h@@@ l dont know🙁 l cant afford another george. I might not get so lucky next time.. 🤗💕🌠

[kdali in reply to Jesmcd2]

I know, it's just sad what you have to go through. I wish there were something else, or maybe something new will come along that you can tolerate.

[Jesmcd2 CommunityAmbassador in reply to kdali]

You are NOT a quitter! 😐🤗💕🌠

[kdali in reply to Jesmcd2]

Well, I quit O and was tempted to quit all of them 😵‍💫 I want to quit MS. I have my resignation letter ready, just can't find where to send it.

[Jesmcd2 CommunityAmbassador in reply to kdali]

😲 All of them? Prob not a good idea 😔 Maybe we can start a petition against MS? Banning it forever! 🤔🙂🤗💕🌠

[kdali in reply to Jesmcd2]

Yeah, I was so close to giving up. I'm glad I didn't.

Can we cancel MS? 🤣

[Neworleanslady]

good luck!

[Jesmcd2 CommunityAmbassador in reply to Neworleanslady]

Thank you!! 🤗💕🌠