RLS with much more

[Wanted-sleep]

I am exploring beyond just my having RLS.

Any sharing from others that have/had RLS that was later labelled MS would be very welcome.

I know and feel there is so much more going on than just RLS.

Ailments/symptoms that pop up like a light swith just to be turned off after a lapses in time is concerning and annoying. There are several.

Each hand and wrist

Sole of right foot in pain off/on for weeks.

Tennis elbow even though never held a racket in years yet it has been a couple of months waiting for it to return to normal.

Weeks of a plugged ear misteriously disappears and returns to normal.

Neck and back pains just come and go?

Feedback most welcome. Advise for fixes.

MS or not?

[NorasMom]

I've never been diagnosed with Restless Legs, but one of my first MS symptoms was leg issues. I had the twitchiness and weird aches regularly at night. Sometimes, they'd be so bad that I'd cry myself to sleep. Are you feeling a heaviness in one or both legs when you walk any distance in hot weather? Or you reach a point where your legs just won't move for a bit and then suddenly they're fine after you pause for a minute or two?

[PWilli]

I had Passive Leg Movement Disorder before being diagnosed with MS. Now I have both. I don’t have the RLS sensations, my legs are in motion while I sleep - I was unaware of it until a sleep study. Some nights when I crawl in bed I accuse my husband of moving his legs and then find out it’s actually mine moving. 😜

[Frances_B]

Re your question "MS or not?". No-one here can tell you - you will need to talk to your doctor and if they think it necessary you can be referred to a neurologist for appropriate tests. There are many MS mimics which only doctors can rule out through doing relevant tests - it's not as simple as matching a list of your symptoms with those you can find online from people in chat rooms like this one and then asking those people if they think you have MS. The causes of what is causing your symptoms could be several unrelated problems.

[Tazmanian]

Make sure you see an ms neurologist