Posts - My MSAA Community | HealthUnlocked

My MSAA Community

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All posts for June 2023

Dr. phone call!

Amazing- I received a thank you phone call from my Dr. thanking me for the card I wrote her letting her know how much I appreciate her help in getting my...

Amazing- I received a thank you phone call from my Dr. thanking me for the card...

lbenmaor

•1 year ago

29 Replies

Ampyra

I have been on Ampyra/Dalfampridine for about 4 years. I am thinking of stopping as it is expensive. What effect may it have on my MS? does anyone have any...

I have been on Ampyra/Dalfampridine for about 4 years. I am thinking of stopping...

whwiechm

•1 year ago

8 Replies

Little Laughter 😂

A beautiful morning here in Pocatello Idaho ☀️ Been nice the last couple of days, little wind but no thunderstorms ⛈️. Need to get lawn trimmed and mowed...

A beautiful morning here in Pocatello Idaho ☀️ Been nice the last couple of days...

Kenu

•1 year ago

8 Replies

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MRI Day

Morning Crew, Today is head MRI day. An afternoon in the "Tube of Terror"... 😄 First one I've had in 5 years because I complained to my neuro that I'm having...

Morning Crew, Today is head MRI day. An afternoon in the "Tube of Terror"... 😄...

Squirrel1270

•1 year ago

26 Replies

MS or PMR or both

I've joined this community to run my symptoms by you. For weeks now I've been having excruciating pain with back muscles spasming. The spasms go from hip...

I've joined this community to run my symptoms by you. For weeks now I've been ha...

Missus835

•1 year ago

17 Replies

15 Jun 2023 At last

G'day ms family. It has taken lots of maneuvering BUT. AT LAST the first dose of Ocrevus is due Sunday morning, they would not let me do it any sooner so...

G'day ms family. It has taken lots of maneuvering BUT. AT LAST the first do...

RoyceNewton

•1 year ago

11 Replies

Join MSAA for a webinar on June 21st!

Únase a la MSAA y la Dra. Erica Rivas-Rodríguez para el seminario web en vivo y en español sobre los tratamientos modificadores en la EM y la influencia de las...

Únase a la MSAA y la Dra. Erica Rivas-Rodríguez para el seminario web en vivo y ...

MSAA_archived

•1 year ago

Be the first to reply

14 Jun 2023 How are YOU?

G'day family. How are YOU? Think about this. How is your important somebody? Good to not always think of ourselves, Royce,

G'day family. How are YOU? Think about this. How is your important somebod...

RoyceNewton

•1 year ago

4 Replies

14 June 2023 Let me state the obvious

G'Day sisters and brothers. last night's rest was deep, with no mischievous ms gremlins upsetting your rest. They are good like that(sarcasm) just when...

G'Day sisters and brothers. last night's rest was deep, with no mischievous ms...

RoyceNewton

•1 year ago

4 Replies

Unplanned Pregnancy & MS

So I was diagnosed with MS last year and had between 6-8 infusions with Ocrevacus. I ended up going to the ER last week due to Tingling/Numbness in my chest &...

So I was diagnosed with MS last year and had between 6-8 infusions with Ocrevacu...

Marz91

•1 year ago

19 Replies

Gentle Thoughts for Today

Cleaning out my desk a bit and found these. It made me think of our group! Birds of a feather flock together and crap on your car. A penny saved is a...

Cleaning out my desk a bit and found these. It made me think of our group! Bird...

Mollyabigail

•1 year ago

11 Replies

Anyone with trigeminal neuralgia diagnosis prior to autoimmune diagnosis?

My daughter was diagnosed with trigeminal neuralgia (TN) aged 22. At the time she had an ANA of 640:1 but no specific antibodies. I have heard from a USA...

My daughter was diagnosed with trigeminal neuralgia (TN) aged 22. At the time s...

LouSkel

•1 year ago

4 Replies

New name is now Official!

So, I got married on the 18th May, and me and my husband decided to double barrel our names. I was the first to get my name updated with the Department of Work...

So, I got married on the 18th May, and me and my husband decided to double barre...

Cwright170994

•1 year ago

27 Replies

Chuckle

Love this.

greaterexp

•1 year ago

10 Replies

12 June 2023 How much do you like YOU

G'Day sisters and Brothers. A little question for YOU today. Remember I am not your medical professional of any sort. I am not trained or qualified as...

G'Day sisters and Brothers. A little question for YOU today. Remember I am n...

RoyceNewton

•1 year ago

10 Replies

Does your MS affect just one or both of your legs & feet?

Yep, I'm taking a poll. :)

falalalala

•1 year ago

60 Replies

Little Laughter 😂

Well we are still in the same pattern with afternoon thunderstorms ⛈️ and staying in the mid 70’s. Beautiful morning’s ☺️ Headache last night so no sleep,...

Well we are still in the same pattern with afternoon thunderstorms ⛈️ and stayin...

Kenu

•1 year ago

7 Replies

11 06 23 Trigeminal Neuralgia

G'day. You saw the title so you know who I am talking to. I have enjoyed (sarcasm) this since the very beginning of my Relapsing-Remitting ms RRms. About...

G'day. You saw the title so you know who I am talking to. I have enjoyed (sa...

RoyceNewton

•1 year ago

5 Replies

Thank-you

A huge thank-you to all who responded to my post with prayers, hugs, info, and your own journeys. It is comforting to know people are caring and kind. Take...

A huge thank-you to all who responded to my post with prayers, hugs, info, and y...

ganna64

•1 year ago

9 Replies

Little Laughter 😂

Good Morning and the ☀️ sun is shining and a beautiful day ahead. Actually had a couple decent days 🤞🏼 and able to make some meetings. Little rough this...

Good Morning and the ☀️ sun is shining and a beautiful day ahead. Actually had ...

Kenu

•1 year ago

5 Replies

ms and cancer

I have now been dx with mouth and neck cancer. I have to have surgery and 6 weeks post op radiation. To say I am paralyzed with fear is an understatement. Has...

I have now been dx with mouth and neck cancer. I have to have surgery and 6 wee...

ganna64

•1 year ago

33 Replies

neuroplasticity

hi again group, still not getting any notifications! last time i was here was 8 long days ago. i miss your funnies! anyway i came across this article and...

hi again group, still not getting any notifications! last time i was here was 8 ...

Sandydemop

•1 year ago

10 Replies

Little Laughter 😂

Beautiful day sunny ☀️ and clear ☺️ Had a pretty good day yesterday as I made it to three meetings 👍🏼 Been rare lately for a good day 🙏 Actually got some...

Beautiful day sunny ☀️ and clear ☺️ Had a pretty good day yesterday as I made it...

Kenu

•1 year ago

8 Replies

We are celebrating MSAA's 53rd Anniversary!

Join us in commemorating MSAA'S 53rd anniversary! On June 8, 1970, the Multiple Sclerosis Association of America (MSAA) was founded as a nonprofit...

Join us in commemorating MSAA'S 53rd anniversary! On June 8, 1970, the Multiple...

MSAA_archived

•1 year ago

10 Replies

reminder to self

yep…need to remember this

erash

•1 year ago

10 Replies

Back Ablation tomorrow

As you can see in my above statement I am having my back ablation again tomorrow. It will be 8 nerves again, hopefully the right ones, as last year it was...

As you can see in my above statement I am having my back ablation again tomorrow...

Amore55

•1 year ago

34 Replies

We have critter control for free!

Or Boxer Miter went out in the backyard to do his business, he is very shy and picky about where he goes. Well, he found the spot, did his duty and then ran...

Or Boxer Miter went out in the backyard to do his business, he is very shy and p...

jorrell

•1 year ago

14 Replies

Little Laughter 😂

Morning a little rain this morning. Was up till around three o’clock last night and up at 6 🥱 long day ahead. Made it to foot 🦶 doctor for checkup and shot...

Morning a little rain this morning. Was up till around three o’clock last night ...

Kenu

•1 year ago

9 Replies

Keto Diet & MS

Whew. I've had MS for just over 30 years. I am 55 years old. Recently I learned about some new research that shows that a Keto diet is beneficial for MS. A...

Whew. I've had MS for just over 30 years. I am 55 years old. Recently I learn...

Capamp

•1 year ago

13 Replies

Tiny Chuckle

This made my day.

greaterexp

•1 year ago

20 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for June 2023

Dr. phone call!

Ampyra

Little Laughter 😂

MRI Day

MS or PMR or both

15 Jun 2023 At last

Join MSAA for a webinar on June 21st!

14 Jun 2023 How are YOU?

14 June 2023 Let me state the obvious

Unplanned Pregnancy & MS

Gentle Thoughts for Today

Anyone with trigeminal neuralgia diagnosis prior to autoimmune diagnosis?

New name is now Official!

Chuckle

12 June 2023 How much do you like YOU

Does your MS affect just one or both of your legs & feet?

Little Laughter 😂

11 06 23 Trigeminal Neuralgia

Thank-you

Little Laughter 😂

ms and cancer

neuroplasticity

Little Laughter 😂

We are celebrating MSAA's 53rd Anniversary!

reminder to self

Back Ablation tomorrow

We have critter control for free!

Little Laughter 😂

Keto Diet & MS

Tiny Chuckle

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