Ampyra: I have been on Ampyra... - My MSAA Community

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Ampyra

whwiechm profile image
8 Replies

I have been on Ampyra/Dalfampridine for about 4 years. I am thinking of stopping as it is expensive. What effect may it have on my MS? does anyone have any thoughts?

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whwiechm profile image
whwiechm
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8 Replies

sending you a DM

erash profile image
erash

through the Mark Cuban pharmacy, relatively inexpensive for the generic

sashaming1 profile image
sashaming1

It helps some but not me and my RRMS issues. So I stopped taking it.

KipAngCan profile image
KipAngCan

I’ve been taking it for nearly 2 years. I didnt think it was working until I tried to stop taking it. I was weaker, less steady, and my head felt terrible(like I was drunk). I realized that I currently can’t stop taking it.

Sandydemop profile image
Sandydemop

i love ampyra. i've been taking it for over 5 years and it keeps me functional. my legs work better and my right hand works better. if i don't take it i suffer temporarily and experience what i would be like without it. i do use the online coupons to help pay for it so about $50/month. My insurance company charged me over $700

Tazmanian profile image
Tazmanian

I've been on it for years and the amount has changed but I'm up to 5 a day and I won't stop without my neurologist saying so

Fancy59 profile image
Fancy59CommunityAmbassador

I was neither on either of those DMT's so I cannot offer you much input. Good luck with your search for information. Fancy59.

gulfstream40 profile image
gulfstream40

I have been taking Dalfampridine for 4+ years. I'm 75 and have PPMS. I'm still able to ambulate with a rolator. I'm not willing to stop and see what might change. So I will continue. I know it's expensive. Go to costplusdrugs.com l have been getting my prescription there. I just looked up the current cost for a 90 day supply which is $28.28 I hope this helps.

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