11 06 23 Trigeminal Neuralgia

[RoyceNewton]

G'day. You saw the title so you know who I am talking to. I have enjoyed (sarcasm) this since the very beginning of my Relapsing-Remitting ms RRms. About 30 years. Trust me it is not something I lock in my mind as a great milestone I must remember. 3 Laser surgeries on my face, 2 on my right and 1 on my left. I overdosed on pain meds several times. A way to get paramedics to start panicking. All in good fun (again sarcasm). So you might say I know what I am talking about.

Cyberknife surgery and Ice ( believe it or not) are the way to go. They are not the solution, nothing is, but once you have taken all the pills that you can, this is your LAST option. Feel very free to prove me wrong but remember suicide is against the rules so do NOT try it.

It really hurts. So much worse than anything you can imagine, but you can get through it. Just always try.

Royce

[erash]

I am grateful Gamma Knife has worked for me. I agree. I measure all other pain vs. my TN.

[152114randal]

Royce, what are you saying? Cyber knife surgery for pain?

[RoyceNewton in reply to 152114randal]

for Trigeminal pain specifically.

[twooldcrows]

wow you have had a lot of surgeries ...sorry about that ,i have been lucky and just keep on keeping on ...loving life and laughing as much as i can but at times it is hard but ha so is life if ya let it ...old age and MS are pretty much a way of life for me but i still do as much as possible to be around my children and their children and all the little guys and girls that go along with all of them ...we go to the beach during the summer and play in the sand with some big toys to drive around the dunes together ...winter don't do much but we all love each other ...life is what we make it .....love and much happiness to all...

[RoyceNewton in reply to twooldcrows]

not a big deal, just a little harrowing the first time, after that Vakium is your friend, ha ha.