Does your MS affect just one or both of ... - My MSAA Community

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Does your MS affect just one or both of your legs & feet?

falalalala profile image
60 Replies

Yep, I'm taking a poll. :)

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falalalala profile image
falalalala
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60 Replies
kdali profile image
kdali

It used to be one leg, so now I have a better leg. Both feet.

Turtlepie profile image
Turtlepie

Mine effects just 1 leg and foot at a time. But lately it's mostly just my right leg and foot. A couple of years ago it was my left leg

bettlebug profile image
bettlebug

Both feet but oonly one leg. Feet stay freezing!

Mollyabigail profile image
Mollyabigail in reply tobettlebug

My feet stay cold. What is up with that? Crazy!

bettlebug profile image
bettlebug in reply toMollyabigail

I think it is Neuropathy but definitely haven't found anything that helps. Neuro gave me neurotin and Gapentin but neither helped at all.

greaterexp profile image
greaterexp in reply tobettlebug

That’s my situation, too. Freezing or burning. Feet can be so indecisive.

309Ygi profile image
309Ygi in reply togreaterexp

The burn spray with lanicain . Helps . My legs have been going numb hips down . Lately vibrations around my shins don’t dare move them . Freaking curling cramps in both legs ! Xanax helps!!

erash profile image
erash

both have neuropathy and spasticity, right foot drop 🤷‍♀️

Do I win something?🤪

falalalala profile image
falalalala in reply toerash

Possibly a race!

Dream big! :)

NorasMom profile image
NorasMom

Yes. Does that help? lol.

Originally, it was only my left leg. Then my right foot joined in. Now it's all of them but rarely at the same time. This week, my left foot is numb and cold, left leg is achy, and right foot is swollen and hot. I'd be tempted to cut them all off, but I can't currently hold a knife in my right hand.

falalalala profile image
falalalala in reply toNorasMom

My hand problem is not MS related,I recently found out.

I have Dupuytren's Disease. Yay! Another "thing!"😅😜

LHermitte profile image
LHermitte in reply tofalalalala

My dad had that, fa! He benefitted from a little mild physical therapy, though it didn't eradicate the problem entirely. Wishing you all the best.

falalalala profile image
falalalala in reply toLHermitte

Thanks, I make sure to stretch my fingers and palms out.

bettlebug profile image
bettlebug in reply toNorasMom

too funny! neither of my hands wottk very well, left one especially.

carolek572 profile image
carolek572CommunityAmbassador

Just the left leg and foot, falalalala , and it’s shorter than my right one by an inch! :-D

NorasMom profile image
NorasMom in reply tocarolek572

One of my legs is shorter, too, but I can never remember which one.

starlight5 profile image
starlight5

It affects both but my right leg is weaker then the left.

Mollyabigail profile image
Mollyabigail

One leg, both feet.

Peruzzot profile image
Peruzzot

Both feet. I tend to drag my heels...and it gets worse when I get tired...and I'm always tired.😭😤🙄

NanaCC profile image
NanaCC

definitely my left side more than my right. It’s the leg that can drag, throb, feel like my foot is stepping on a phone that’s on vibrate and can feel weak.

Kenu profile image
Kenu

Has always been my right foot and arm. The last year both of my feet are cold 🥶 all the time.

Xvettech profile image
Xvettech

1 leg (left) and both feet I too have 1 leg (1”) longer than the other. The left one - with foot drop! It’s funny. ( makes things interesting )

bulldogman profile image
bulldogman

For me it’s both.

goatgal profile image
goatgal

Both feet, but slightly more so on left. Spasticity comes at odd times. Pain waxes and wanes.

Cwright170994 profile image
Cwright170994

Mainly, my right leg. I now have drop foot on that side, and my right thigh spasms when I'm tired. Now, my left leg is joining in with the spasms, but thankfully I can still properly use that foot 😢

leking1 profile image
leking1

Changes, so I never know, but both feet and both legs. For the past few weeks, the right leg and foot have been getting number, as the day goes on, so by some point I won't feel the leg or foot at all from about mid calf down. Interesting feeling.

ahrogers profile image
ahrogers

Motor function is just the right leg and foot. Sensory dysfunction in both legs/feet.

StacyHayward profile image
StacyHayward

both feet cramp and get achy. Both calves spasm and ache. But my left leg tends to get stiff like a peg leg while my right leg drags, usually both around three in the afternoon. I call it my zombie pirate walk!

and I limp on both sides. It switches sides. Sometimes within minutes. When I used to substitute teach I had a student catch it. They were so confused why I would limp on different sides!

But I’ve done much better all around since starting aerobics class!

Tkotrl profile image
Tkotrl

left leg with foot drop.

hopeandgrace profile image
hopeandgrace

both 🙁

Robsmom profile image
Robsmom

My MS affects both legs and feet but differently. Right foot has foot drop and right leg hyperextends significantly. Left foot has loss of sensation up to my arches now and left leg has pain and extremely tight hamstring. Left leg also has loss of sensation. Both knees have severe arthritis.

Greentime profile image
Greentime

Left leg and foot but both feet somewhat numb on bottom.

Chris_Percival profile image
Chris_Percival

left leg feeling numb, burning, tingling, drag of foot. Right leg not as bad.

BlueBird6557 profile image
BlueBird6557

left leg with spasticity. Some day’s worse than others. Right leg weakness also comes and goes, just never know when.

whwiechm profile image
whwiechm

My first "attack" of MS was in one leg, but that went away after about 3 months. Then gradually over a period of 30 years, both feet lost feeling.

Brindisi1 profile image
Brindisi1

. Both feet cold & feet & legs cold & burn at night. Both legs weak but walking

jorrell profile image
jorrell

Both legs, both feet.

Slowgoat13 profile image
Slowgoat13

Mostly the left. The rights going now but it took almost 10 years since the left went. I am lucky

mostly right-get peg leg at time & my foot is a block of ice (or feels like it 😂)

Trip mostly over left toes.

Lately spasms in the evening have been equal opportunity rotating days.

mrsmike9 profile image
mrsmike9

How about, one leg more than the other.

lbenmaor profile image
lbenmaor

It affects my back. Feet are fine.

Great question!

Leslie

agate profile image
agate

Hard to say except that my left side has tended to be weaker than the right, and I've had a left ankle fracture. But by now with arthritis and osteopenia and just general aging problems, I have quite a few right leg problems too. Just now it's the right foot that has a broken bone. When you get older than dirt, it's not always easy to know what to blame on MS.

jimeka profile image
jimeka

Right leg is always cold from mid thigh to foot. Foot is freezing.

Foot swells up

I get PML periodic leg movement at around 4 pm which is quite dangerous as you never know when it’s going to happen and it throws you across the floor or kicks anyone who is nearby.

Tazmanian profile image
Tazmanian

My right foot is cold and it has foot drop

MarkUpnorth profile image
MarkUpnorth

Depends:

Feet: On Fire always together, Night Spasms of the Foot, one or the other, but not together.

RLS: Both

Legs: Giving Out, sometimes 1, sometimes 2 And depending on the nuances of each, type 1 you simply walk into things, type 2 no strength to get up in pain.

Kitsey profile image
Kitsey

Just my right leg and foot. I have to use a hard AFO in order to safely walk.

cindyrn68 profile image
cindyrn68

Both, but the R is weaker.

irhunter profile image
irhunter

Began with right foot drop and progressed to right hip flexor. Now noticing left leg impairment. Thanks SPMS! Grrrrrrr!

Cutefreckles72 profile image
Cutefreckles72

MS affects both of my legs and feet and now it's working on my left arm.

AquaZumbaFan profile image
AquaZumbaFan

I have partial numbness in each of my hands, which happened with my original big exacerbation 22 years ago.. I have adapted over the years and hardly notice it because it’s just on the outside three fingers. I have bilateral foot drop and spasticity more and the right leg than the left but recently have had pain and weakness in the left leg around the thigh, where it will suddenly throw you on the floor like you have no leg .. that last part’s been happening since the end of last summer. Getting ready to have an MRI next week to see if it’s any new lesions but in the meantime, I am in PT and doing my water classes. It helps a lot.

pamgarner profile image
pamgarner

both🤐

Squirrel1270 profile image
Squirrel1270

Mine effects only my left leg, and it has for the past 8-9 years now, although for some reason my neurologist has yet to diagnose it as part of my MS. I was told I probably had a set of keys in my pocket a long time ago and just damaged the nerve... 🤔

falalalala profile image
falalalala in reply toSquirrel1270

I was told by a doctor that MS usually affects both legs/feet.

Really? Go back to med skool.😜😅

Squirrel1270 profile image
Squirrel1270 in reply tofalalalala

To tell you the truth, I don't put much faith in our health care. I went to see about my memory issues. I was told that my brain is only just so big and with that, has to prioritize what it can remember. The things I can't remember probably aren't really that important, or important enough to be a priority. I walked out of his office, down 4 stories to the parking garage to find that I'd forgotten my glasses in his office. My guess is, my glasses weren't a very high priority for my brain...

falalalala profile image
falalalala in reply toSquirrel1270

😅😅 :)

stepsforNeeC profile image
stepsforNeeC

Yes, I'm going through this right now! Right foot now looks weird to me, and I never ever wore "smaller size shoes" because I wear a 10. Numbness, and that routine our doc's have us do simulating the gas petal is difficult with my right foot. I have an upcoming appointment, we'll see what happens. Keep me posted. Blessings Always. NeeC

309Ygi profile image
309Ygi

I’m tired already being sick isn’t serving me ! Can crying super hard throw me into a relapse

falalalala profile image
falalalala in reply to309Ygi

I hope you start feeling better

anaishunter profile image
anaishunter

It only affects the bottom of my left leg (knee and feet); and left hand.

ArtsyGal profile image
ArtsyGal

Mostly my left side but both sides are a problem

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