What meds?

[sharroN42]

What meds have people been prescribed? My doctor discounts my symptoms as fibromyalgia but has never suggested meds. Any help with this is great. Thanks.

Frankie

[Yassytina FMA UK Volunteer]

Hello, I am in Suffolk England, I take Duloxtene which is helpful for Fibro, sometimes I use codiene when pain is bad , but only prescribed them to use when I have too (as can be adddicitve) but I’ve never got so I rely on them anyway , but good to have them on an odd day. I do find a soak in Epsom salts each day really helps my muscles too x

[sharroN42 in reply to Yassytina]

Thanks Yassytina

[Peaprincess]

Hi, I have been on so many so called pain killers. Pain is never killed but I take fluoxetene, tramadol and paracetamol to take a slight edge off the pain.

[sharroN42 in reply to Peaprincess]

Thanks Peaprincess

[Tiny09]

Am back on amitriptyline 50mg a nite, dnt know if it's making a difference tho

[sharroN42 in reply to Tiny09]

Thanks Tiny09

[SouthernbelleUK]

I have been on Melixocam for years! and now also on pregabalin and co codamol

[sharroN42 in reply to SouthernbelleUK]

Thanks SouthernbelleUK

[Trappedmoth]

For pain, Sativex and Low Dose Naltrexone.

[sharroN42 in reply to Trappedmoth]

Thanks Trappedmoth

[Fibrokim]

Good Morning. My doctor has prescribed Pregabolin which doesn't get rid of the pain but makes it manageable. I try not to take too many painkillers as causes lots of problems with constipation. I am resisting going on a higher dose of Pregabolin as I don't want to become addicted. I take it at night so I can function when I go to work.

[sharroN42 in reply to Fibrokim]

Thanks Fibrokim

[JayCeon]

There's about 40+ meds fibromites use for pain, depression (SSRIs), sleep, anxiety & combinations (tricyclic antidepressants: amitriptyline, nortriptyline). I was prescribed quite a few, but they harmed a lot (gut, skin, seizures), didn't help, and now after a long search have found some about 10 supps that help a lot, only 'hurt' a bit in the wrong dose (trial & error), and high dose passiflora for sleep. Many of my docs here in Germany (e.g. in the rheum./fibro/pain clinics) didn't prescribe meds either. I do generally prefer that attitude, I prefer a brain with pain to no brain with less pain, and not to suppress pain & insomnia but to prevent and alleviate their triggers.I'm not sure how you mean "discounts my symptoms as fibromyalgia": Is that short for having excluded any other reasons or for not taking them seriously? Do you mean it negatively? Are you considering changing docs or getting a 2nd opinion? I did 46 'docs' in 1.5y, all helped a tiny bit to exclude things, but many, esp. at the beginning, harmed a lot.

[sharroN42 in reply to JayCeon]

Thanks, JayCeon,I meant it in the negative sense in that my doc discounts my symptoms as being untreatable. That’s why l am interested in medications people are on. I would try to find another doctor but am, in fact, lucky to have one. The pandemic has shown the inadequacy of the Canadian health system and the appalling lack of medical people. Many Canadians do not have a personal physician.

[JayCeon in reply to sharroN42]

Oh dear, that definitely doesn't sound good, but as I said: Neither docs nor meds helped me. So I'd encourage you instead to look for good gentle physios (osteopathy, chiropractors, acupressure) and tolerable exercises (short but regularly) for single pains, if at least that is possible, and for herbs and supps for the overall stuff: sleep, pain, energy, fatigue, fog etc. If you're interested in suggestions & tell me what's your priority, I could expand...

The other possibilities are mind matters which help identify triggers and relax, diet for overall health or perhaps food triggers, essential oils, preventing environmental triggers.

[sharroN42 in reply to JayCeon]

That is a very generous offer, JayCeon. I would be interested in any and all treatments that would help with pain, fatigue, and brain fog. I’ve wondered if l might have adrenal fatigue as well as evening and nights are my best times. I find it impossible to go to bed at a reasonable time (hence my being up now 🙃).

[JayCeon]

OK, "any and all" sounds very general, so : On my profile there's a link to my "fibromyalgia references", incl. an all-encompassing treatment list (best go to table of contents at the end of the thread), to work thru. Some hints for starters: Overall ache and single pains are something completely different: different triggers, different treatments. I've identified 11 kinds of fatigue, brain fog I think can be counted as one of them. Not sure from what you say if sleep is an issue or not for you?

Our FM varies greatly, there's lots to try tho. For what it's worth, what definitely has helped me longer than 4 months - so not placebo - is high dose passiflora, GABA (supp, not meds!) & theanine for more effective sleep, which reduces fatigue and pain. For single pains: good physio and exercises. For Ache, stiffness, energy & more: GABA and cold showers/cryotherapy, praps magnesium malate & magnesium glycinate. For energy/fatigue/fog: NAC, NADH, D-ribose, praps ALC and serrapeptase, whilst for a FM/CFS-colleague of mine who I recommended it GABA greatly helped brain fog. Another colleague did an "amino acid questionnaire" and realized the amino acid she needed was tyrosine, not GABA.

Is that a start or do you mean/need something different?

[sharroN42 in reply to JayCeon]

Tho so much, JayCeon,I will check your profile post out. My sleep issue is simply not going to bed. Since going back on my CPAP machine I’ve usually been sleeping solidly for at least 8hours.