Posts - Epilepsy Action | HealthUnlocked

Epilepsy Action

3,021 members • 1,130 posts

All posts for March 2019

I really need help and lost

I would like to share my story today to see if I can get some feedback or something about what has been happening to me for the next 4 years. I've never had...

I would like to share my story today to see if I can get some feedback or someth...

Hidden

•5 years ago

3 Replies

Strobe lighting and blacking out

Hi, We have just been to the local fair and my son and I were in a ride, fast and loud. They turned the lights out towards the end and put in strobe lighting...

Hi, We have just been to the local fair and my son and I were in a ride, fast a...

Bernies001

•5 years ago

5 Replies

The World Outside

As well as having epilepsy, I cannot read body language, and also suffer from dyslexia. If there is a link between these three then I would like to know more,...

As well as having epilepsy, I cannot read body language, and also suffer from dy...

chris1962

•5 years ago

2 Replies

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Vimpat

Just need to know has anyone had any issues with Vimpat. Moods temper etc.

trinity68

•5 years ago

3 Replies

Brain Surgery

Hi there dont know if anyone has had brain surgery or not. I've had it and thought my seizures were gone. Went back to work then again gradmal seizuer...

Hi there dont know if anyone has had brain surgery or not. I've had it and thoug...

trinity68

•5 years ago

4 Replies

Genetic

My partner has epilepsy and has grand mal seizures (every couple of years). He had one recently and then had another shortly after. I didnt react well at all....

My partner has epilepsy and has grand mal seizures (every couple of years). He h...

Quentin19

•5 years ago

2 Replies

Embrace watch

Hi all how meny people in the UK have got the new embrace watch for epilepsy? Mine is due to come today and I'm really looking forward to getting it but I do...

Hi all how meny people in the UK have got the new embrace watch for epilepsy? Mi...

Wintersbite

•5 years ago

8 Replies

Can an epilepsy crisis have the symptoms of NZT?

I had 3 epileptic crises. I felt like I took a NZT, my head a thousand times per second. Is this possible?. Sorry, my english is very bad.

I had 3 epileptic crises. I felt like I took a NZT, my head a thousand times per...

leorossi

•5 years ago

1 Reply

New to all this.... Help and understanding needed.

Hi all My 17 year old son has recently been diagnosed with Absence Epilepsy. He's had an EEG and an MRI scan, we have an appointment with hi consultant in...

Hi all My 17 year old son has recently been diagnosed with Absence Epilepsy. He'...

1968ade

•5 years ago

1 Reply

Keppra 500

Hi I’m in a panic My son is 11 and on keppra 500 I accidentally double dosed him tonight one at 7:00 and woke up thinking I didn’t give it to him and just...

Hi I’m in a panic My son is 11 and on keppra 500 I accidentally double dosed h...

Michellecia

•5 years ago

8 Replies

Ayurvedic medicine, CDB oil

Hi, I'm new here. I've had epilepsy for the past 35 years and it has been really bad the past 4 years since I started menopause. Allopathic medicine hasn't...

Hi, I'm new here. I've had epilepsy for the past 35 years and it has been really...

Susan1940

•5 years ago

2 Replies

My new found journey

Hello everyone! My name is Morgan, I’m 22 and I live in Canada. I was diagnosed with epilepsy at age 20 after a completely healthy childhood. I now struggle...

Hello everyone! My name is Morgan, I’m 22 and I live in Canada. I was diagnosed ...

morganwalker1997

•5 years ago

2 Replies

Epidiolex

Has anyone tried to look into this? Again, I am a caregiver for someone to has seizures not someone who has them myself.. but I wanted to put that drug name...

Has anyone tried to look into this? Again, I am a caregiver for someone to has s...

kellyOd

•5 years ago

1 Reply

Breathlessness while on Keppra

I started with Epilepsy about 4 years ago and eventually the fits settled on Keppra having tried both Lamotragine and sodium valporate. After 3 years on 1000...

I started with Epilepsy about 4 years ago and eventually the fits settled on Kep...

heathermr

•5 years ago

1 Reply

My epilepsy

When I left school I started college doing cooking I was enjoying myself.but one day I felt bad and everything started to sound funny round me my lips turn...

When I left school I started college doing cooking I was enjoying myself.but one...

raven1974

•5 years ago

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PNES

Does anyone here have pseudo seizures or Psychogenic non epileptic seizures?

raelynn15

•5 years ago

5 Replies

Anxiety and seizures

Hi all, I just downloaded this app because I’ve been desperately struggling to adjust my lifestyle after my recent diagnosis of epilepsy at age 21. First of...

Hi all, I just downloaded this app because I’ve been desperately struggling to a...

morganerzal

•5 years ago

19 Replies

Myoclonic taking epilim and keppra

hi I take epilim and keppra I’ve had epilepsy since I was 14 now 31. This is my first time posting But I’ve never been worried about epilepsy and always just...

hi I take epilim and keppra I’ve had epilepsy since I was 14 now 31. This is my ...

Ajmpaddy

•5 years ago

2 Replies

Briviact and dosage

I am having side effects when I was changed my dosage from 1 50mg at night to 25mg morning and 25mg night, about 6 weeks ago. 50mg at night was fine but hyper...

I am having side effects when I was changed my dosage from 1 50mg at night to 25...

Adlon57

•5 years ago

1 Reply

Dissertation Help! :)

Hi! I am carrying out some research for my dissertation project and I was wondering if you could help me? I have epilepsy myself and have always been...

Hi! I am carrying out some research for my dissertation project and I was wonder...

NifaA

•5 years ago

2 Replies

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Posts - Epilepsy Action | HealthUnlocked

Epilepsy Action

All posts for March 2019

I really need help and lost

Strobe lighting and blacking out

The World Outside

Vimpat

Brain Surgery

Genetic

Embrace watch

Can an epilepsy crisis have the symptoms of NZT?

New to all this.... Help and understanding needed.

Keppra 500

Ayurvedic medicine, CDB oil

My new found journey

Epidiolex

Breathlessness while on Keppra

My epilepsy

PNES

Anxiety and seizures

Myoclonic taking epilim and keppra

Briviact and dosage

Dissertation Help! :)

Search posts

Pinned Posts

Latest poll

Why Did you join this community?

Topics

Archive