Posts - Epilepsy Action | HealthUnlocked

Epilepsy Action

3,021 members • 1,130 posts

All posts for September 2023

currently going through diagnosis

Hi all, Just looking for some advice, my daughter is currently under investigation for epilepsy, we have had an EEG which showed seizure activity and...

Hi all, Just looking for some advice, my daughter is currently under investiga...

masone22

•7 months ago

7 Replies

CENOBATAM

Is anyone experiencing difficulties with this drug

Denman1

•7 months ago

9 Replies

Drug Watch

Keep up to day with the latest info on UK epilepsy medicine shortages and changes https://www.epilepsy.org.uk/category/drugwatch

Keep up to day with the latest info on UK epilepsy medicine shortages and change...

EpilepsyAction1

Partner•7 months ago

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Twitches / jerks

I have been diagnosed with nocturnal epilpesy since 2019, however since june /July I have begun to notice I am beginning to have twitches and clusters of these...

I have been diagnosed with nocturnal epilpesy since 2019, however since june /Ju...

Anna_Mellor

•7 months ago

5 Replies

Incorrect medication

I have just gone to open what should have been a sealed box of 56 ethosuximide tablets to find out it was already open and there was only 47 tablets inside....

I have just gone to open what should have been a sealed box of 56 ethosuximide t...

Angie140720

•7 months ago

4 Replies

Seeking a reliable smart watch for seizure alerts

My 5 year old daughter has recently been diagnosed with epilepsy with er seizures occurring during sleep.We are hoping to purchase a watch which will alert us...

My 5 year old daughter has recently been diagnosed with epilepsy with er seizure...

Pdynes

•7 months ago

1 Reply

change of brand name

I have been on Accord brand of lamotrogine but having trouble getting my pharmacist has given me the brand gilpharm and wondering if anyone has had any side...

I have been on Accord brand of lamotrogine but having trouble getting my pharmac...

Oscar2022

•7 months ago

4 Replies

Hair loss and Levetiracetam?

Hi, I only started having seizures 2 years ago (in my late 30s), and was put on Levetiracetam. I still had focal seizures so the dose kept being put up, and...

Hi, I only started having seizures 2 years ago (in my late 30s), and was put on ...

LateStarter01

•7 months ago

3 Replies

First seizure clinic

How long should it take for an appointment for this clinic after a first seizure?

How long should it take for an appointment for this clinic after a first seizure...

Dawn43

•7 months ago

2 Replies

Panic Attacks on Vimpat/Lacosamide

Hi I switched from Phenytoin to Lamotrogine in Nov 22 after 30 years because my specialist said the long term side affects were quite bad. I was ok on the...

Hi I switched from Phenytoin to Lamotrogine in Nov 22 after 30 years because my ...

johndoe49

•7 months ago

3 Replies

Absence Seizures

Hi, I'm new to this, but not new to epilepsy. I had absence seizures as a child, they went away, and then when I started uni the seizures came back. That was...

Hi, I'm new to this, but not new to epilepsy. I had absence seizures as a child,...

Bookworm01

•7 months ago

11 Replies

Status Epilepticus

Ive seen this noted on my gp's computer but i havent been told officially or had it stated on discharge letters. When i had my last seizure, I fell unconscious...

Ive seen this noted on my gp's computer but i havent been told officially or had...

Dawn43

•8 months ago

4 Replies

Tips for keeping safe

Hi all, I recently had a seizure and it wasn’t until this latest one where I fell and hit my head that I realized how easily it could have turned horribly...

Hi all, I recently had a seizure and it wasn’t until this latest one where I f...

GSYGirl24

•8 months ago

3 Replies

Feeling Lucid

I’ve recently worked up to a prescribed amount of 300mg of Lamotrogine a day. I was wondering if anyone ever feels like they are feeling lucid almost as if you...

I’ve recently worked up to a prescribed amount of 300mg of Lamotrogine a day. I ...

CrawlingStorey

•8 months ago

7 Replies

Talk to others who understand

Whether epilepsy is new to you, or you’ve got experiences to share, our Talk and support groups are here for you, online and in person...

Whether epilepsy is new to you, or you’ve got experiences to share, our Talk and...

EpilepsyAction1

Partner•8 months ago

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Worst seizure ive had

I dont recall anything after taking a delivery off a justeat driver on Friday 1st sep, but according to hubby, I ate food, went to the loo and whilst on the...

I dont recall anything after taking a delivery off a justeat driver on Friday 1s...

Dawn43

•8 months ago

8 Replies

My son is autistic with epilepsy stopped eating

Hello. My son 11 yo got epilepsy and autism. 10 weeks ago he started taking the prescribed Epilim liquid, starting with 2 ml per day and gradually increased...

Hello. My son 11 yo got epilepsy and autism. 10 weeks ago he started taking the ...

IrinaBibikova

•8 months ago

4 Replies

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Posts - Epilepsy Action | HealthUnlocked

Epilepsy Action

All posts for September 2023

currently going through diagnosis

CENOBATAM

Drug Watch

Twitches / jerks

Incorrect medication

Seeking a reliable smart watch for seizure alerts

change of brand name

Hair loss and Levetiracetam?

First seizure clinic

Panic Attacks on Vimpat/Lacosamide

Absence Seizures

Status Epilepticus

Tips for keeping safe

Feeling Lucid

Talk to others who understand

Worst seizure ive had

My son is autistic with epilepsy stopped eating

Search posts

Pinned Posts

Latest poll

Why Did you join this community?

Topics

Archive