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Epilepsy Action

3,145 members•1,202 posts

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When they say anti seizure medication 'prevent seizures from happening' what EXACTLY does that mean?

I haven't had a tonic clonic seizure since 2022. I have still been having focal seizures which are much more under control since the introduction of...

I haven't had a tonic clonic seizure since 2022. I have still been having focal ...

•7 months ago

Drinking with seizures

My partner had a TIA stroke last year and having absence type seizures so now on lamotrigine to help control it. He is still in early stages and they still...

My partner had a TIA stroke last year and having absence type seizures so now on...

•1 year ago

Wondering people's Xcopri (cenobamate) experiences

Hey all, I am just looking to hear other people's experiences with xcopri (cenobamate). Their opinions on it, reactions to it and what doses they are on.

Hey all, I am just looking to hear other people's experiences with xcopri (cenob...

•2 years ago

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In my 21 years of living with Epilepsy I have only just discovered that it is a disability

This is my first post, I suffer with epilepsy and i am really struggling at university because of it. My parents told me to lie to the doctors to say I don’t...

This is my first post, I suffer with epilepsy and i am really struggling at univ...

•2 years ago

Epilepsy Action expresses concern over new guidance on epilepsy medication

12 November, 2013 National charity Epilepsy Action has expressed major concerns over new guidance on prescribing epilepsy medicines. The new guidance has been...

12 November, 2013 National charity Epilepsy Action has expressed major concerns ...

EpilepsyAction1

Partner•11 years ago

Which epilepsy treatment would you prefer?

For most people with epilepsy, treatment for their seizures involves taking anti-epileptic drugs. However, a number of other treatment options are becoming...

For most people with epilepsy, treatment for their seizures involves taking anti...

EpilepsyAction1

Partner•12 years ago

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National Tea & Cake Break

There isn’t just one reason to organise a National Tea & Cake Break, there are 600,000! That’s the number of people living with epilepsy in the UK right now....

There isn’t just one reason to organise a National Tea & Cake Break, there are 6...

EpilepsyAction1

Partner•12 years ago

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Cell therapy: epilepsy cure?

A new research study has succeeded in stopping seizures in mice using cell therapy. It is hoped that this is a major breakthrough in epilepsy treatment that...

A new research study has succeeded in stopping seizures in mice using cell thera...

EpilepsyAction1

Partner•12 years ago

New guidelines to increase children’s epilepsy surgery

Epilepsy Action, in association with NHS England, has developed new guidelines to help more children with epilepsy benefit from surgical procedures. The...

Epilepsy Action, in association with NHS England, has developed new guidelines t...

EpilepsyAction1

Partner•12 years ago

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Myth or Fact Quiz

..Think you know about epilepsy? Take our Myth or Fact quiz, designed for National Epilepsy Week 2013....

..Think you know about epilepsy? Take our Myth or Fact quiz, designed for Nation...

EpilepsyAction1

Partner•12 years ago

Coffee and chat groups

Coffee and chat groups are being set up all across the country. These give people living with epilepsy the chance to meet each other in ordinary venues like...

Coffee and chat groups are being set up all across the country. These give peopl...

EpilepsyAction1

Partner•12 years ago

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National Epilepsy Week – 19-25 May 2013: lets get myth busting!

This year’s National Epilepsy Week is fast approaching and our focus will be on busting some of the myths about epilepsy. We’re aiming to challenge some of the...

This year’s National Epilepsy Week is fast approaching and our focus will be on ...

EpilepsyAction1

Partner•12 years ago

Course on managing your epilepsy

If you have epilepsy and live in London, you could be eligible to take part in a free two day self-management course. The course will be delivered to a group...

If you have epilepsy and live in London, you could be eligible to take part in a...

EpilepsyAction1

Partner•12 years ago

A Critical Time for epilepsy in England

Epilepsy Action has launched its new report, A Critical Time for epilepsy in England. The report shows that epilepsy health services in England are not good...

Epilepsy Action has launched its new report, A Critical Time for epilepsy in Eng...

EpilepsyAction1

Partner•12 years ago

Recognising good practice for epilepsy in education

Epilepsy Actions Edwards awards programme rewards those with evidence of good practice in supporting pupils/students with epilepsy. The Edwards 2013 are now...

Epilepsy Actions Edwards awards programme rewards those with evidence of good pr...

EpilepsyAction1

Partner•12 years ago

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Purple Day

On 26 March the world will come together to celebrate Purple Day, the international day of epilepsy awareness. To celebrate Purple Day 2013, Epilepsy Action...

On 26 March the world will come together to celebrate Purple Day, the internatio...

EpilepsyAction1

Partner•12 years ago

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New driving laws for people with epilepsy.

New driving regulations for people with epilepsy, in the UK, became law on March 8 2013. These changes will not affect Northern Ireland until later this year....

New driving regulations for people with epilepsy, in the UK, became law on March...

EpilepsyAction1

Partner•12 years ago

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Survey of women living with epilepsy.

As part of a new campaign launched by Epilepsy Action, we have released the results of a survey of women living with epilepsy. The survey results show that a...

As part of a new campaign launched by Epilepsy Action, we have released the resu...

EpilepsyAction1

Partner•12 years ago

Telling potential employers about your epilepsy.

You don’t have to tell your employer or a potential employer about your epilepsy, if you don’t feel it’s relevant. This could be the case if your epilepsy is...

You don’t have to tell your employer or a potential employer about your epilepsy...

EpilepsyAction1

Partner•12 years ago

Newly Diagnosed.

Epilepsy is a misunderstood condition. Don’t let this affect you living a full and active life. Many people with newly-diagnosed epilepsy respond well to...

Epilepsy is a misunderstood condition. Don’t let this affect you living a full a...

EpilepsyAction1

Partner•12 years ago

Free prescriptions

If you you have epilepsy and take epilepsy medicines, you are entitled to free prescriptions. This is for all your prescription medicines, not just your...

If you you have epilepsy and take epilepsy medicines, you are entitled to free p...

EpilepsyAction1

Partner•12 years ago

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