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Epilepsy Action

3,019 members • 1,130 posts

All posts for October 2021

Ideas for an attractive bed guard

My tween daughter has epilepsy that causes seizures sometimes when she sleeps. We’ve had the mattress on the floor, but we’d like to put it on a bed frame and...

My tween daughter has epilepsy that causes seizures sometimes when she sleeps. W...

c-mac

•3 years ago

1 Reply

My neurologist mentioned NeuroPace as a treatment option for myself. Does anyone have experience with this?

I have what you called drug resistant epilepsy and my doctor thinks NeuroPace is an option I should consider. Looking to see if anyone has direct experience...

I have what you called drug resistant epilepsy and my doctor thinks NeuroPace is...

nyev

•3 years ago

2 Replies

Video Eeg

Who can tell me what to expect with a video eeg? I’ve never had one of the video eegs before just the one that takes one to two hrs. I’m getting ready to have...

Who can tell me what to expect with a video eeg? I’ve never had one of the video...

JDQuinn75

•3 years ago

1 Reply

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Pure stress and tension! Epilepsy seems to thrive on it!

I have had Juvenile Myoclonic Epilepsy since the age of 14, I'm 65, when I bashed my head in a swimming pool. Most of my seizures are set off by pure stress...

I have had Juvenile Myoclonic Epilepsy since the age of 14, I'm 65, when I bashe...

Adlon57

•3 years ago

11 Replies

Seizure when active

Hello I tend to suffer from seizures now (compared to more frequently 5 or 6 months ago) whilst playing 5 a side football. Does anyone have this or know why...

Hello I tend to suffer from seizures now (compared to more frequently 5 or 6 mon...

Anthony_united

•3 years ago

2 Replies

are wheelchairs good for epilepsy ?

Is wheelchair for me even though I can do somethings without a wheelchair?

Lovinghorses

•3 years ago

2 Replies

Anyone else have a problem with the new LED light panels?

Hi , I was working in my shed on Tuesday, when out of the blue, I suddenly felt dizzy and fell down/passed out , I woke up a little bit later ( seconds I...

Hi , I was working in my shed on Tuesday, when out of the blue, I suddenly f...

Hermanm

•3 years ago

1 Reply

Lamogratrine increase

Hey all, has anyone struggled with increase? I was on 100mg only gone up by another 25mg last Monday, been 14 days at higher level & im all over the place,...

Hey all, has anyone struggled with increase? I was on 100mg only gone up by anot...

Hidden

•3 years ago

6 Replies

Phenytoin sodium long term links to cancer?

Hi, my girlfriend has epilepsy and was put on this drug about 7 years ago. She is 32 and since being on it she has undergone over a dozen surgeries, a...

Hi, my girlfriend has epilepsy and was put on this drug about 7 years ago. She i...

Pat-Nash

•3 years ago

7 Replies

First seizure

Hi everyone , I’m 38 and had my first ever tonic clonic seizure 🥲 a couple of weeks ago, it was such a shock to me and unexpected, ended up in hospital for a...

Hi everyone , I’m 38 and had my first ever tonic clonic seizure 🥲 a couple of w...

Faith7

•3 years ago

17 Replies

Lamotrigine Torrent Side Effects

Just been diagnosed with epilepsy and I’m on 50mg of Lamotrigine Torrent. I am get waves of panic, palpitations, pins and needles up my arms and legs every 10...

Just been diagnosed with epilepsy and I’m on 50mg of Lamotrigine Torrent. I am g...

MariaC1970

•3 years ago

4 Replies

Medication Change

Guys, Dr has reduced me to I’m 1500mg Keppra daily & 200mg Lamogratrine, after 2 years free I’m having seizures trying to break through, Neurologist is...

Guys, Dr has reduced me to I’m 1500mg Keppra daily & 200mg Lamogratrine, after ...

Hidden

•3 years ago

1 Reply

When coming of carbamazepine did your seizures return?

I am coming off carbamazepine after being on it for 3 years and was wondering whether if you have come off carbamazepine you got seizures returning or not

I am coming off carbamazepine after being on it for 3 years and was wondering wh...

Pink1666

•3 years ago

3 Replies

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Posts - Epilepsy Action | HealthUnlocked

Epilepsy Action

All posts for October 2021

Ideas for an attractive bed guard

My neurologist mentioned NeuroPace as a treatment option for myself. Does anyone have experience with this?

Video Eeg

Pure stress and tension! Epilepsy seems to thrive on it!

Seizure when active

are wheelchairs good for epilepsy ?

Anyone else have a problem with the new LED light panels?

Lamogratrine increase

Phenytoin sodium long term links to cancer?

First seizure

Lamotrigine Torrent Side Effects

Medication Change

When coming of carbamazepine did your seizures return?

Search posts

Pinned Posts

Latest poll

Why Did you join this community?

Topics

Archive