The World Outside

[chris1962]

As well as having epilepsy, I cannot read body language, and also suffer from dyslexia. If there is a link between these three then I would like to know more, because as it stands it makes interaction with the world outside very difficult.

All three of these are invisible disabilities, and as time passes I have become more and more able to develop coping strategies, which to a greater extent hide my deficiencies.

This means that friendships are hard won, because by the time you realise you've said the wrong thing, it is too late. Fortunately nobody has yet hit me for what I have said, and the injuries I have picked up are from seizures, although they're bad enough.

I have found that different drugs make things worse, Topiramate I found made me angry, so I am now on Vimpat which appears to have calmed me down, Lamotrigine I have been taking for that long I don't know what it's side effects are.

Hopefully I have set out my comment in a logical and sensible way, when you only read what you wanted to write, and not what you have actually written can be problematic.

Chris

[wxy123]

I have a relation with similar hidden disabilities to yours and no close friends. You have explained your situation so clearly; I am glad you have friends.

Good luck.

[EpilepsyAction1 Partner Epilepsy Action]

Hi Chris

Thank you for your post. It sounds like you have a lot to cope with.

We are not aware of any connection between epilepsy and your other health issues.

I wonder if you would find attending one of our Coffee and Chat groups helpful. It’s a good way of meeting and talking to others with epilepsy in a comfortable environment.

To see if we have a coffee and chat in your area please use this link.

epilepsy.org.uk/involved/br...

Regards

Diane

Epilepsy Action Helpline Team