Posts - Epilepsy Action | HealthUnlocked

Epilepsy Action

3,021 members • 1,130 posts

All posts for July 2023

Focal seizures

I seem to be having these regular. It starts with a cold tingly feeling all down my right side. Then I'll feel sick. A pounding in my right ear and also a...

I seem to be having these regular. It starts with a cold tingly feeling all dow...

•9 months ago

Ramipril

I have recently had ramipril medication increased to lower my blood pressure. Since this I have been suffering from double vision and been unsteady on my feet...

I have recently had ramipril medication increased to lower my blood pressure. Si...

•9 months ago

Travelling from Ireland to Canada

My adult daughter has been seizure free from epilepsy for almost 10 years. This year she is going to Canada from Ireland to visit her sister. She is concerned...

My adult daughter has been seizure free from epilepsy for almost 10 years. This...

•9 months ago

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We have added Live Chat as another way to seek help and advice from Epilepsy Action.

At Epilepsy Action we have trialed 'Live Chat' and we are pleased to say it has become a permanent offering. We offer live chat support from 10am to 4pm,...

At Epilepsy Action we have trialed 'Live Chat' and we are pleased to say it has ...

EpilepsyAction1

Partner•9 months ago

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Warning signs?

Hi…I had my first seizure in over 50 years recently, I am now 68 and had one as a kid. I have always been aware that my “episodes of weirdness”, as I call...

Hi…I had my first seizure in over 50 years recently, I am now 68 and had one as ...

•9 months ago

Share your employment experiences - This survey is now closed

Hi Epilepsy Action is doing a survey on 'how does epilepsy affect your working life?' Whether your experiences are good or bad, you can help us make sure...

Hi Epilepsy Action is doing a survey on 'how does epilepsy affect your working...

EpilepsyAction1

Partner•9 months ago

Epilim and folate / change to lamotrigine ?

I was put on Epilim in my teens. Some years later, I became symptom free, and I was unmedicated for 10 years. I had to go back on Epilim Chrono five years ago...

I was put on Epilim in my teens. Some years later, I became symptom free, and I ...

•9 months ago

newly diagnosed - tired and down

hello I am recently diagnosed - still having some tests etc but am on 2000mg of levetiracetam. I’m off work currently mainly due to extreme tiredness and...

hello I am recently diagnosed - still having some tests etc but am on 2000mg o...

•9 months ago

Cenobamate experience

After an increase in seizure frequency my consultant is talking about changing me from keppra + lamotragine to Keppra + Cenobamate. The only review I can find...

After an increase in seizure frequency my consultant is talking about changing m...

•9 months ago

Northern Ireland patients left waiting

The Northern Ireland department of health will not be able to meet its waiting list targets due to a lack of recurrent funding, it has said. Epilepsy Action...

The Northern Ireland department of health will not be able to meet its waiting l...

EpilepsyAction1

Partner•10 months ago

Sabril (Vigabatrin) recall - 14 July 2023

The Medicines and Healthcare products Regulatory Agency (MHRA) has issued a medicines recall affecting some Sabril tablets and granules. Sabril is the brand...

The Medicines and Healthcare products Regulatory Agency (MHRA) has issued a medi...

EpilepsyAction1

Partner•10 months ago

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newly diagnosed

hello I am 49 and have recently started 2000mg a day of levecrartem (can’t spell it). I think my stories a bit of a weird one. In may I had the worse...

hello I am 49 and have recently started 2000mg a day of levecrartem (can’t spe...

•10 months ago

Lamotragine side effects

Hi all, I’ve had epilepsy for about 25 years, until recently well controlled with keppra with only occasional breakthroughs. Unfortunately I had a...

Hi all, I’ve had epilepsy for about 25 years, until recently well controlled w...

•10 months ago

Change in condition

Hey guys, I was diagnosed with epilepsy 18 months ago and have always had seizures in my sleep.. until last Thursday. I had a seizure during the day, which...

Hey guys, I was diagnosed with epilepsy 18 months ago and have always had seizur...

•10 months ago

New to Epilepsy

I witnessed my son have his second seizure yesterday morning whilst still in bed. He was released from hospital after bloods taken and sent home. His fit...

I witnessed my son have his second seizure yesterday morning whilst still in bed...

•10 months ago

Epilepsy specialist shortage a ‘crisis’

The government’s latest NHS workforce plan failed to mention epilepsy or neurology. A report by Epilepsy Action has shown there is a significant lack of...

The government’s latest NHS workforce plan failed to mention epilepsy or neurolo...

EpilepsyAction1

Partner•10 months ago

Epilepsy and the Menopause Talk & Support virtual group

Epilepsy Action is having an Talk and Support virtual group regarding epilepsy and the menopause. Date and time Mon, 17 Jul 2023 18:00 - 19:30 BST...

Epilepsy Action is having an Talk and Support virtual group regarding epilepsy a...

EpilepsyAction1

Partner•10 months ago

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