Posts - Epilepsy Action | HealthUnlocked

Epilepsy Action

3,021 members • 1,130 posts

All posts for May 2022

Looking for some advice.

Hi. I started suffering from sleep seizures 4 years ago and am now on my third different set of medication and nothing seems to be working. I'm still having...

Hi. I started suffering from sleep seizures 4 years ago and am now on my third d...

Shorehampete

•2 years ago

2 Replies

Travel Insurance for People With Epilepsy

Hi, I'm new to the group and trying to arrange travel Ins for myself. It seems nigh impossible these days to speak to a human, they all seem to be automated....

Hi, I'm new to the group and trying to arrange travel Ins for myself. It seems n...

Dusty1949

•2 years ago

6 Replies

Started having "auras" at the age of 36

I started having "auras" or deja-vu at the age of 36 and that's where it always ended. Then one morning I woke up with bitten tongue and I assumed I had a...

I started having "auras" or deja-vu at the age of 36 and that's where it always ...

jadenew

•2 years ago

5 Replies

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Explaining how parent has epilepsy

My partner got diagnosed approx 18 months ago after 3 or 4 seizures. He’s been on medication and free from seizure until yesterday when he collapsed in front...

My partner got diagnosed approx 18 months ago after 3 or 4 seizures. He’s been o...

Cherylha

•2 years ago

6 Replies

Information on who to contact plz

Hi I've just seen the news about sodium valproate was wondering how to get information about compensation etc as I have a child who has difficultys and I was...

Hi I've just seen the news about sodium valproate was wondering how to get infor...

Louiseh74

•2 years ago

2 Replies

Hello

Hi, I've just joined healthunlocked as I've just found out that Forum4e is closing soon. Very sad. While I wasn't a very active member, I still found all their...

Hi, I've just joined healthunlocked as I've just found out that Forum4e is closi...

RedRobinHood

•2 years ago

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Hello I'm new

Hello I have just joined as epilepsy forum is closing August hope to make friends on here , and help anyone I can , also people to help me too hope your...

Hello I have just joined as epilepsy forum is closing August hope to make fr...

Chickens20

•2 years ago

6 Replies

Diagnosed 1 year ago with epilepsy after 2 seizures. Recently had a third seizure.

1 day after my covid isolation ended in Jan 2021 I had my first seizure. (Shaking i was told). Woke up 2 hours later in resus. Second seizure was end of March...

1 day after my covid isolation ended in Jan 2021 I had my first seizure. (Shakin...

Dawn43

•2 years ago

5 Replies

ID for young adults

What ID do young adults take going out to bars/nights out with friends. My daughter can’t obviously get a drivers licence, and taking her passport is not...

What ID do young adults take going out to bars/nights out with friends. My daugh...

BMMog

•2 years ago

3 Replies

Brivaracetam

Hi, Is there anyone on here been changed to briviact from keppra? If so, did the change improve your condition? I have been on lamictal and keppra for years...

Hi, Is there anyone on here been changed to briviact from keppra? If so, did th...

RR25

•2 years ago

5 Replies

Apple watch apps

Hello there, I am trying to find an epilepsy seizure app for mine and my sons apple watch, so I can be alerted if he isn’t with me and has a seizure (as this...

Hello there, I am trying to find an epilepsy seizure app for mine and my sons ap...

Furbaby1

•2 years ago

1 Reply

Autistic and just diagnosed with Epilepsy im so scared

Hi my son is 22, Autistic and has learning difficulties he has just had his second seizure, so has been told he is Epileptic, im scared, gave him his first...

Hi my son is 22, Autistic and has learning difficulties he has just had his seco...

Brynrhian

•2 years ago

4 Replies

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Posts - Epilepsy Action | HealthUnlocked

Epilepsy Action

All posts for May 2022

Looking for some advice.

Travel Insurance for People With Epilepsy

Started having "auras" at the age of 36

Explaining how parent has epilepsy

Information on who to contact plz

Hello

Hello I'm new

Diagnosed 1 year ago with epilepsy after 2 seizures. Recently had a third seizure.

ID for young adults

Brivaracetam

Apple watch apps

Autistic and just diagnosed with Epilepsy im so scared

Search posts

Pinned Posts

Latest poll

Why Did you join this community?

Topics

Archive